“one little bite” is a video short that was produced by Monica White, COTBDAA Co-founder/President, in a storytelling workshop hosted by Chaffee County Public Health. This is a story about one person, one family, whose lives were forever changed by the bite of a tick. Though presentation of this story may be unique, the theme […]
This section contains information on legislation that has been introduced and/or passed by the federal government. It includes sections that contain the position the Lyme Disease Association (LDA) has taken on various bills, if any, and information on how to contact your legislator; and what you can do to help specific laws be passed or defeated. Additionally, there is a section on various government departments. From time to time, the LDA will post articles from the departments/agencies in these sections that pertain to Lyme disease that might be of interest or importance to the public, including policies being considered or adopted.
It is important for the LDA to take a lead role in forming relationships with all levels of government. Laws and policy decisions often affect how Lyme disease is viewed by the public and physicians, and LDA needs to clearly articulate the problems which are created by government actions or which can be rectified by government actions. Additionally, we need to ensure that the information presented to government officials is accurate and supported by science.
Our companion animals get Lyme disease too. Here are several PSAs from veterinarians
in Vermont reminding pet owners to be aware of the problems pets face from Lyme disease. The Lyme Disease Association Inc. also reminds you that pets can bring unattached ticks into the home which can then bite humans.
Congress recently increased annual funding for research on Lyme and related tickborne diseases at NIH by $29 million to a total of $63 million. Most of this is discretionary, although $10 million of it is mandatory for research specific to Lyme disease. In addition to this historic increase, there are opportunities for funding and research support for studies on maternal-fetal transmission of Lyme disease and the impact of pregnancy on immune response. To stimulate researcher interest, NIH has issued a series of notices to encourage investigators to apply for grants and has asked stakeholder organizations for help getting the word out.
The FY21 Tick-Borne Disease Research Program (TBDRP) Program Announcements managed by the Department of Defense (DOD) office of Congressionally Directed Medical Research Programs (CDMRP) are now posted to the grants.gov (search grants by CFDA Number 12.420) and on the CDMRP website.
Pfizer has received priority review for their vaccine, TicoVac, that protects against tick-borne encephalitis. This tick-borne virus can cause meningitis and trigger long-term neurological symptoms. If approved, the vaccine would potentially protect travelers as well as members of the US military that are deployed to regions where the virus is common, such as Europe and parts of Asia.
STATE LEGISLATION IN THE LYMELIGHT By: Pat Smith, President, Lyme Disease Association, Inc. Lorraine Johnson, Executive Director, California Lyme Disease Association Passing legislation to combat problems associated with Lyme disease can help correct some of the problems Lyme patients face, or it can exacerbate the very problems that it is intended to address. This […]
Health and Human Services Department (HHS) Chief Data Scientist and Senior Advisor to the Assistant Secretary for Health, Kristen Honey, recently gave an interview on HHS’s Lyme Innovation initiative with Nextgov.
As part of the LymeX public-private partnership between Health & Human Services (HHS) and the Cohen Foundation, HHS has published an RFI in the Federal Register, 2.11.21 that seeks information on the current state of the science and technology to accelerate “innovative solutions” for Lyme disease diagnosis. The RFI contains a series of questions it […]
According to the US Department of Agriculture, USDA, the most recent tick to come into the US is now found in 15 states. The information is published in the USDA’s National Haemaphysalis longicornis Situation Report, February 3, 2021. States are VA, WVA, PA, NC, NJ, TN, NY, KY, MD, CT DE, SC, AR, OH, RI. For […]
The Access to Care Subcommittee unanimously recommended the following Potential Action.
Working Group Access to Care Subcommittee Report, Potential Action 4: Recommend that CDC provide input to the Council of State and Territorial Epidemiologists, CSTE, that the Lyme disease surveillance case definition be revised such that it abandons the use of geographic parameters for Lyme disease.