Healing Lyme Summit
June 4-10, 2024
Free, Virtual event
In a Health and Human Services press release on 02.06.2024, the HHS Releases the National Public Health Strategy to Prevent and Control Vector-Borne Diseases in People. The Strategy incorporates recommendations from the now sunset Working Group. The strategy aims to address the growing public health challenges related to diseases spread by vectors such as mosquitoes, ticks, fleas, and lice. This strategy was developed over a four-year period involving collaboration among 17 federal departments and agencies, as directed by the 2019 Kay Hagan Tick Act.
EquiManagement published the Disease Du Jour podcast, “Ep. 126: Lyme Disease with Dr. Toby Pinn-Woodcock.” In this podcast, Dr. Pinn-Woodcock, DVM, DACVIM, provides a broad overview of Lyme disease in equines.
Science Direct (Jackson, C.D., et al.) 01.13.2024, published “Sleep fragmentation disrupts Lyme arthritis resolution in mice.” In this study, researchers used a mouse model to investigate the effect of disrupted sleep on the progression and resolution of joint inflammation in Lyme arthritis.
An article on Peoria Standard.com, by Peoria Standard, 12.27.2023, reports on “New Illinois Laws Taking Effect in 2024.” Illinois Representative Swanson proposes House Bill HB 2584, which will allow the Department of Natural Resources to issue Lyme disease research decals with the proceeds going towards funding research on Lyme disease in Illinois. NBC Chicago reports that “$10 of each issuance and $23 of each renewal will go to the Tick Research, Education and Evaluation Fund, which will be paid as grants to the Illinois Lyme Association.”
House Bill 2584 states it “Provides that the Department of Natural Resources may issue a Lyme disease research decal for universal special license plates. Creates the Tick Research, Education, and Evaluation Fund and provides that all money in the fund must be paid as grants to the Illinois Lyme Association.” No other details have been announced as to how the plates will be issued.
Spectrum News 1 journalist, Viktoria Hallikäär, 01.03.2024 reports “N.Y. Lyme disease study aims to get preventative vaccine approved.” The Valneva/Pfizer Lyme vaccine candidate is in phase three study across many places in Pennsylvania (PA) and New York (NY).
Children’s National Hospital – Congenital Infection Program has launched a pilot study being led by Sarah Mulkey, MD, PhD, “Pregnancy and Early Neurodevelopmental Outcomes Following In Utero Lyme Disease Exposure.” […]
JAMA Network Open (Starke, SJ, et al.) 12.12.2023, published online “Time to Diagnosis and Treatment of Lyme Disease by Patient Race.” Investigators found that Black patients were more likely to be diagnosed with disseminated manifestations and experience longer time to appropriate treatment. This is one of the few large studies of racial differences in Lyme disease in an academic setting and is consistent with findings of prior surveillance and insurance claims studies.
Industry Dive (Alvarado, D.) 12.05.2023, published “Pfizer, after delay, completes enrollment in Lyme vaccine trial.” Pfizer and Valneva completed enrollment for a Phase 3 trial of their Lyme disease vaccine, ending a delay sparked by concerns about trial misconduct. The FDA found no wrongdoing, but the study’s completion is pushed back to 2025.
Courthouse News Service (Langford, C.) 11.16.2023, published “Fifth Circuit rejects Lyme disease patients’ coverage-denial conspiracy claims.” The article discusses the ruling of a legal case where patients with long-term Lyme disease were denied coverage and sued the Infectious Diseases Society of America (IDSA) for their stance on chronic Lyme disease. The patients alleged that the IDSA conspired with health insurers to establish guidelines that limited treatment for Lyme disease, causing their suffering.
LDA Doctor Referral System © Terms & Conditions and Guidelines
Save this Information for Your Records:
About LDA DOCTOR REFERRAL SYSTEM ©
Welcome to the Lyme Disease Association’s LDA Doctor Referral System ©. LDA made updates and enhancements to its prior system and has launched a new site to provide patients with information about doctors, other practitioners, testing labs, and pharmacies that are knowledgeable about chronic Lyme disease and often about many other tick-borne diseases (TBD). Many of the doctors listed are often referred to as Lyme Literate Physicians/Doctors (LLMD). Tens of thousands of patients have successfully used the prior LDA system to locate Lyme and TBD resources.
Terms & Conditions and Guidelines
Because there is a negative political climate surrounding Lyme disease, many LLMDs do not want their names posted outright on the internet. LDA has tried to balance the doctors’ wishes with patients’ need to find a doctor. This new system is a result of that compromise and therefore:
Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines, Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the LDA Doctor Referral System © contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the location entered and specaialty/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of so we can investigate.
Some providers may not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. Contact the provider to confirm.
It is your responsibility to contact the provider’s office to confirm the current address, directions, nature of services provided, and all other provider information before you make an appointment.
DISCLAIMER: The Lyme Disease Association, Inc. provides referrals to health care providers who treat Lyme disease, and often other TBD, as a courtesy to those seeking Lyme Literate Physicians (LLMD). However, some of the providers included do not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. We do not evaluate the professional competence or qualifications of health care providers on our referral list or the costs of services provided. Accordingly, the LDA neither warrants nor endorses the health care providers contained on this list nor the quality of care you will receive from those providers. We do not make recommendations, only referrals. LDA does not receive any monies from physicians to be included on this list nor does LDA provide any monies to physicians. Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines: Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the Doctor Referral System contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the zip code entered and category/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of.
LDA does not accept or reply to any comments on:
We cannot guarantee that the information provided will be timely and accurate or that physicians on the list are accepting new patients, or that they accept insurance. The selection of a physician should be made by you after careful consideration. There are two approaches in the treatment of Lyme disease. Our list contains physicians who generally follow more flexible treatment approaches than those advocated by the Infectious Diseases Society of America (IDSA). LDA is not responsible for incorrect information on the website. BEFORE DOCTOR VISIT: Please contact the physicians’ offices directly to confirm their current address, directions, and any other necessary information before scheduling an appointment. Do not rely only on the maps provided on this site. The maps on LDA’s Doctor Referral System are for informational purposes and provide an approximate locality of the listing based on the addresses we are provided with at the time of site updates. Practitioners often relocate and addresses can change. Notification of changes in listed information can be updated on our Dr. Referral Contact Form. Thank you, Lyme Disease Association, Inc. (LDA)
Subscriber information will not be shared outside of the Lyme Disease Association, Inc. nor used for donor solicitation.
The Lyme Disease Association, Inc. reserves the right to unsubscribe anyone from this service without cause.