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The Quiet Epidemic – Delaware County Lyme Support Group
![https___cdn.evbuc.com_images_581799909_42918384308_1_original The Quiet Epidemic](https://lymediseaseassociation.org/wp-content/uploads/2024/04/https___cdn.evbuc_.com_images_581799909_42918384308_1_original.jpg)
May 23, 2024 • 6 – 9 PM
FREE Screening
Delaware County Community College
901 Media Line Road, Media, PA 19063
May 23, 2024 • 6 – 9 PM
FREE Screening
Delaware County Community College
901 Media Line Road, Media, PA 19063
President’s Blog, January 15, 2024:
We miss you, TC.
Over the decades, I have been fortunate to work with some of the finest people I have ever known. These are the people who have been fighting against influential individuals preventing the diagnosis and treatment of thousands of Lyme patients—instead should be working for those who have helped provide or enable treatment.
MassLive, Greta Jochem, 1.3.2024, reports on “Lawsuit over at-home Lyme disease test gets dismissed after settlement.” This article reports on the dismissal of a class action lawsuit against LetsGetChecked, a company offering an at-home Lyme disease test. The lawsuit was filed in Jun by a Western Massachusetts woman and TruthCures, a Kansas-based nonprofit group, claiming that the tests were deceptive and inaccurate. The case was voluntarily dismissed with prejudice by the filers, meaning it cannot be brought again in the future, following a confidential settlement.
The terms of the settlement are undisclosed. However, LetsGetChecked has agreed to “never ever again sell Lyme diagnosis tests directly to consumers.” Currently, the tests are listed as out of stock on their online store. The company, based in New York and Dublin, did not comment on the case.
MassLive (Jochem, G.) 10.06.2023, published “Western Massachusetts woman files lawsuit over home test for Lyme disease.” A lawsuit has been filed in Springfield’s U.S. District Court against LetsGetChecked, a company providing a home test for Lyme disease. Moira Kerans from Dalton and TruthCures, a nonprofit focused on Lyme disease, are the plaintiffs seeking $5 million in damages. They allege that the test is inaccurate, deceives customers, and violates consumer protection laws.
Courthouse News Service (Langford, C.) 11.16.2023, published “Fifth Circuit rejects Lyme disease patients’ coverage-denial conspiracy claims.” The article discusses the ruling of a legal case where patients with long-term Lyme disease were denied coverage and sued the Infectious Diseases Society of America (IDSA) for their stance on chronic Lyme disease. The patients alleged that the IDSA conspired with health insurers to establish guidelines that limited treatment for Lyme disease, causing their suffering.
Courthouse News Service (Langford, C.) 11.16.2023, published “Fifth Circuit rejects Lyme disease patients’ coverage-denial conspiracy claims.” The article discusses the ruling of a legal case where patients with long-term Lyme disease were denied coverage and sued the Infectious Diseases Society of America (IDSA) for their stance on chronic Lyme disease. The patients alleged that the IDSA conspired with health insurers to establish guidelines that limited treatment for Lyme disease […]
In its first year as an established student group, the Lyme Disease Advocacy Project won Duke Law School’s annual award for Greatest Service to the Outside Community. This award is given to the student group that provided outstanding service to the North Carolina community and beyond throughout the year.
The Rhode Island Chapter of the Lyme Disease Association recently provided Lyme disease educational information to school nurses. On 3.21.23, the Rhode Island Certified School Nurse Teachers Association presented a conference in Warwick, RI entitled “What Rhode Island School Nurses Should Know about Vector-borne Diseases.” Speakers included Sandi Delak, MEd, BSN, RN, NCSN-E, FNASN and Thomas Mather, PhD, Professor of Entomology at URI and Director of the TickEncounter Resource Center.
The Daily Record, Maryland, (O’Neil, M.) 2.7.23, published an article regarding a Baltimore man who was awarded a $792,000 jury verdict after medical care providers at Patient First Primary and […]
When the Lyme Disease Association Inc. (LDA) was contacted by a student at Duke Law who wanted to organize a group of students in a Lyme disease pro bono project, I was very excited about the possibilities…Lyme is not just a disease but a political nightmare… this was an opportunity to have some of the brightest and most motivated of our youth tackle this epidemic….The findings from this group of law students can be disseminated and used to empower patients, families, physicians, politicians, and researchers to unravel the secrets surrounding Lyme and provide solutions for Lyme and other tick-borne diseases across the globe.
LDA Doctor Referral System © Terms & Conditions and Guidelines
Save this Information for Your Records:
About LDA DOCTOR REFERRAL SYSTEM ©
Welcome to the Lyme Disease Association’s LDA Doctor Referral System ©. LDA made updates and enhancements to its prior system and has launched a new site to provide patients with information about doctors, other practitioners, testing labs, and pharmacies that are knowledgeable about chronic Lyme disease and often about many other tick-borne diseases (TBD). Many of the doctors listed are often referred to as Lyme Literate Physicians/Doctors (LLMD). Tens of thousands of patients have successfully used the prior LDA system to locate Lyme and TBD resources.
Terms & Conditions and Guidelines
Because there is a negative political climate surrounding Lyme disease, many LLMDs do not want their names posted outright on the internet. LDA has tried to balance the doctors’ wishes with patients’ need to find a doctor. This new system is a result of that compromise and therefore:
Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines, Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the LDA Doctor Referral System © contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the location entered and specaialty/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of so we can investigate.
Some providers may not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. Contact the provider to confirm.
It is your responsibility to contact the provider’s office to confirm the current address, directions, nature of services provided, and all other provider information before you make an appointment.
DISCLAIMER: The Lyme Disease Association, Inc. provides referrals to health care providers who treat Lyme disease, and often other TBD, as a courtesy to those seeking Lyme Literate Physicians (LLMD). However, some of the providers included do not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. We do not evaluate the professional competence or qualifications of health care providers on our referral list or the costs of services provided. Accordingly, the LDA neither warrants nor endorses the health care providers contained on this list nor the quality of care you will receive from those providers. We do not make recommendations, only referrals. LDA does not receive any monies from physicians to be included on this list nor does LDA provide any monies to physicians. Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines: Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the Doctor Referral System contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the zip code entered and category/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of.
LDA does not accept or reply to any comments on:
We cannot guarantee that the information provided will be timely and accurate or that physicians on the list are accepting new patients, or that they accept insurance. The selection of a physician should be made by you after careful consideration. There are two approaches in the treatment of Lyme disease. Our list contains physicians who generally follow more flexible treatment approaches than those advocated by the Infectious Diseases Society of America (IDSA). LDA is not responsible for incorrect information on the website. BEFORE DOCTOR VISIT: Please contact the physicians’ offices directly to confirm their current address, directions, and any other necessary information before scheduling an appointment. Do not rely only on the maps provided on this site. The maps on LDA’s Doctor Referral System are for informational purposes and provide an approximate locality of the listing based on the addresses we are provided with at the time of site updates. Practitioners often relocate and addresses can change. Notification of changes in listed information can be updated on our Dr. Referral Contact Form. Thank you, Lyme Disease Association, Inc. (LDA)
Subscriber information will not be shared outside of the Lyme Disease Association, Inc. nor used for donor solicitation.
The Lyme Disease Association, Inc. reserves the right to unsubscribe anyone from this service without cause.