The development of a national strategy on vector-borne diseases including tick-borne diseases was mandated by Congress. To inform development of the national strategy to address vector-borne diseases, HHS is issuing this Request for Information (RFI).
This section contains information from the three branches of the federal government: Executive, Legislative, and Judicial. The Lyme Disease Association, Inc. (LDA) has been instrumental for decades in playing a leadership roll in shaping government actions and public policy concerning Lyme and tick-borne diseases.
There are a number of federal laws that protect individuals with disabilities including the ADA, ADAAA, and the IDEA, the latter which ensures children with disabilities get a free public education based on needs. Section 504 of the IDEA is probably the most known portion of the law. Americans with Disability Act (ADA) The Americans […]
In my administrative role in the Jackson Township schools, I was responsible for everything in the school district concerning students and then some. I was in charge of special education, student attendance, guidance, and health services among other areas. I had a unique view of the overall functioning of both regular education, and special education, as well as the various points at which they met. Little did I know when I first came to Jackson Township that it was the tick capitol of New Jersey. We literally had hundreds of students with various stages of Lyme Disease on any given day.
New study summarizes human surveillance data from 2011-2018 in the United States for Babesia infections reported to the Centers for Disease Control and Prevention (CDC) through the National Notifiable Diseases Surveillance System (NNDSS). Data shows an increasing trend of reported Babesia cases (14,159 total) during this time period, with white men in the middle and […]
The Congressional Lyme Disease Caucus is a bi-partisan group working together in the U.S. House of Representatives to take action on Lyme & tick-borne diseases. Under the continued leadership of Congressmen Chris Smith (NJ) and now with the new 2021 co-chair, Henry Cuellar (TX), the Caucus will help the Lyme Community by focusing on Lyme […]
Congress recently increased annual funding for research on Lyme and related tickborne diseases at NIH by $29 million to a total of $63 million. Most of this is discretionary, although $10 million of it is mandatory for research specific to Lyme disease. In addition to this historic increase, there are opportunities for funding and research support for studies on maternal-fetal transmission of Lyme disease and the impact of pregnancy on immune response. To stimulate researcher interest, NIH has issued a series of notices to encourage investigators to apply for grants and has asked stakeholder organizations for help getting the word out.
The FY21 Tick-Borne Disease Research Program (TBDRP) Program Announcements managed by the Department of Defense (DOD) office of Congressionally Directed Medical Research Programs (CDMRP) are now posted to the grants.gov (search grants by CFDA Number 12.420) and on the CDMRP website.
Pfizer has received priority review for their vaccine, TicoVac, that protects against tick-borne encephalitis. This tick-borne virus can cause meningitis and trigger long-term neurological symptoms. If approved, the vaccine would potentially protect travelers as well as members of the US military that are deployed to regions where the virus is common, such as Europe and parts of Asia.
Health and Human Services Department (HHS) Chief Data Scientist and Senior Advisor to the Assistant Secretary for Health, Kristen Honey, recently gave an interview on HHS’s Lyme Innovation initiative with Nextgov.
As part of the LymeX public-private partnership between Health & Human Services (HHS) and the Cohen Foundation, HHS has published an RFI in the Federal Register, 2.11.21 that seeks information on the current state of the science and technology to accelerate “innovative solutions” for Lyme disease diagnosis. The RFI contains a series of questions it […]