Liz Horn, PhD, MBI

Patricia V. Smith, BA 2023 Conf.

Principal Investigator
Portland, OR

Lyme Disease Biobank

Identifying Pathogens in Post-Mortem Tissue Through the Lyme Disease Biobank Tissue Pipeline – Co-Presenters Drs. Embers & Horn


Liz serves as PI of Lyme Disease Biobank, a resource created to provide much-needed blood, urine, and tissue samples to researchers studying Lyme disease and other tick-borne infections. More than 1200 participants (representing early Lyme, later stages of Lyme, persistent Lyme, and controls) have been enrolled at sites in endemic areas, including Long Island, Martha’s Vineyard, Boston, several regions in Wisconsin, and California. Each participant’s sample donation can support up to 50 different research projects. Currently, >85 projects in academia and industry have been approved for samples. For more information about the biobank visit

A tissue bank has been created to collect samples from patients with Lyme disease and other tick-borne infections to understand the impact of these infections on the body. This program is in partnership with the National Disease Research Interchange (NDRI), collecting surgical and post-mortem tissues, and, enabling participants in the MyLymeData patient registry to link their registry profile with their tissue samples. This program is provided at no cost to patients and families. Interested individuals can register at

Liz earned her doctorate in molecular pharmacology and cancer therapeutics from SUNY at Buffalo, was a National Library of Medicine fellow in biomedical informatics, and received her MBI from Oregon Health & Science University. She has spent nearly 2 decades working with non-profit organizations to build research initiatives and collaborations with academia, other non-profits, and industry, and has been working in Lyme disease since 2013. Liz is passionate about building resources to move research forward that help people, improve lives, and reduce suffering.



2023 Scientific Conference Jointly Provided by
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This 2023 Scientific Conference is supported by independent educational grants from

IGeneX, Inc.