The United States Air Force Academy (Roughton, R. and Troth, J.) 12.06.2023, published “Team wins gold for iGEM research in Paris.” The U.S. Air Force Academy’s iGEM team recently secured a gold medal at the Genetic Engineering Machine Grand Jamboree, marking their second win in four years. This global competition challenges high school and university students to merge biology with engineering, fostering innovation in synthetic biology.
This section contains information from the three branches of the federal government: Executive, Legislative, and Judicial. The Lyme Disease Association, Inc. (LDA) has been instrumental for decades in playing a leadership roll in shaping government actions and public policy concerning Lyme and tick-borne diseases.
The Journal of Allergy and Clinical Immunology: In Practice (Ailsworth SM., et al.) 10.31.2023, published “Alpha-gal IgE Prevalence Patterns in the United States: An Investigation of 3000 Military Recruits”. This article investigates Alpha-gal syndrome (AGS), an allergy to mammalian meat, particularly associated with bites from lone star ticks (Amblyomma americanum).
The New England Journal of Medicine (Singhal, U., et al.) 11.04.2023, published a perspective article, “Modernizing Federal Oversight of Laboratory-Developed Tests — Toward Safety, Validity, and Utility.” In this article authors describe the current Federal oversight processes of Laboratory-developed tests (LDTs) and how it has evolved over time. They describe the potential harms that unregulated LDTs may have on patients as well as the potential obstacles that laboratories may face with innovation if regulations are too restrictive.
There are two new reports published by the CDC’s journal Morbidity and Mortality Weekly Report (MMWR) on alpha-gal syndrome (AGS), also known as the red meat allergy. AGS is an emerging tick bite associated allergic condition to most mammalian meat. These reports highlight that “AGS is of increasing concern for public health, but many healthcare providers (HCPs) are unaware of the condition and how to diagnose or manage it.”
The Morbidity and Mortality Weekly Report (Thompson, J. M., et al.) 07.28.2023, published the first report “Geographic Distribution of Suspected Alpha-gal Syndrome Cases — United States, January 2017-December 2022.” This report aims to make public health agencies and healthcare providers aware of AGS case hotspots in the United States in order to recognize the impact AGS is having in the country. Most cases were reported in the southern, midwestern, and mid-Atlantic United States.
The Morbidity and Mortality Weekly Report (Carpenter, A., et al.) 07.28.2023, published the second report “Health Care Provider Knowledge Regarding Alpha-gal Syndrome — United States, March–May 2022.” This report is the first national survey to assess healthcare provider’s knowledge of AGS. Approximately 42% of the United State’s Healthcare providers had never heard of AGS, with only 29% of providers who knew of the condition knowledgeable to diagnosis it. The report highlights the need for further awareness and education of AGS to help improve patient care in the United States.
The CDC, in collaboration with Medscape, is providing a free CME/CE training so learners are better able to self-assess gaps in their knowledge regarding the diagnosis and management of patients with AGS. Providers can access the training below.
The National Institutes of Health (NIH) announced in a press release on 7.21.23 that they have awarded approximately $3.2 million dollars in funding for this first year of research focused […]
Announcing an online workshop co-sponsored by Health and Human Services (HHS) Office of the Assistant Secretary for Health (OASH) and The Center for Open Data Enterprise (CODE} on June 28, 2023, 2-4pm ET. The free workshop will first share HHS updates and recent progress on Lyme and tick-borne diseases. This will be followed by interactive workshops with diverse partners who will connect to advance the field. Lyme Innovation is an HHS patient-centered approach to Lyme and tick-borne diseases.
An article regarding recent study on effectiveness of permethrin-treated uniforms against ticks was conducted at Department of Defense (DOD) Military Tick Identification/Infection Confirmation Kit Program (MilTICK program) was published by […]
The Department of Defense Congressionally Directed Medical Research Program (CDMRP) wishes to notify the research community of recently released Fiscal Year 2023 (FY23) funding opportunities for the Department of Defense (DOD) […]
Lyme Disease Association Inc (LDA) Board of Directors Member Jeannine Phillips attended the first virtual meeting of ICUE, the CDC Foundation’s new infectious disease-based initiative, February 8, 2023, which includes Lyme disease. About 40 patient advocacy and community-based organizations from different health conditions were represented in the initial endeavor. Meeting report from Jeannine (picture) follows.
The Lyme Disease Association Inc. wrote to the CDC in response to an article published in Pediatric Infectious Disease , Dec. 23, 2004, James Cooper, Henry Feder, titled “Inaccurate Information […]