Newsletter Archives - Lyme Disease Association

Kid’s Bill Intro’d to Congress/CDC Webinar/Guest Blogs/Autopsy to Detect Borrelia/Tick-Eating Robot/Lyme & Pregnancy/Nanobodies Block TB Infection/mRNA Vax in AIIRD Patients/Govt. Wants Your Input/Lyme Pathogenesis/Judge Orders Ivermectin/Babesia

May 31, 2021

Today, during May Lyme Disease Awareness Month, Congressman Christopher Smith (NJ-4-R) introduced a bill which could change the way our children with Lyme disease have been treated for decades. Co-sponsors are new Lyme Caucus Co-Chair, Rep. Henry Cuellar (TX-28-D), Lyme Caucus Member Rep. Bill Posey (FL-8-R), Rep. Josh Gottheimer (NJ-5-D), and Rep. Brian Fitzpatrick (PA-1-R). The bill, “Children Inflicted by Lyme Disabilities Act 2021,” or “CHILD Act 2021” will amend the Individuals with Disabilities Education Act (IDEA) by adding “including Lyme disease and other tick-borne diseases” in the Individuals with Disabilities Education Act (IDEA) after “other health impairments.”

HELP NEEDED IMMEDIATELY! NEW BILL FOR CHILDREN WITH LYME DISABILITIES TO BE INTRODUCED

May 26, 2021

We need your help immediately. We have a two-day window to act to help get Co-Sponsors on an important bill. Congressional Lyme Caucus Co-Chair, Christopher Smith, is introducing the “Children Inflicted by Lyme Disabilities Act 2021,” or “CHILD Act 2021,” this week into the US House of Representatives. The bill is “To amend the Individuals with Disabilities Education Act (IDEA) to recognize more clearly that Lyme disease can cause disabilities that affect the education of children and to enhance educational services and related services for children with Lyme disease and other tick-borne diseases and for other purposes.”

Burrascano Blog/COVID Testing: Dogs/Ticks at Beach/RI Patients/COVID Treatment/New Lyme Test/4-Poster & Ticks/Babesiosis/Multiplex & COVID/Periodontitis & COVID/MO Study/UMaine Citizen Scientists/COVID Pill/May Lyme Awareness/Guest Blogs

April 30, 2021

Joseph J. Burrascano Jr. MD is a physician who was an early innovator in the field of tick-borne diseases, having begun his clinical research in the mid-1980s in cooperation with several other key pioneers. In addition, he is well known for his educational presentations and for his monographs on diagnostic and treatment guidelines for Lyme and related tick-borne illnesses – a classic series that has been freely circulated around the world since 1989.

Lyme Treatment Ctr!/Aspirin & COVID/Lyme & Long-Haul COVID/TB Encephalitis/Babesia Botanicals/Lyme Vax Study/Ivermectin/COVID Treatment Trial/Babesiosis/COVID & Pregnancy/Maternal-Fetal Lyme Trans/DoD Research $/Lyme in Horses/LDA & US Biologic

March 31, 2021

A new center at Columbia University will open this summer to patients. The Cohen Center for Health & Recovery from Tick-Borne Diseases has been established through a $16M grant from the Steven & Alexandra Cohen Foundation to Columbia. Brian Fallon, MD, will be Center Director, Shannon Delaney, MD, Co-Director.

Lyme Test/Lyme Neuropathologies/Military: Lyme Myths/Tick Bite/CDC: COVID Vaccine/Hopkins: IDSA, Lyme-COVID/FDA Clears PhageBank/HHS WG ’20 Report/Lyme Boundaries/Longhorned Tick Spread/J&J Vaccine/Babesiosis Increase

February 27, 2021

Science laboratory research and development concept. microscope with test tubes

As part of the LymeX public-private partnership between Health & Human Services (HHS) and the Cohen Foundation, HHS has published an RFI in the Federal Register, 2.11.21 that seeks information on the current state of the science and technology to accelerate “innovative solutions” for Lyme disease diagnosis.

Bartonella & Neuropsych/Ticks & Lyme by Co./476,000 Lyme Diagnoses/Pike Co. Tick Results Video/LDA 2020 Success/NIH Ivermectin Rec/Judge Orders Ivermectin/Lyme Bacteria in New Tick

January 31, 2021

Results of the study, “Bartonella Associated Cutaneous Lesions (BACL) in People with Neuropsychiatric Symptoms” was recently published in the journal, Pathogens, as part of the special issue, “The Evolving Biomedical Importance of Bartonella Species Infections” / A new summary article by employees of the CDC presents the first county-level map of the distribution of Lyme disease spirochetes in host-seeking Ixodes pacificus and Ixodes scapularis ticks between 2004-2019 in the contiguous United States. / and more…

Help Us Help You – Last Chance to Donate in 2020

December 31, 2020

Pat Smith’s Letter on How LDA’s Work Has Helped Lyme Patients. Dear Lyme Community & Those Concerned about Lyme and TBD, This year has been a challenge for all of us, and in particular, for those with chronic conditions such as Lyme disease, which is still unrecognized by the federal government. The Lyme Disease Association, Inc. (LDA) has been working for Lyme and tick-borne diseases (TBD) for 30 years, with individuals who are patients and family members of patients driving the programs…

Success in 2020/IDSA Guidelines/Pat Smith Last WG Remarks/Disulfiram/Attempt to Save a Lyme/COVID Patient/Lyme Pathogenesis/COVID

December 28, 2020

Success in 2020: Help LDA Work for You in the New Year! The Lyme Disease Association, Inc. (LDA) has been working for Lyme and tick-borne diseases (TBD) for 30 years, with individuals who are patients and family members of patients driving the programs. ~97% of our funds generally go directly to programs. Guidestar.org designates LDA as a charity at its highest level committed to transparency, Platinum. For 15 years, LDA has been designated as a national charity included in the Combined Federal Campaign (CFC) lists for federal employees workplace giving.

New IDSA Guidelines/Failure to Commandeer Patient Chapter/#GivingTues/New Test for Lyme/CO Ticks/Updated COVID Protocol/Canine-Human Lyme Data/Next WG Meeting/LDA Thanks 51 Groups/DoD: Funds Lyme Vaccine

December 1, 2020

The Infectious Diseases Society of America (IDSA), American Academy of Neurology (AAN), and American College of Rheumatology (ACR) announced on November 30, 2020, new guidelines for prevention, diagnosis, and treatment of Lyme disease. Among the treatment recommendations, the guidelines recommend oral antibiotic therapy for most patients with Lyme disease.

Working Group Fight Continues/Horowitz Treatment Study/PA Tick Infection Rates/MyLymeData/COVID-19 & TBD/LymeX

November 1, 2020

Elizabeth Maloney, MD, Capt. Scott Cooper, PA, Pat Smith, LDA at 1.29.20 WG meeting

Pat Smith in WG meeting on geographic boundaries preventing Lyme diagnosis: “I lived in the world of patients for 36 years, and I can tell you that they are not getting treated in those states because the government and other entities are telling them there is no disease. They are consistently not being diagnosed and treated, and you think this because there is a positive test they will get treated? No way. That doesn’t happen …