Patricia V. Smith, BA
Patricia V. Smith, a Monmouth University graduate, is in her 23rd year as President of the all-volunteer run national non-profit Lyme Disease Association (LDA) and is a 2nd term public member of the HHS Tick-Borne Disease Working Group in Washington, DC, where she co-chairs the “Training & Education, Patient Access to Care” Subcommittee and is a member of the Inventory Subcommittee. She is a member of Columbia University’s Lyme & Tick-Borne Diseases Research Center Advisory Committee, member of the Food & Drug Administration’s (FDA) PESP Partnership to promote avoidance of tick exposure. She was appointed in 2016 as a member of the US Army Medical Research and Materiel Command (USAMRMC) Tick-Borne Disease Research Program (TBDRP) as a member of the Congressionally Directed Medical Research Program Programmatic Panel where she served 4 years. She has twice testified before Congressional committees in Washington on Lyme disease.
Ms. Smith is also former Chair, (NJ) Governor’s Lyme Disease Advisory Council. She was EPA’s PESP 2011 Lyme prevention conference session co-chair with CDC. In 2011 she presented a Lyme session to the New Jersey Education Association’s Annual Meeting. She is a member & former officer of ILADS, International Lyme & Associated Diseases Society, a professional medical and research organization. She was a member of the on-line journal Contagion Infectious Disease Today Chronic Lyme Expert Panel on video.
Ms. Smith is former President/12-year member of the Wall NJ Board of Education where she earned state board member-certified status. She is a former officer of Monmouth County School Boards Assn. and was a member of the Federal Relations Network for New Jersey School Boards Association/National School Boards Assn.
During her LDA presidency, Ms. Smith has led the effort to raise funds for researchers nationally, with 119 research grants awarded ─ research acknowledged in 53 scientific journals. She has organized 20 continuing medical education (CME) accredited Lyme scientific conferences for doctors and researchers with international faculty, held in different areas of the US, most jointly sponsored by Columbia University, the 20th in Philadelphia in September 2019. She has spoken at many conferences on Lyme including those presented by the University of New Haven (CT), the California Lyme Disease Association (now LymeDisease.org), Midcoast Maine Lyme Education and Support, Colorado Tick-Borne Awareness Association, Lyme Connections, Lyme Society, Inc., and International Lyme & Associated Diseases Society, ILADS. She has been a speaker at hundreds of public, school, business, & government events.
Ms. Smith led the LDA in its effort with a partner organization, to endow the Columbia Lyme & Tick-Borne Diseases Research Center in New York, which opened in 2007. She developed the ABCs of Lyme Disease pamphlet for parents and educators (updated in 2019) and co-authored an article in it, and she also developed the LymeR Primer brochure now featuring 20 tick-borne diseases, the Tick Mark bookmark, and helped design LDA Tick Awareness cards. More than 2.5 million education items have been distributed.
Ms. Smith has testified for and secured passage of state and federal bills for Lyme research and physician’s right to treat. She has been invited to state capitals in CT, MA, MD, MN, NH, NJ, NY, PA, RI, to present oral testimony and education on Lyme and has provided written testimony in many others. Based on her written testimony, LDA was included in ground breaking Maine legislation as a website resource on Lyme disease on Maine’s DPH website. She was invited to testify on two occasions before the NY Assembly Health Care Committee and also before the Rhode Island (Governor’s) Lyme Disease Advisory Commission and has spoken before the California Lyme Disease Advisory Council. Over time, she has personally met with many State Health Commissioners and with Governors in NH, RI CT on Lyme issues and with then Governor Pataki’s office on many occasions along with several NY state legislators. She has also presented before the Pennsylvania House of Representatives Majority Policy Committee and was an invited speaker for Lyme forums hosted by a member of the Massachusetts House of Representatives and the Majority Caucus Administrator for the Pennsylvania House of Representatives and the Minnesota State Senate Health Committee.
She has twice been invited to present to CDC Vector-Borne Diseases Division, Ft. Collins (2007, 2013); met with then CDC Director Dr. Julie Gerberding/5 Congressmen in DC; organized & led a team that met with HHS Asst. Sec. of Health with CDC/NIH officials teleconferenced in; met with military leaders in DC; and briefed the Senate HELP Committee Members and House Subcommittee on Health. She met several times with US Army CHPPM/Public Health Command at Aberdeen Proving Grounds. She met in DC with the NIH Program Director and research coordinator and presented educational PowerPoints on Lyme to employees at the Environmental Protection Agency (2008, 2014), to the Dept. of Energy, and to Homeland Security in 2014. In 2014, she helped develop language for a federal bill on Lyme and led the nationwide effort which successfully passed the bill through the House. Ms. Smith spoke at a number of press conferences with Senator Charles (Chuck) Schumer (NY)–now Senate Minority Leader–including one in 2014 on the doxycycline shortage for Lyme patients. In 2012, she testified before the House Foreign Affairs Committee, Africa, Global Health & Human Rights Subcommittee on issues affecting Lyme patients. In 2013, she testified before the House Energy & Commerce Health Subcommittee on HR 610 to establish a federal Lyme & Tick-Borne Diseases Advisory Committee. She co-authored an article which was read into the Congressional Record on Lyme disease research priorities from the patient perspective. In 2015, she spoke at the American Association for the Advancement of Science in DC on patient research priorities. In 2016, she spoke before the Women in Government’s annual conference. In 2016, she led the negotiations with House leadership for the Lyme language subsequently passed in the 21st Century Cures Act which creates a federal working group on tick-borne diseases with patient and advocates reps at the same table as government officials.
