The Lyme Disease Association thanks Congressman Chris Smith and Dr. Richard Horowitz for their valiant efforts to help a chronic Lyme disease patient hospitalized with COVID-19. The following Blog, posted on his Facebook, is reprinted with permission from Dr. Richard Horowitz. The LDA applauds these two courageous individuals trying to buck the system to save a life.
From LDA President Pat Smith’s Blog: What has happened to one of the best Women’s National Basketball Association (WNBA) players is no surprise to the Lyme Disease Association or hundreds of thousands of chronic Lyme patients like Elena Delle Donne, of the Mystics, who has battled Lyme disease for years. She has been denied by the WNBA league’s panel of physicians as having a health exemption due to being at high risk for COVID 19, thus unable to be paid for exemption status if she does not play the upcoming season.
From LDA President Pat Smith’s Blog: It is with great sadness that we in the Lyme community say goodbye to someone whose life was dedicated to helping others through his work as an oncologist and a researcher, Dr. Neil Spector. Dr. Spector devoted his life to saving the lives of others, first through his work on therapies for cancer patients and from his personal experience with Lyme disease.
May is Lyme Disease Awareness Month, a time to remind ourselves that Lyme is a disease that has been neglected, minimized, and ridiculed over decades and still continues to be. We all need to redouble our efforts to get an accurate test and to get patients properly treated and treated with dignity. The continued arbitrary […]
I am sad to hear about the passing of Polly Murray, an artist, and a Mom, who was responsible for realizing something was wrong when she and her family, and many children in her neighborhood, suffered from similar symptoms. Polly’s family and neighbors were either unable to be diagnosed by mainstream medicine or were diagnosed […]
What a tremendous disservice the New York Times has done printing an article in 2019 that carries a message that doctors, supposedly experts in the field, tell parents of children who they diagnose with Lyme “ Great news, it’s Lyme disease, that’s the best thing it could be….It’s baloney that you can’t cure Lyme disease, […]
The last year has seen a flurry of activity in Washington. Here’s the scoop on the bills, briefings, and bipartisan politics.
May Awareness LDA Guest Blogger Brian Dashore: “How My Differing Childhood Experiences Impacted My Educational Life”…. I clearly recall running at baseball practice when my left leg started to drag. I was only 6 years old, and I just kept trying to run. A burning sensation ran up to my pelvis. My coach thought I pulled a muscle and sent me home … After a battery of tests including nuclear full body bone scans and 20 tubes of blood, they put me in a wheelchair […]
May Awareness LDA Guest Blogger Congressman Christopher H. Smith (NJ-04): “A Message from Congressman Chris Smith”…. As the co-chair of the bipartisan House Lyme Disease Caucus, I am deeply grateful and inspired by the Lyme Disease Association, other NGOs, family caregivers, Lyme literate docs, and—above all—the patients who continue to press our government to invest more in research for a cure, the prevention and best treatment options for those with Lyme. […]
May Awareness LDA Guest Blogger, Dr. Richard I. Horowitz, MD, PLLC: “Why Patients with Chronic Lyme-MSIDS Should Have Hope” …. These doctors all wanted to know how to treat their sickest and most resistant patients with chronic Lyme symptoms who were also being adversely affected by environmental illness […]