When the Lyme Disease Association Inc. (LDA) was contacted by a student at Duke Law who wanted to organize a group of students in a Lyme disease pro bono project, I was very excited about the possibilities…Lyme is not just a disease but a political nightmare… this was an opportunity to have some of the brightest and most motivated of our youth tackle this epidemic….The findings from this group of law students can be disseminated and used to empower patients, families, physicians, politicians, and researchers to unravel the secrets surrounding Lyme and provide solutions for Lyme and other tick-borne diseases across the globe.
President of the Lyme Disease Association, Inc. graduated from Monmouth University. She has been involved with Lyme disease issues for 39 + years and is a member of the Columbia Lyme & Tick-Borne Diseases Research Center Advisory Committee and member of the Environmental Protection Agency Pesticide Environmental Stewardship Program. She served 4 years as a Member of the HHS Lyme & Tick-Borne Disease Working Group and 4 years on the Congressionally Directed Medical Research Programmatic Panel on Tick-Borne Diseases. She has twice testified before US House Subcommittees on Lyme and is former Chair of the NJ Governor’s Lyme Disease Advisory Council. She has published on and been interviewed for broadcast, electronic and print media on Lyme and tick-borne diseases. (full bio)
From LDA President Pat Smith’s Blog: Sometimes we are blessed to have great men walk the earth-men and women who devote their lives to helping others without thought for themselves. Such a man was Dr. Charles Ray Jones, healer. He was honest, kind, courageous and had integrity, compassion, and humility. His devotion to helping our children all over the country is unparalleled. I knew him for decades yet never heard a complaint from him despite the many trials he faced in his life just trying to save the lives of our children.
LDA President’s Blog –
Lyme Disease Association Mourns Loss of Dr. Nick Harris, Lyme Testing Pioneer
From LDA President Pat Smith’s Blog: One of the greatest champions for Lyme and tick-borne disease patients is gone. A man of great talents and sterling character—a man with a presence. Dr. Nick Harris, founder of IGeneX Labs and an early developer of Lyme tests which undoubtedly saved the lives of hundreds of thousands of patients across the world with Lyme & tick-borne diseases. He not only gave patients hope but gave them tangible solutions for their diagnostic dilemmas.
From LDA President Pat Smith’s Blog: The Subcommittee on Africa, Global Health, & Human Rights held a hearing 2pm, on Tuesday, July 17, 2012 in 2172 Rayburn HOB in Washington, DC, Global Challenges in Diagnosing and Managing Lyme Disease – Closing Knowledge Gaps. US Rep. Christopher H. Smith (NJ) chaired the hearing. The hearing was webcast and available live via the Committee website.
LDA President’s Blog – Why Patients Need Government Investigation into Lyme’s Origins & Any Biowarfare Experiments
From LDA President Pat Smith’s Blog: HISTORY-Forty-six years after a mother alerted public health about an unknown disease affecting her Connecticut neighborhood, patients still await answers about Lyme disease and help from the federal government− little has been forthcoming. It’s been 37 years since I first saw Lyme as a board of education member and 29 years since I first contacted…
From LDA President Pat Smith’s Blog: When the CDC announced a webinar offering continuing education for health care providers for Lyme Awareness Month, some thought it would provide much needed education for doctors about the reality of Lyme disease for patients and what the CDC could do to actually help. Many thought CDC would seek patient input for this program. So what really happened on the webinar?
From LDA President Pat Smith’s Blog: What has happened to one of the best Women’s National Basketball Association (WNBA) players is no surprise to the Lyme Disease Association or hundreds of thousands of chronic Lyme patients like Elena Delle Donne, of the Mystics, who has battled Lyme disease for years. She has been denied by the WNBA league’s panel of physicians as having a health exemption due to being at high risk for COVID 19, thus unable to be paid for exemption status if she does not play the upcoming season.
From LDA President Pat Smith’s Blog: It is with great sadness that we in the Lyme community say goodbye to someone whose life was dedicated to helping others through his work as an oncologist and a researcher, Dr. Neil Spector. Dr. Spector devoted his life to saving the lives of others, first through his work on therapies for cancer patients and from his personal experience with Lyme disease.
From LDA President Pat Smith’s Blog: May is Lyme Disease Awareness Month, a time to remind ourselves that Lyme is a disease that has been neglected, minimized, and ridiculed over decades and still continues to be. We all need to redouble our efforts to get an accurate test and to get patients properly treated and treated with dignity. The continued arbitrary…
From LDA President Pat Smith’s Blog: I am sad to hear about the passing of Polly Murray, an artist, and a Mom, who was responsible for realizing something was wrong when she and her family, and many children in her neighborhood, suffered from similar symptoms. Polly’s family and neighbors were either unable to be diagnosed by mainstream medicine or were diagnosed…