Chosen Jackson NJ’s Chamber of Commerce 2008 Woman of the Year, she has also received commendation from the NJ legislature, a Special Congressional Recognition certificate from RI Cong. Langevin, and had a flag flown over the US Capitol by request of NJ Cong. Chris Smith in honor of her Lyme work. Ms. Smith helped to organize and presented at educational forums held by 3 congressmen (Langevin, Pitts, C. Smith). She has received awards from Dr. Brian Fallon, Columbia, from various Lyme groups, and was given the Courage in Advocacy Award in 2015 from Connecticut based Lyme Connection and Focus on Lyme Excellence in Advocacy (AZ) award in 2017.
Other activities include providing input into a NJ law requiring teacher education for staff who teach students with Lyme disease, performing school in-services for educators on Lyme disease, and working with parents of students who are classified due to Lyme disease. Working with author Amy Tan, she created LDA’s LymeAid 4 Kids, a fund for children with no health coverage for Lyme, a fund that has awarded $383,000 for uninsured children to date. Click for Publications
Richard H. Smith, BA
Executive Vice President, Treasurer
Richard has a BA from Rutgers University. After being honorably discharged from the US Army (Army Security Agency), he worked for New Jersey American Water Company for 38 years. He also served as the president of the local utility union for several years. He is past president of his local homeowners association and has served on the LDA Board of Directors for 7 years.
Corey Lakin, AB
2nd Vice President, Technical Support, LDA
Corey Lakin, graduated from the University of Chicago with an AB in Geophysical Science. He was a scientist with the New Jersey State Department of Environmental Protection (Ret.). Corey has been an LDA Board of Directors member for 20 years and currently serves as LDA’s second vice president for technology. He is responsible for the audio visual portion of the LDA’s scientific conferences.
Ruth Waddington, RN
Corresponding Secretary, LDA
Ruth graduated from Ocean County College with an associates in applied science degree, AAS, and passed the Nursing Boards to become an RN. She is currently employed as a nurse in a large OB/GYN group practice. She was formerly office manager & nurse for an internal medicine/geriatric medical office 31 years until the practice closed. She was also a nurse in a pediatric office and worked at Monmouth Medical Center in Long Branch, New Jersey, in labor & delivery and in post op surgery and neurosurgery. She is currently employed at a Family Medicine practice. Ruth has been an LDA Board of Directors members for 18 years and has served as its Corresponding Secretary for that time.
Jeannine Phillips, BA
Jeannine completed her BA in chemistry and has post graduate work in chemistry, physics, marine and environmental sciences. She has been awarded numerous grants for environmental and water studies. Her career has spanned organic chemistry custom syntheses, analytical chemistry such as pollution, food, water quality and pharmaceutical analyses, as well as trace metal analysis of Atlantic fish stock. Jeannine has performed process validation studies and research for the pharmaceutical industry. Volunteer service includes former vice chair of local environmental commission and officer of local watershed association. Currently, she chairs LymeQuest Support Group & Advocacy Project. She has been a LDA Board of Directors member Board member for 17 years and currently serves as Recording Secretary. She has received the Woman of Distinction Award, (Mayor and Town Council, 2003) and Outstanding Citizen Volunteer (Mayor and Town Council Award, 2011).
Member, LDA Board of Directors
Tim received an MBA degree from George Washington University in Washington, DC, and held several analytical positions within the Federal government. At the Department of Labor, Tim was as an Economist in the Bureau of Labor Statistics and a Loss Prevention Analyst/Operational Auditor in the Office of Inspector General. He helped set up an Information Resources Management Review Program in the General Services Administration, working closely with OMB to design the program. Tim wrote a significant portion of the guidance for Federal agencies to follow in establishing and operating an IRM Review Program.
Tim worked for fifteen years in DHHS, first as a team leader in helping to oversee HHS’ operating divisions’ activities relating to information technology, including planning and procurement. Tim was a Supervisory Analyst in FDA’s Office of Legislation, serving as a one-person team as the liaison for the Center for Veterinary Medicine, and later working for the CFSAN-CVM team, handling dietary supplements as well as CVM issues. Tim was the principal liaison to Congress for a number of cross-cutting issues, including antimicrobial resistance and transmissible spongiform encephalopathies. Tim worked closely with CVM in developing animal feed regulations to control the possible spread of BSE, and also was the liaison to Congress in developing and passing animal drug user fee legislation, as well as legislation for Minor Use, Minor Species drug approvals.
After serving a Brookings fellowship on Capitol Hill, Tim returned to the Hill to work as Deputy Chief of Staff and Legislative Director for Congressman Chris Smith (NJ). Congressman Smith did and does chair House caucuses on Alzheimer’s disease, autism, Lyme disease, and numerous international affairs caucuses, as well as chairing the foreign affairs subcommittee with jurisdiction for global health. Tim had the staff lead in successfully moving Congressman Smith’s autism legislation and getting autism placed in the Congressionally Directed Medical Research Program. Tim also helped to develop several bills for Congressman Smith to try to improve the seriously impaired environment for making progress in the ability to manage Lyme and other tick-borne diseases. Since leaving Capitol Hill, he works part-time for the Franciscan Foundation for the Holy Land and helped the Lyme Disease Association. He has served on the LDA Board of Directors for 3 years.