Newsletter Archives - Lyme Disease Association

Newsletter

List of LDA Newsletters

Promising Dapsone Research/WG Meeting: Access to Care Under Attack/CDC Announces Nat’l Framework/Researchers ID Bat Tick in NJ/NIH Grants $1.9M for Lyme Vaccine/Lyme & Pregnancy Study/Oct 27 Next TBDWG Mtg

October 1, 2020

Dr. Richard Horowitz et al. just published a new in vitro study on dapsone (diaminodiphenyl sulfone) and dapsone combination therapy (DDS CT). The study is suggestive that dapsone combination therapy may well characterize both a novel and successful option to treat Borrelia burgdorferi “persister” cells, which are the biofilm form of the bacteria.

Speak up on Chronic Lyme in WG/Lyme in Insurance Plan/New Repellent Ingredient/Tick Virus Outbreak in China/LDA-Approved Nat’l. Charity/Increased $$-Lyme Amendment/TBD in Fleas/NIH Awards Vaccine $$/Lyme-Dementia

September 1, 2020

The upcoming meeting of the HHS Working Group may be your last chance to influence language on persistent/chronic Lyme. At the last meeting, several members of the Working Group (WG) worked hard to have language related to patients with persistent Lyme symptoms removed from the WG report which will go to Congress at end of year.

Co-Chair: “Persistent Lyme Religious Belief”/Lyme $$$ Amendments/ Tick Biowarfare Investigation Passes House/WNBA Denies Lyme-Covid Exemption/LDA’s New Spanish LymeR Primer/Lyme Vaccine Phase 2 Results/Asian Longhorned Tick Increases

August 1, 2020

Longhorned Ticks. Photo by James Occi, (PhD cand.) LDA Scientific & Professional Advisory Board

Persistent Infection a Religious Belief? Working Group Co-Chair Says – YES! At the meeting itself, Working Group Co-Chair, Dr. David Walker, and Member Eugene Shapiro made and seconded many motions to remove material from the proposed draft report including the two sets of guidelines, shared decision making, access to care, Lyme treatment trials, and cost of Lyme disease.

Working Group to Discuss Lyme Patient Issues/Goodbye Dr. Spector/Claims Show 94% Lyme/Lyme & AFib/Rickettsia in NJ Ticks

July 1, 2020

Lyme cases vs. all other tick borne diseases

LDA Campaign: Patient Access to Care. Our government denies persistent (chronic) Lyme and refuses to acknowledge and help those patients. LDA requested the public submit comments about the existence and importance of persistent (chronic) Lyme. How it affects their life, family, job, school, and doctors. We are pleased to report this campaign was successful and thanks to the many who took action and responded.

Aucott Makes Case for Chronic Lyme/2 Pandemics: Lyme & Covid-19/PA Radio: LDA Discusses Lyme & TBD/New Lyme Vaccine/Study on Deer Tick Questing/Contentious WG Meeting/Maloney: Reducing Lyme Burden

June 1, 2020

John Aucott, Director, Johns Hopkins Lyme Disease Research Center & Assoc. Prof. of Medicine, Johns Hopkins Univ., published a piece in The Conversation providing his insight on the controversial topic of chronic Lyme disease. In the article, Aucott outlines the existence of a population of patients – an estimated 10-20% – with persistent, lingering symptoms months to years after treatment.

Lyme Awareness/Secrets of Lyme/LDA 30 Yrs/Working Group/Lyme & COVID-19 Study/ILADS Database

May 1, 2020

May is Lyme Disease Awareness Month, a time to remind ourselves that Lyme is a disease that has been neglected, minimized, and ridiculed over decades and still continues to be. We all need to redouble our efforts to get an accurate test and to get patients properly treated, and treated with dignity.

Conference/WG Meeting Clips/Neuropsychiatric Lyme/COVID-19/House Lyme Caucus/Monies for Researchers/WG Meeting Summary/Tickmojis

April 29, 2020

Important Announcement: The Lyme Disease Association (LDA) and Columbia University have jointly announced our thoughtful but reluctant decision to postpone our annual fall 2020 CME Lyme & Other Tick-Borne Diseases Conference due to the worldwide COVID-19 (SARS-CoV-2) health emergency . The safety and well-being of everyone are our primary concerns, and we hope everyone remains safe.

President at COVID-19 Event: Lyme is Serious!

April 29, 2020

President Trump hosted Michigan state Rep. Karen Whitsett — who credits his promotion of a malaria drug, hydroxychloroquine, with her recovery from coronavirus — and other COVID-19 survivors at the White House.

Need Congress Members to Sign/Columbia Study Participants/Maternal-Fetal Transmission/Alpha-Gal/Pres. TBD Budget/Longhorned Tick Infecting Cattle

February 28, 2020

The Lyme Disease Association, Inc. is asking you to contact your Congress Member to ask him/her to sign on to two important letters from the US House Lyme Disease Caucus. These bipartisan letters provide details regarding what the Lyme Caucus is asking the two Appropriations Committees to include in their reports on FY 2021 Appropriations. The language in these letters will help provide direction for the monies to be allocated and was developed with input from Lyme/TBD advocates.

Important! Fox Lyme Special Award Finalist, Vote it to the Top Now!

January 23, 2020

“Lyme & Reason: Battles & Breakthroughs Against Lyme Disease” has been nominated as a finalist for the 2020 Sharecare Awards , in partnership with the National Academy of Television Arts & Sciences, New York Chapter, renowned for the Emmy Awards. This is a great opportunity for the Lyme community to raise awareness about Lyme and other tick-borne diseases.