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Tick-Borne Disease Working Group Reports (2018 – 2020)

February 8, 2021

The Tick-Borne Disease Working Group (TBDWG) was established by the 21st Century Cures Act to improve federal coordination of efforts related to tick-borne diseases. The TBDWG’s purpose is to review federal activities and research related to all tick-borne diseases and provide a summary of its findings and any recommendations regarding changes or improvements to such findings to the HHS Secretary and Congress every two years.

To date:

The first report was submitted to Congress in November 2018; the second report was submitted in January 2021, both authored by the TBDWG members.
Subcommittee Reports were also written in 2018 and 2020, some coauthored by Working Group member and LDA President, Pat Smith.
- Each subcommittee of the Working Group identified priorities and developed a report to the TBDWG that described current efforts, gaps in research, and potentials actions relevant to their topic.
Topic development briefs were also developed by the first term Working Group

See HHS -TBDWG webpage for all of the reports or click below

2020 TBDWG Report to Congress

2018 TBDWG Report to Congress

2020 Subcommittee Reports:

2020 Alpha-Gal Syndrome Subcommittee Report to the Tick-Borne Disease Working Group

2020 Babesiosis and Tick-Borne Pathogens Report to the Tick-Borne Disease Working Group

2020 Clinical Aspects of Lyme Disease Report to the Tick-Borne Disease Working Group

2020 Ehrlichiosis and Anaplasmosis Subcommittee Report to the Tick-Borne Disease Working Group

2020 Pathogenesis and Pathophysiology of Lyme Disease Subcommittee Report to the Tick-Borne Disease Working Group

2020 Rickettsiosis Subcommittee Report to the Tick-Borne Disease Working Group

2020 Tick Biology, Ecology, and Control Subcommittee Report to the Tick-Borne Disease Working Group

2020 Training, Education, Access to Care, and Reimbursement Subcommittee Report to the Tick-Borne Disease Working Group

2018 Subcommittee Reports:

Report of the Access to Care Services and Support to Patients Subcommittee

Report of the Disease Vectors, Surveillance, and Prevention Subcommittee

Report of the Other Tick-Borne Diseases and Co-Infections Subcommittee

Report of the Pathogenesis, Transmission and Treatment Subcommittee

Report of the Testing and Diagnostics Subcommittee

Report of the Vaccine and Therapeutics Subcommittee

2019 Topic Development Briefs

Increases in Tick-Borne Diseases

Diagnostic Tests for Tick-Borne Diseases

Persistent Symptoms of Lyme Disease

« HHS Tick-Borne Disease Working Group 2020 Report to Congress Now Available » Government Refuses to Address Geographic Boundary Restriction Preventing Lyme Diagnosis

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About LDA DOCTOR REFERRAL SYSTEM ©
Welcome to the Lyme Disease Association’s LDA Doctor Referral System ©. LDA made updates and enhancements to its prior system and has launched a new site to provide patients with information about doctors, other practitioners, testing labs, and pharmacies that are knowledgeable about chronic Lyme disease and often about many other tick-borne diseases (TBD). Many of the doctors listed are often referred to as Lyme Literate Physicians/Doctors (LLMD). Tens of thousands of patients have successfully used the prior LDA system to locate Lyme and TBD resources.

Terms & Conditions and Guidelines
Because there is a negative political climate surrounding Lyme disease, many LLMDs do not want their names posted outright on the internet. LDA has tried to balance the doctors’ wishes with patients’ need to find a doctor. This new system is a result of that compromise and therefore:

LDA permits searches over a calendar month period that will result in access to up to 15 Doctor Referrals. To access a Doctor Referral listing, first conduct a search, and then click on the desired provider from the results that populate. Clicking on a listing will re-direct you to that provider’s page which will include all necessary contact information. The system enables you to click on up to 15 Doctor Referrals every calendar month period.
Searches can be refined based on the search location (street address, city, zip code or country), search radius (distance from the starting point), category filter(s), and/or keyword search.

Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines, Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the LDA Doctor Referral System © contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the location entered and specaialty/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of so we can investigate.

Some providers may not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. Contact the provider to confirm.

It is your responsibility to contact the provider’s office to confirm the current address, directions, nature of services provided, and all other provider information before you make an appointment.

DISCLAIMER: The Lyme Disease Association, Inc. provides referrals to health care providers who treat Lyme disease, and often other TBD, as a courtesy to those seeking Lyme Literate Physicians (LLMD). However, some of the providers included do not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. We do not evaluate the professional competence or qualifications of health care providers on our referral list or the costs of services provided. Accordingly, the LDA neither warrants nor endorses the health care providers contained on this list nor the quality of care you will receive from those providers. We do not make recommendations, only referrals. LDA does not receive any monies from physicians to be included on this list nor does LDA provide any monies to physicians. Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines: Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the Doctor Referral System contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the zip code entered and category/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of.

LDA does not accept or reply to any comments on:

What insurance a doctor accepts or does not accept, or if any insurance is accepted.
How listed doctors practice or any other aspect of the doctor-patient relationship.
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Why a particular doctor is or is not listed.
Request for providers that treat COVID-19, although some of the providers in the system may treat COVID.

We cannot guarantee that the information provided will be timely and accurate or that physicians on the list are accepting new patients, or that they accept insurance. The selection of a physician should be made by you after careful consideration. There are two approaches in the treatment of Lyme disease. Our list contains physicians who generally follow more flexible treatment approaches than those advocated by the Infectious Diseases Society of America (IDSA). LDA is not responsible for incorrect information on the website. BEFORE DOCTOR VISIT: Please contact the physicians’ offices directly to confirm their current address, directions, and any other necessary information before scheduling an appointment. Do not rely only on the maps provided on this site. The maps on LDA’s Doctor Referral System are for informational purposes and provide an approximate locality of the listing based on the addresses we are provided with at the time of site updates. Practitioners often relocate and addresses can change. Notification of changes in listed information can be updated on our Dr. Referral Contact Form. Thank you, Lyme Disease Association, Inc. (LDA)

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