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2023 Conference Agenda
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Lyme & Other Tick-Borne Diseases: Research & Clinical Advances 2023 Friday Agenda Saturday Agenda Note: The order of the speakers is subject to change. See Speaker List. All times are EST […]
Lyme & Other Tick-Borne Diseases: Research & Clinical Advances 2023 Friday Agenda Saturday Agenda Note: The order of the speakers is subject to change. See Speaker List. All times are EST […]
David Putrino, PT, PhD
Professor, Department of Rehabilitation and Human Performance, Icahn School of Medicine at Mount Sinai
New York, NY
Director, Rehabilitation Innovation, Mount Sinai Health System
New York, NY
Long COVID
Brian A Fallon, MD, MPH
Conference Co-Director
Conference Planning Committee
Professor, Clinical Psychiatry, Columbia University Irving Medical Center (CUIMC), NYC, NY
Director, Lyme & Tick-borne Diseases Research Center, CUIMC, NYC, NY
Director, Clinical Trials Coordinating Center for Lyme & Other Tick-borne Diseases at CUIMC, NYC, NY
Director, Center for Neuroinflammatory and Somatic Disorders, New York State Psychiatric Institute, NYC, NY
Long COVID and Long Lyme: Mental Health Implications
Jim is a microbiologist and has conducted antibiotic discovery research for over 30 years in big pharma and academia. Jim is currently a supervisory microbiologist at the New Jersey Department of Health conducting viral (arboviruses and covid-19) surveillance for the state. He is starting a multi-partner plan to institute a state-wide tick surveillance and testing program for the state of New Jersey.
On 4.4.23, Lyme Disease Association, Inc. (LDA) President, Pat Smith, was interviewed on NJ radio station, 101.5 WKXW by Host, David Matthau, about the spread of multiple dangerous tick-borne diseases in the State. A summary article about the in-depth and informative interview of Ms. Smith was posted by the Host to nj1015.com on 4.12.23.
On February 22, 2023, The International Lyme and Associated Illnesses Society (ILADS) hosted a webinar with Annie Hopper, a limbic system rehabilitation specialist and founder of the Dynamic Neural Retraining […]
Lyme Disease Association Inc (LDA) Board of Directors Member Jeannine Phillips attended the first virtual meeting of ICUE, the CDC Foundation’s new infectious disease-based initiative, February 8, 2023, which includes Lyme disease. About 40 patient advocacy and community-based organizations from different health conditions were represented in the initial endeavor. Meeting report from Jeannine (picture) follows.
Jay Holmgren, Ph.D., MHI, et al, published “Association Between Billing Patient Portal Messages as e-Visits and Patient Messaging Volume” online, in JAMA, on January 6, 2023. The purpose of the study was to analyze the utilization of clinician-initiated e-visit billing which expanded following the onset of the COVID-19 pandemic. The researchers sought to better understand the level at which clinicians adopted the revised billing protocols as they related to patient messaging behavior.
The U.S. Department of Health and Human Services (HHS) and the Steven & Alexandra Cohen Foundation (Cohen Foundation) have named ten Phase 1 LymeX Diagnostics Prize winners in the LymeX Innovation Accelerator (LymeX) contest created to advance the progress of diagnostics for Lyme disease. Phase 1 of the multiphase competition called on scientific, technical, and clinical experts to present pioneering methodologies for the detection of active Lyme disease infections in humans with the goal of cultivating the advancement of diagnostics toward review by the Food and Drug Administration.
When the Lyme Disease Association Inc. (LDA) was contacted by a student at Duke Law who wanted to organize a group of students in a Lyme disease pro bono project, I was very excited about the possibilities…Lyme is not just a disease but a political nightmare… this was an opportunity to have some of the brightest and most motivated of our youth tackle this epidemic….The findings from this group of law students can be disseminated and used to empower patients, families, physicians, politicians, and researchers to unravel the secrets surrounding Lyme and provide solutions for Lyme and other tick-borne diseases across the globe.
LDA Doctor Referral System © Terms & Conditions and Guidelines
Save this Information for Your Records:
About LDA DOCTOR REFERRAL SYSTEM ©
Welcome to the Lyme Disease Association’s LDA Doctor Referral System ©. LDA made updates and enhancements to its prior system and has launched a new site to provide patients with information about doctors, other practitioners, testing labs, and pharmacies that are knowledgeable about chronic Lyme disease and often about many other tick-borne diseases (TBD). Many of the doctors listed are often referred to as Lyme Literate Physicians/Doctors (LLMD). Tens of thousands of patients have successfully used the prior LDA system to locate Lyme and TBD resources.
Terms & Conditions and Guidelines
Because there is a negative political climate surrounding Lyme disease, many LLMDs do not want their names posted outright on the internet. LDA has tried to balance the doctors’ wishes with patients’ need to find a doctor. This new system is a result of that compromise and therefore:
Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines, Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the LDA Doctor Referral System © contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the location entered and specaialty/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of so we can investigate.
Some providers may not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. Contact the provider to confirm.
It is your responsibility to contact the provider’s office to confirm the current address, directions, nature of services provided, and all other provider information before you make an appointment.
DISCLAIMER: The Lyme Disease Association, Inc. provides referrals to health care providers who treat Lyme disease, and often other TBD, as a courtesy to those seeking Lyme Literate Physicians (LLMD). However, some of the providers included do not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. We do not evaluate the professional competence or qualifications of health care providers on our referral list or the costs of services provided. Accordingly, the LDA neither warrants nor endorses the health care providers contained on this list nor the quality of care you will receive from those providers. We do not make recommendations, only referrals. LDA does not receive any monies from physicians to be included on this list nor does LDA provide any monies to physicians. Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines: Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the Doctor Referral System contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the zip code entered and category/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of.
LDA does not accept or reply to any comments on:
We cannot guarantee that the information provided will be timely and accurate or that physicians on the list are accepting new patients, or that they accept insurance. The selection of a physician should be made by you after careful consideration. There are two approaches in the treatment of Lyme disease. Our list contains physicians who generally follow more flexible treatment approaches than those advocated by the Infectious Diseases Society of America (IDSA). LDA is not responsible for incorrect information on the website. BEFORE DOCTOR VISIT: Please contact the physicians’ offices directly to confirm their current address, directions, and any other necessary information before scheduling an appointment. Do not rely only on the maps provided on this site. The maps on LDA’s Doctor Referral System are for informational purposes and provide an approximate locality of the listing based on the addresses we are provided with at the time of site updates. Practitioners often relocate and addresses can change. Notification of changes in listed information can be updated on our Dr. Referral Contact Form. Thank you, Lyme Disease Association, Inc. (LDA)
Subscriber information will not be shared outside of the Lyme Disease Association, Inc. nor used for donor solicitation.
The Lyme Disease Association, Inc. reserves the right to unsubscribe anyone from this service without cause.