Patricia V. Smith, has been appointed as one of the public members of the new panel for Health and Human Services Tick-Borne Disease Working Group (TBDWG). Pat is in her 22 year as President of the all-volunteer run national non-profit Lyme Disease Association (LDA) and has been a leading voice and advocate for patients for […]
This section contains information on legislation that has been introduced and/or passed by the federal government and individual states. It includes sections that contain the position the Lyme Disease Association has taken on various bills, if any; information on how to contact your legislator; and what you can do to help specific laws be passed or defeated. Additionally, there is a section on various government departments. From time to time, the LDA will post articles from the departments/agencies in these sections that pertain to Lyme disease that might be of interest or importance to the public, including policies being considered or adopted.
It is important for the LDA to take a lead role in forming relationships with all levels of government. Laws and policy decisions often affect how Lyme disease is viewed by the public and physicians, and LDA needs to clearly articulate the problems which are created by government actions or which can be rectified by government actions. Additionally, we need to ensure that the information presented to government officials is accurate and supported by science.
On May 29, 2019, The Lyme & Tick-Borne Diseases Congressional Town Meeting Sponsored by Congressman Christopher H. Smith (NJ-4) was held in the Wall Township, NJ, Municipal Building. Despite tornado warnings, flash flood warnings with torrential rains, a packed house of more than 200 people attended the three and a half hour event. Wall Mayor Kevin […]
The Lyme & Tick-Borne Diseases Congressional Town Meeting will be held Wednesday, May 29, 2019 from 6:45pm-930pm at the Wall Township Municipal Building Community Room, 2700 Allaire Rd, Wall Township, NJ. The town meeting is sponsored by US Congressman Christopher H. Smith. Hear from nationally-recognized Lyme disease experts about current efforts to combat Lyme and Tick-Borne diseases, updates on diagnosis and treatment, and how to protect yourself and your family, and more. LDA president, Pat Smith, will join US Congressman, Christopher H. Smith; CDC, Deputy Director, Division of Vector-Borne Diseases, Ben Beard, PhD; and Richard Horowitz, MD as speakers at the meeting […]
The House Lyme Caucus members sent this letter to the House Appropriations Committee for inclusion in the 2020 Labor HHS Appropriations.
Lorraine Johnson, JD, MBA, Chief Executive Officer of LymeDisease.org delves into the importance of meaningful patient representation on the Federal HHS Tick-Borne Disease Working Group (TBDWG) in her latest blog. This is especially important as we await the announcement of panelists to the new TBDWG charged with the next report to Congress due in 2020. […]
Since 2016, the Congressionally Directed Medical Research Programs (CDMRP) Tick-Borne Disease Research Program (TBDRP) has received a $5 million Congressional appropriation each year to allocate to awardees focused on Lyme disease research or research on other tick-borne disease (TBDs). Awards address at least one of four TBDRP focus areas which include diagnosis, treatment, prevention, and […]
March 27, 2019 House Appropriations Committee Labor, Health and Human Services, Education Member Day Hearing 1:00:30 to 1:02:20 (Lyme & TBD Discussion) Congressman Smith (NJ) testifies about working with Pat Smith and the Lyme community since 1992, pushing for an advisory committee since 1998, how language finally got put into 21st century cures act and the first […]
Delaware Legislature Declares Lyme Awareness Month By passing Delaware House of Rep. Concurrent Resolution #79, the Delaware legislature declared May 2016 as Lyme Disease Awareness month. The legislature sent the resolution to the Lyme Disease Association, a provision included in the resolution, which has posted it here online. Rep. Schwartzkopf and Rep. D. Short are […]
The Lyme Disease Association Inc. (LDA) has been working for 28 years to stop the spread of Lyme and TBD and to find a cure for chronic Lyme disease. LDA has educated multi-state officials from legislators to governors to health departments and continues to work with county and local officials who often are looking for […]
The May 10, May 15-16, and June 21, 2018 meeting summaries of the HHS Tick-Borne Disease Working Group are now available. Click on the following links and then click on “Meeting Summary.” June 21, 2018, TBDWG Meeting (on-line) May 15-16, 2018, TBDWG Meeting (in-person) May 10, 2018, TBDWG Meeting (on-line) The May 10, […]