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2023 Conference Registration Info
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Lyme & Other Tick-Borne Diseases: Research & Clinical Advances 2023 Friday & Saturday October 13 & 14, 2023 Virtual CME Conference Jointly Provided by: Columbia University Vagelos College of Physicians […]
Lyme & Other Tick-Borne Diseases: Research & Clinical Advances 2023 Friday & Saturday October 13 & 14, 2023 Virtual CME Conference Jointly Provided by: Columbia University Vagelos College of Physicians […]
The Lyme Disease Association will hold its 22nd annual scientific conference, Lyme & Other Tick-Borne Diseases: Research & Clinical Advances 2023, held virtually via zoom on October 13 & 14, 2023. Lyme Disease Association Inc. and Columbia Vagelos College of Physicians and Surgeons provides the conference.
On February 22, 2023, The International Lyme and Associated Illnesses Society (ILADS) hosted a webinar with Annie Hopper, a limbic system rehabilitation specialist and founder of the Dynamic Neural Retraining […]
Lyme Disease Association Inc (LDA) Board of Directors Member Jeannine Phillips attended the first virtual meeting of ICUE, the CDC Foundation’s new infectious disease-based initiative, February 8, 2023, which includes Lyme disease. About 40 patient advocacy and community-based organizations from different health conditions were represented in the initial endeavor. Meeting report from Jeannine (picture) follows.
In this May Awareness Guest Blog, we interview Richard Horowitz, MD, the Medical Director of the Hudson Valley Healing Arts Center. As a board-certified internal medicine specialist and a key member of various tick-borne disease working groups, Dr. Horowitz has dedicated his work to understanding and treating Lyme disease and other tick-borne illnesses.
In the summer of 2022, the Duke Law Lyme Disease Advocacy Project gained recognition as a formally recognized pro bono group within Duke University School of Law. Madison Pinckney and Luke Mears, who are now third year law students, founded the group as first year students. They wanted to help the Lyme disease community and provide with students with opportunities to work on legal, legislative, and advocacy questions centering around Lyme disease. The group partnered with the Lyme Disease Association and began researching and answering questions surrounding Lyme disease advocacy that have gone unanswered for years.
The following research memo is prepared by Duke Law student members of the Duke Law Lyme Disease Advocacy Project. The LDA has been working with this group for several years to help research difficult questions regarding Lyme disease policy.
On March 7, 2024 a small group of expert-advocates were convened to compile a list of individual questions that they have about a future Lyme disease vaccine, and the VLA15 vaccine in particular, given it was the only vaccine candidate being evaluated in phase ‘ clinical trials as of the date of this meeting. Pat Smith reported on this meeting in the President’s Blog – In-depth Synopsis of Advocate Vaccine Meeting Hosted by CDC. The following is a list of all the questions contributed by the participants of the meeting. These questions were shared with a Pfizer representative on March 8, 2024. As of April 30, 2024, there has been no response by Pfizer.
After 39 years as a Lyme educator and advocate, I’ve become immune to the fact that the status quo with Lyme rarely alters, and if it does, it does not often make a dent in the lives of patients. I had hoped that the new webpage placed on the CDC website the last week of October 2023, would change that.
EXPECTATIONS: The recent Bloomberg article on the upcoming Lyme disease vaccine was not a surprise but was certainly a disappointment to the Lyme community and the Lyme Disease Association Inc. (LDA). The reporter spent time tracking me down to do an interview, as she indicated to me, many in the Lyme Community had suggested to her that I should be interviewed, probably due to the LDA’s involvement in the Lyme scene during the prior vaccine withdrawal.
LDA INVOLVEMENT IN EARLY VACCINE: At the time the first Lyme OspA vaccine, LymeRix®, was receiving FDA approval, with the most provisos− according to the chairperson−the LDA was already more than a decade into educating about and providing research funds for Lyme disease. As LDA president, I was educating in NJ and elsewhere. The prevailing questions and comments were always the same: talk and questions about the vaccine− problems that many people said they/acquaintances were experiencing and attributing to the vaccine.
LDA Doctor Referral System © Terms & Conditions and Guidelines
Save this Information for Your Records:
About LDA DOCTOR REFERRAL SYSTEM ©
Welcome to the Lyme Disease Association’s LDA Doctor Referral System ©. LDA made updates and enhancements to its prior system and has launched a new site to provide patients with information about doctors, other practitioners, testing labs, and pharmacies that are knowledgeable about chronic Lyme disease and often about many other tick-borne diseases (TBD). Many of the doctors listed are often referred to as Lyme Literate Physicians/Doctors (LLMD). Tens of thousands of patients have successfully used the prior LDA system to locate Lyme and TBD resources.
Terms & Conditions and Guidelines
Because there is a negative political climate surrounding Lyme disease, many LLMDs do not want their names posted outright on the internet. LDA has tried to balance the doctors’ wishes with patients’ need to find a doctor. This new system is a result of that compromise and therefore:
Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines, Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the LDA Doctor Referral System © contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the location entered and specaialty/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of so we can investigate.
Some providers may not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. Contact the provider to confirm.
It is your responsibility to contact the provider’s office to confirm the current address, directions, nature of services provided, and all other provider information before you make an appointment.
DISCLAIMER: The Lyme Disease Association, Inc. provides referrals to health care providers who treat Lyme disease, and often other TBD, as a courtesy to those seeking Lyme Literate Physicians (LLMD). However, some of the providers included do not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. We do not evaluate the professional competence or qualifications of health care providers on our referral list or the costs of services provided. Accordingly, the LDA neither warrants nor endorses the health care providers contained on this list nor the quality of care you will receive from those providers. We do not make recommendations, only referrals. LDA does not receive any monies from physicians to be included on this list nor does LDA provide any monies to physicians. Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines: Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the Doctor Referral System contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the zip code entered and category/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of.
LDA does not accept or reply to any comments on:
We cannot guarantee that the information provided will be timely and accurate or that physicians on the list are accepting new patients, or that they accept insurance. The selection of a physician should be made by you after careful consideration. There are two approaches in the treatment of Lyme disease. Our list contains physicians who generally follow more flexible treatment approaches than those advocated by the Infectious Diseases Society of America (IDSA). LDA is not responsible for incorrect information on the website. BEFORE DOCTOR VISIT: Please contact the physicians’ offices directly to confirm their current address, directions, and any other necessary information before scheduling an appointment. Do not rely only on the maps provided on this site. The maps on LDA’s Doctor Referral System are for informational purposes and provide an approximate locality of the listing based on the addresses we are provided with at the time of site updates. Practitioners often relocate and addresses can change. Notification of changes in listed information can be updated on our Dr. Referral Contact Form. Thank you, Lyme Disease Association, Inc. (LDA)
Subscriber information will not be shared outside of the Lyme Disease Association, Inc. nor used for donor solicitation.
The Lyme Disease Association, Inc. reserves the right to unsubscribe anyone from this service without cause.