The thirteenth meeting of the Tick-Borne Disease Working Group (Working Group) was held online on April 27, 2020, from 9:00 a.m. to 12:30 p.m., ET. This meeting was open to the public, with request to comment accepted by April 19, 2020. The Working Group reviewed the work of the Public Comment Subcommittee followed by the Federal […]
This section contains information on legislation that has been introduced and/or passed by the federal government and individual states. It includes sections that contain the position the Lyme Disease Association has taken on various bills, if any; information on how to contact your legislator; and what you can do to help specific laws be passed or defeated. Additionally, there is a section on various government departments. From time to time, the LDA will post articles from the departments/agencies in these sections that pertain to Lyme disease that might be of interest or importance to the public, including policies being considered or adopted.
It is important for the LDA to take a lead role in forming relationships with all levels of government. Laws and policy decisions often affect how Lyme disease is viewed by the public and physicians, and LDA needs to clearly articulate the problems which are created by government actions or which can be rectified by government actions. Additionally, we need to ensure that the information presented to government officials is accurate and supported by science.
President Trump hosted Michigan State Rep. Karen Whitsett and other COVID-19 survivors at the White House. During their discussions, Rep. Whitsett, who nearly lost her life to COVID-19, brought up her chronic Lyme disease as an underlying condition. Throughout the 41 minute meeting, President Trump highlighted how serious & devastating Lyme disease is and stated that it “can kill you”.
On April 9th, Rep. Chris Smith sent a letter to Health and Human Services (HHS) Secretary Alex Azar and the National Institute for Allergies and Infectious Disease (NIAID) Director, Dr. Anthony Fauci, thanking them for their tireless efforts to address the Coronavirus outbreak as well as expressing his concerns about Lyme disease sufferers and their […]
The Lyme Disease Association Inc. (LDA) feels it is imperative that the Lyme Community and the public understand the continued resistance by government agencies to provide information pertaining to chronic Lyme disease on their websites and in their programs despite Lyme disease being around 45 years. LDA has provided video clips from the HHS Tick-Borne […]
TBD Working Group Committee Members / Meeting #12 Agenda / LDA Written Summary of Meeting Full Video: March 3rd – Day 1 / March 4th – Day 2 Other Video Clips: Training, Education, Access to Care Discussion / Public Comment (9 speakers) 1-S. Donta: Pathogenesis, Physiology of Lyme 4-S. Donta: Clinical Aspects of Lyme Including […]
The 12th meeting of the Tick-Borne Disease Working Group (TBDWG) took place over two days, March 3rd-4th, 2020, at The College of Physicians of Philadelphia in Philadelphia, PA. A summary of this in-person public meeting is as follows: Opening statements were presented by Tammy R. Beckham, Director, Office of Infectious Disease and HIV/AIDS Policy (OIDP), […]
In February 2020, the Lyme Disease Association, Inc. (LDA) asked you to contact your Congress Member and request that he/she sign on to two important letters from the US House Lyme Disease Caucus. The language in the bipartisan letters was developed with input from the LDA and other TBD advocates. Below are links to the […]
The FY20 Tick-Borne Disease Research Program (TBDRP) Program Announcements managed by the Department of Defense (DOD) office of Congressionally Directed Medical Research Programs (CDMRP) are now posted to the grants.gov (search grants by CFDA Number 12.420) and on the CDMRP website. FY20 funding opportunities include the following: · Career Development Award · Idea Development Award […]
Rep. Chris Smith Rep. Collin Peterson ISSUE At this time the Lyme Disease Association, Inc. is asking you to contact your Congress Member to ask him/her to sign on to 2 important letters from the US House Lyme Disease Caucus. These bipartisan letters provide details that the Lyme Caucus is asking the 2 Appropriations Committees […]