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May 6-12, 2024
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Every Year, the LDA provides written input to the U.S. House of Representatives Lyme Disease Caucus for its consideration in formulating its requests to the Subcommittee on Labor, HHS, Education and Related Agencies, House Committee on Appropriations. Following are a few examples from FY2023 and FY2024 appropriations, where LDA submitted language that was used by the Lyme Caucus and was included in House report language for FY2023 and Explanatory Materials for FY2024.
On March 7, 2024 a small group of expert-advocates were convened to compile a list of individual questions that they have about a future Lyme disease vaccine, and the VLA15 vaccine in particular, given it was the only vaccine candidate being evaluated in phase ‘ clinical trials as of the date of this meeting. Pat Smith reported on this meeting in the President’s Blog – In-depth Synopsis of Advocate Vaccine Meeting Hosted by CDC. The following is a list of all the questions contributed by the participants of the meeting. These questions were shared with a Pfizer representative on March 8, 2024. As of April 30, 2024, there has been no response by Pfizer.
BMC Infectious Diseases (Dong, Y., et al.) 04.22.24, published “Post-COVID reactivation of latent Bartonella henselae infection: a case report and literature review.” In this case review, authors describe a 54-year-old male that presented with a “painful left upper arm mass.” The mass resolved with antibiotic treatment. The man then experienced an infection with COVID which resulted in rapid regrowth of the mass. Additionally, pulmonary symptoms emerged which included pleural effusion.
The cause of the man’s symptoms was unknown until next generation sequencing (NGS) was performed. NGS testing confirmed the presence of B. henselae, the bacteria that causes Cat Scratch Disease (CSD).
LDA strives to fund the most relevant and cutting edge research aimed at investigating the diagnosis, treatment, pathology, and prevention of Lyme and other tick-borne diseases. The goal is to […]
The Lyme Disease Association, Inc. (LDA) is designated by the IRS as a 501(c)(3) non-profit, a charity focusing on research, education, prevention and patient support. History The Lyme Disease Association […]
Open Journal of Public Health (Scott, J.D., et al.) 02.12.2024, published, “Human Babesiosis Caused by Babesia odocoilei: Hiding Behind a Mask.” According to the researchers, B. odocoilei is the predominant Babesia sp. infecting humans and wildlife. In this international human babesiosis study, 113 participants from Canada and the USA were sampled for nucleic acid detection of Babesia sp. in blood.
KTTC.com News journalist, Eric Min, 03.11.24 reports, “Iowa and Minnesota sees uptick in uncommon tickborne disease.” Min reports that the number of cases of Alpha-gal meat allergy are increasing from southern Iowa north to southern Minnesota. One of the issues surrounding tracking for this condition is that Alpha-gal may be under-reported due to lack of awareness about the condition and symptoms.
WPRI.COM12 News (Melanie DaSilva,02.29.2024) published “RI reports case of rare tick-borne disease.” A confirmed case of Powassan virus was reported by The Rhode Island Department of Health. It is reported […]
Frontiers (Alruwaili, Y., et al.) 11.21.2023, published “Superior efficacy of combination antibiotic therapy versus monotherapy in a mouse model of Lyme disease.” This article delves into Lyme disease caused by Borrelia burgdorferi, a prevalent tick-borne infection in North America. While most cases are treatable with antibiotics, a subset of patients experiences chronic symptoms known as […]
LDA Doctor Referral System © Terms & Conditions and Guidelines
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About LDA DOCTOR REFERRAL SYSTEM ©
Welcome to the Lyme Disease Association’s LDA Doctor Referral System ©. LDA made updates and enhancements to its prior system and has launched a new site to provide patients with information about doctors, other practitioners, testing labs, and pharmacies that are knowledgeable about chronic Lyme disease and often about many other tick-borne diseases (TBD). Many of the doctors listed are often referred to as Lyme Literate Physicians/Doctors (LLMD). Tens of thousands of patients have successfully used the prior LDA system to locate Lyme and TBD resources.
Terms & Conditions and Guidelines
Because there is a negative political climate surrounding Lyme disease, many LLMDs do not want their names posted outright on the internet. LDA has tried to balance the doctors’ wishes with patients’ need to find a doctor. This new system is a result of that compromise and therefore:
Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines, Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the LDA Doctor Referral System © contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the location entered and specaialty/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of so we can investigate.
Some providers may not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. Contact the provider to confirm.
It is your responsibility to contact the provider’s office to confirm the current address, directions, nature of services provided, and all other provider information before you make an appointment.
DISCLAIMER: The Lyme Disease Association, Inc. provides referrals to health care providers who treat Lyme disease, and often other TBD, as a courtesy to those seeking Lyme Literate Physicians (LLMD). However, some of the providers included do not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. We do not evaluate the professional competence or qualifications of health care providers on our referral list or the costs of services provided. Accordingly, the LDA neither warrants nor endorses the health care providers contained on this list nor the quality of care you will receive from those providers. We do not make recommendations, only referrals. LDA does not receive any monies from physicians to be included on this list nor does LDA provide any monies to physicians. Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines: Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the Doctor Referral System contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the zip code entered and category/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of.
LDA does not accept or reply to any comments on:
We cannot guarantee that the information provided will be timely and accurate or that physicians on the list are accepting new patients, or that they accept insurance. The selection of a physician should be made by you after careful consideration. There are two approaches in the treatment of Lyme disease. Our list contains physicians who generally follow more flexible treatment approaches than those advocated by the Infectious Diseases Society of America (IDSA). LDA is not responsible for incorrect information on the website. BEFORE DOCTOR VISIT: Please contact the physicians’ offices directly to confirm their current address, directions, and any other necessary information before scheduling an appointment. Do not rely only on the maps provided on this site. The maps on LDA’s Doctor Referral System are for informational purposes and provide an approximate locality of the listing based on the addresses we are provided with at the time of site updates. Practitioners often relocate and addresses can change. Notification of changes in listed information can be updated on our Dr. Referral Contact Form. Thank you, Lyme Disease Association, Inc. (LDA)
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