The House Lyme Caucus members sent this letter to the House Appropriations Committee for inclusion in the 2020 Labor HHS Appropriations.
This section contains information from the three branches of the federal government: Executive, Legislative, and Judicial. The Lyme Disease Association, Inc. (LDA) has been instrumental for decades in playing a leadership roll in shaping government actions and public policy concerning Lyme and tick-borne diseases.
May Awareness LDA Guest Blogger Congressman Christopher H. Smith (NJ-04): “A Message from Congressman Chris Smith”…. As the co-chair of the bipartisan House Lyme Disease Caucus, I am deeply grateful and inspired by the Lyme Disease Association, other NGOs, family caregivers, Lyme literate docs, and—above all—the patients who continue to press our government to invest more in research for a cure, the prevention and best treatment options for those with Lyme. […]
Lorraine Johnson, JD, MBA, Chief Executive Officer of LymeDisease.org delves into the importance of meaningful patient representation on the Federal HHS Tick-Borne Disease Working Group (TBDWG) in her latest blog. This is especially important as we await the announcement of panelists to the new TBDWG charged with the next report to Congress due in 2020. […]
Since 2016, the Congressionally Directed Medical Research Programs (CDMRP) Tick-Borne Disease Research Program (TBDRP) has received a $5 million Congressional appropriation each year to allocate to awardees focused on Lyme disease research or research on other tick-borne disease (TBDs). Awards address at least one of four TBDRP focus areas which include diagnosis, treatment, prevention, and […]
The list of Fiscal Year 2018 Tick-Borne Disease Research Program Career Development Award applications recommended for funding is for informational purposes only. Identification on the list of applications recommended for funding is not intended to either confer a right to funding nor does it guarantee funding. The award of federal funds to support any of […]
On November 20, 2018, the HHS Office of the Chief Technology Officer, CTO, announced a Lyme Innovation initiative which aims to accelerate innovation in the prevention, diagnosis and treatment of tick-borne diseases through the development of next-gen technologies, interdisciplinary collaborations, and data-driven innovations for tick-borne diseases. LDA President Pat Smith was invited participant by HHS […]
The FY19 Tick-Borne Disease Research Program (TBDRP) Program Announcements managed by the Department of Defense (DOD) office of Congressionally Directed Medical Research Programs (CDMRP) are now posted to grants.gov and on the CDMRP website here. FY19 funding opportunities available for the Tick-Borne Disease Research Program (TBDRP) include: · Career Development Award · Idea Award · […]
March 27, 2019 House Appropriations Committee Labor, Health and Human Services, Education Member Day Hearing 1:00:30 to 1:02:20 (Lyme & TBD Discussion) Congressman Smith (NJ) testifies about working with Pat Smith and the Lyme community since 1992, pushing for an advisory committee since 1998, how language finally got put into 21st century cures act and the […]
The National Institutes of Health put out a request for information in February 2019 for stakeholders to submit specific comments that were to be submitted through an online form. The NIH is developing a strategic plan to advance tick-borne disease (TBD) research and development over the next five years and beyond. The Lyme Disease Association, Inc. […]
The May 10, May 15-16, and June 21, 2018 meeting summaries of the HHS Tick-Borne Disease Working Group are now available. Click on the following links and then click on “Meeting Summary.” June 21, 2018, TBDWG Meeting (on-line) May 15-16, 2018, TBDWG Meeting (in-person) May 10, 2018, TBDWG Meeting (on-line) The May 10, […]