Non-profit, a charity focusing on research, education, prevention and patient support.
LDA Doctor Referral System © Terms & Conditions and Guidelines
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About LDA DOCTOR REFERRAL SYSTEM ©
Welcome to the Lyme Disease Association’s LDA Doctor Referral System ©. LDA made updates and enhancements to its prior system and has launched a new site to provide patients with information about doctors, other practitioners, testing labs, and pharmacies that are knowledgeable about chronic Lyme disease and often about many other tick-borne diseases (TBD). Many of the doctors listed are often referred to as Lyme Literate Physicians/Doctors (LLMD). Tens of thousands of patients have successfully used the prior LDA system to locate Lyme and TBD resources.
Terms & Conditions and Guidelines
Because there is a negative political climate surrounding Lyme disease, many LLMDs do not want their names posted outright on the internet. LDA has tried to balance the doctors’ wishes with patients’ need to find a doctor. This new system is a result of that compromise and therefore:
Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines, Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the LDA Doctor Referral System © contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the location entered and specaialty/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of so we can investigate.
Some providers may not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. Contact the provider to confirm.
It is your responsibility to contact the provider’s office to confirm the current address, directions, nature of services provided, and all other provider information before you make an appointment.
DISCLAIMER: The Lyme Disease Association, Inc. provides referrals to health care providers who treat Lyme disease, and often other TBD, as a courtesy to those seeking Lyme Literate Physicians (LLMD). However, some of the providers included do not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. We do not evaluate the professional competence or qualifications of health care providers on our referral list or the costs of services provided. Accordingly, the LDA neither warrants nor endorses the health care providers contained on this list nor the quality of care you will receive from those providers. We do not make recommendations, only referrals. LDA does not receive any monies from physicians to be included on this list nor does LDA provide any monies to physicians. Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines: Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the Doctor Referral System contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the zip code entered and category/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of.
LDA does not accept or reply to any comments on:
We cannot guarantee that the information provided will be timely and accurate or that physicians on the list are accepting new patients, or that they accept insurance. The selection of a physician should be made by you after careful consideration. There are two approaches in the treatment of Lyme disease. Our list contains physicians who generally follow more flexible treatment approaches than those advocated by the Infectious Diseases Society of America (IDSA). LDA is not responsible for incorrect information on the website. BEFORE DOCTOR VISIT: Please contact the physicians’ offices directly to confirm their current address, directions, and any other necessary information before scheduling an appointment. Do not rely only on the maps provided on this site. The maps on LDA’s Doctor Referral System are for informational purposes and provide an approximate locality of the listing based on the addresses we are provided with at the time of site updates. Practitioners often relocate and addresses can change. Notification of changes in listed information can be updated on our Dr. Referral Contact Form. Thank you, Lyme Disease Association, Inc. (LDA)
Subscriber information will not be shared outside of the Lyme Disease Association, Inc. nor used for donor solicitation.
The Lyme Disease Association, Inc. reserves the right to unsubscribe anyone from this service without cause.
Lyme Disease Update: Science, Policy, & Law
$10.00
By Marcus A. Cohen, Published 2004
LDA Ebook Note, 2018: Don’t understand the Lyme issues and need a place to start? Lyme Disease Update: Science, Policy, & Law, published in 2004 by the Lyme Disease Association Inc. (LDA), is a resource book which summarizes the contentious issues in the prior decades of Lyme including some early legal actions. The LDA is pleased to now be able to offer an Ebook for free download : Kindle Ibook PDF
The book is a must for busy physicians who lack time to read the peer-review on Lyme disease and for patients who have been refused treatment or even a Lyme diagnosis, the doctor perhaps citing a negative test (the book documents seronegativity) or the patients’ lack of conformity to the CDC criteria, which are meant for surveillance purposes only─the reference is cited in the Update.
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Description
Lyme Disease Update Now Available Lyme Disease Association, Inc., (LDA) announces the publication of Lyme Disease Update: Science, Policy, & Law, the first Lyme disease resource book of its kind. Marcus Cohen, noted columnist for the Townsend Letter for Physicians & Patients is the author of the Update. NY Times Bestselling Author Amy Tan has written the Preface from her personal perspective on the difficulty of getting diagnosed and appropriately treated for Lyme disease. The book is a must for busy physicians who lack time to read the peer-review on Lyme disease and for patients who have been refused treatment or even a Lyme diagnosis, the doctor perhaps citing a negative test (the book documents seronegativity) or the patients’ lack of conformity to the CDC criteria, which are meant for surveillance purposes only─the reference is cited in the Update.
The Foreword is written by Brian Fallon, MD, MPH, Professor of Clinical Psychiatry, Columbia University College of Physicians and Surgeons, and now Director, Columbia University Lyme and Tick-Borne Diseases Research Center. In it, he states, “Carefully referenced and written by Marcus Cohen in a style that is accessible to both the medical professional and the educated non-medical person, this document provides overviews and digests of important research findings from the last few decades…This Update…does do an excellent job of providing the reader with an opportunity to learn about some of the pivotal studies in Lyme disease and about areas of research that need to be more aggressively pursued.”
In the first section, M. Cohen has compiled a digest of the peer-reviewed literature surrounding chronic Lyme disease from diagnosis and treatment to neuroborreliosis, atypical forms of Borrelia burgdorferi, the bacteria that causes Lyme disease, and other tick-borne diseases. Besides those in the digest form, he presents additional readings in each area.
In the second section of the book, Mr. Cohen has summarized a brief history of federal and state activities which have affected the course of Lyme disease. It includes accounts of meetings with various officials, excerpts from letters and reports, and whenever possible in politically active states, a state-by-state description of the history of the Lyme disease movement there, including legislation introduced or passed and officials who have been supportive. Various Lyme disease groups and their activities are mentioned.
The last section touches on legal issues which affect Lyme patients and physicians. Representative cases are included where ever possible. A glossary follows. The Update editor is Patricia Smith, LDA President.
The back cover contains quotes from NJ Congressman Christopher Smith, CT Attorney General Richard Blumenthal, author Denise Lang, Political Advocates Jim & Sarah Brady, Actress MaryMc Donnell, and the Jimmy Carter Family Scheduler, Pat Slaughter.
The book is a must for busy physicians who lack time to read the peer-review on Lyme disease and for patients who have been refused treatment or even a Lyme diagnosis, the doctor perhaps citing a negative test (the book documents seronegativity) or the patients’ lack of conformity to the CDC criteria, which are meant for surveillance purposes only─the reference is cited in the Update. Patients planning an insurance appeal will also find this reference book useful, as will those struggling to understand the complexities of this disease.
Ordered directly from the Lyme Disease Association, the paperback book is $8.00 plus $2.00 postage and handling. Send your name address and make check or money order payable to: Lyme Disease Association, and send to: Lyme Disease Association Attn. Update, P.O. Box 1438 Jackson, NJ 08527 or order by credit card below. Please allow 4 weeks for delivery.
Free Ebook Available
Kindle (mobi)
Ibook (epub)
PDF
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