Senator Susan Collins (R-ME), along with Tina Smith (D-MN), a member of the Senate Health Committee, and Senator Angus King (I-ME) an original cosponsor, introduced a bipartisan effort to improve research, prevention, diagnostics, and treatment for tick-borne diseases. Representative Christopher Smith (R-NJ), with lead co-sponsor Representative Collin Peterson (D-MN) introduced a bipartisan companion bill, the […]
The last year has seen a flurry of activity in Washington. Here’s the scoop on the bills, briefings, and bipartisan politics.
Patricia V. Smith, has been appointed as one of the public members of the new panel for Health and Human Services Tick-Borne Disease Working Group (TBDWG). Pat is in her 22 year as President of the all-volunteer run national non-profit Lyme Disease Association (LDA) and has been a leading voice and advocate for patients for […]
On May 29, 2019, The Lyme & Tick-Borne Diseases Congressional Town Meeting Sponsored by Congressman Christopher H. Smith (NJ-4) was held in the Wall Township, NJ, Municipal Building. Despite tornado warnings, flash flood warnings with torrential rains, a packed house of more than 200 people attended the three and a half hour event. Wall Mayor Kevin […]
The Lyme & Tick-Borne Diseases Congressional Town Meeting will be held Wednesday, May 29, 2019 from 6:45pm-930pm at the Wall Township Municipal Building Community Room, 2700 Allaire Rd, Wall Township, NJ. The town meeting is sponsored by US Congressman Christopher H. Smith. Hear from nationally-recognized Lyme disease experts about current efforts to combat Lyme and Tick-Borne diseases, updates on diagnosis and treatment, and how to protect yourself and your family, and more. LDA president, Pat Smith, will join US Congressman, Christopher H. Smith; CDC, Deputy Director, Division of Vector-Borne Diseases, Ben Beard, PhD; and Richard Horowitz, MD as speakers at the meeting […]
The House Lyme Caucus members sent this letter to the House Appropriations Committee for inclusion in the 2020 Labor HHS Appropriations.
Lorraine Johnson, JD, MBA, Chief Executive Officer of LymeDisease.org delves into the importance of meaningful patient representation on the Federal HHS Tick-Borne Disease Working Group (TBDWG) in her latest blog. This is especially important as we await the announcement of panelists to the new TBDWG charged with the next report to Congress due in 2020. […]
March 27, 2019 House Appropriations Committee Labor, Health and Human Services, Education Member Day Hearing 1:00:30 to 1:02:20 (Lyme & TBD Discussion) Congressman Smith (NJ) testifies about working with Pat Smith and the Lyme community since 1992, pushing for an advisory committee since 1998, how language finally got put into 21st century cures act and the first […]
The May 10, May 15-16, and June 21, 2018 meeting summaries of the HHS Tick-Borne Disease Working Group are now available. Click on the following links and then click on “Meeting Summary.” June 21, 2018, TBDWG Meeting (on-line) May 15-16, 2018, TBDWG Meeting (in-person) May 10, 2018, TBDWG Meeting (on-line) The May 10, […]
The May 10, May 15-16, and June 21, 2018 meeting summaries of the HHS Tick-Borne Disease Working Group are now available. Click on the following links and then click on “Meeting Summary.” June 21, 2018, TBDWG Meeting (on-line) May 15-16, 2018, TBDWG Meeting (in-person) May 10, 2018, TBDWG Meeting (on-line) Click here to view […]