Healing Lyme Summit
June 4-10, 2024
Free, Virtual event
Lyme Disease Association Inc. Board of Directors 2024 Patricia V. Smith, BA President Patricia V. Smith, a Monmouth University graduate, is in her 27th year as President of the […]
GlobeNewswire, Sixty Degrees Pharmaceuticals, 12.26.2023, reports on “60 Degrees Pharma Announces IRB Approval of Phase IIA Study to Evaluate Tafenoquine for Babesiosis, an Emerging Tick-Borne Disease; Type C Meeting Re-Scheduled by FDA to January 17, 2024.” This article from 60 Degrees Pharmaceuticals, Inc. highlights several key updates and developments regarding their investigational drug, tafenoquine, for the treatment of babesiosis, an emerging tick-borne disease. Babesiosis is a potentially life-threatening tick-borne illness on the rise in the United States, estimated to affect around 47,000 individuals annually. It’s often found in areas where Lyme disease is prevalent and can be transmitted through tick bites or contaminated blood transfusions.
Children’s National Hospital – Congenital Infection Program has launched a pilot study being led by Sarah Mulkey, MD, PhD, “Pregnancy and Early Neurodevelopmental Outcomes Following In Utero Lyme Disease Exposure.” […]
JAMA Network Open (Starke, SJ, et al.) 12.12.2023, published online “Time to Diagnosis and Treatment of Lyme Disease by Patient Race.” Investigators found that Black patients were more likely to be diagnosed with disseminated manifestations and experience longer time to appropriate treatment. This is one of the few large studies of racial differences in Lyme disease in an academic setting and is consistent with findings of prior surveillance and insurance claims studies.
Fox News, Melissa Rudy, 12.10.2023, reports on “Deadly Rocky Mountain spotted fever outbreak in California likely came from Mexico, CDC says.” The Centers for Disease Control and Prevention (CDC) issued a health advisory on 12.08.2023 advising of an outbreak of Rocky Mountain spotted fever (RMSF) southern California which has hospitalized five people and resulted in three deaths between late July and December 2023.
The New England Journal of Medicine (Singhal, U., et al.) 11.04.2023, published a perspective article, “Modernizing Federal Oversight of Laboratory-Developed Tests — Toward Safety, Validity, and Utility.” In this article authors describe the current Federal oversight processes of Laboratory-developed tests (LDTs) and how it has evolved over time. They describe the potential harms that unregulated LDTs may have on patients as well as the potential obstacles that laboratories may face with innovation if regulations are too restrictive.
In an effort to lessen the patient burden on emergency rooms, walk-in-clinics, and primary care providers, New Brunswick, Canada, pharmacists are able to assess and prescribe for 12 common ailments including Lyme disease prevention after a high-risk tick bite.
PRNewswire published 10.17.2023, “Lyme Disease Most Common in the Age Group 51-60 in the Period 2018-2022.” According to data analysis released by FAIR Health, more Lyme disease private insurance claim lines were filed for individuals in the 51-60 age group than any other age group between 2018 and 2022. Lyme disease claim lines were broken down by age groups and shown as percentages, 51-6 (23.5%), 41-50 (18.8%), 31-40 (14.1%), 19-30 (13.9%), 0-18 (11.3%) and over 70 (4.3%).
Lorraine Johnson, JD, MBA
Chief Executive Officer, LymeDisease.org
Principal Investigator, MyLymeData
A data-driven approach to optimizing clinical study eligibility criteria based on MyLymeData registry data
LDA Doctor Referral System © Terms & Conditions and Guidelines
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About LDA DOCTOR REFERRAL SYSTEM ©
Welcome to the Lyme Disease Association’s LDA Doctor Referral System ©. LDA made updates and enhancements to its prior system and has launched a new site to provide patients with information about doctors, other practitioners, testing labs, and pharmacies that are knowledgeable about chronic Lyme disease and often about many other tick-borne diseases (TBD). Many of the doctors listed are often referred to as Lyme Literate Physicians/Doctors (LLMD). Tens of thousands of patients have successfully used the prior LDA system to locate Lyme and TBD resources.
Terms & Conditions and Guidelines
Because there is a negative political climate surrounding Lyme disease, many LLMDs do not want their names posted outright on the internet. LDA has tried to balance the doctors’ wishes with patients’ need to find a doctor. This new system is a result of that compromise and therefore:
Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines, Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the LDA Doctor Referral System © contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the location entered and specaialty/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of so we can investigate.
Some providers may not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. Contact the provider to confirm.
It is your responsibility to contact the provider’s office to confirm the current address, directions, nature of services provided, and all other provider information before you make an appointment.
DISCLAIMER: The Lyme Disease Association, Inc. provides referrals to health care providers who treat Lyme disease, and often other TBD, as a courtesy to those seeking Lyme Literate Physicians (LLMD). However, some of the providers included do not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. We do not evaluate the professional competence or qualifications of health care providers on our referral list or the costs of services provided. Accordingly, the LDA neither warrants nor endorses the health care providers contained on this list nor the quality of care you will receive from those providers. We do not make recommendations, only referrals. LDA does not receive any monies from physicians to be included on this list nor does LDA provide any monies to physicians. Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines: Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the Doctor Referral System contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the zip code entered and category/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of.
LDA does not accept or reply to any comments on:
We cannot guarantee that the information provided will be timely and accurate or that physicians on the list are accepting new patients, or that they accept insurance. The selection of a physician should be made by you after careful consideration. There are two approaches in the treatment of Lyme disease. Our list contains physicians who generally follow more flexible treatment approaches than those advocated by the Infectious Diseases Society of America (IDSA). LDA is not responsible for incorrect information on the website. BEFORE DOCTOR VISIT: Please contact the physicians’ offices directly to confirm their current address, directions, and any other necessary information before scheduling an appointment. Do not rely only on the maps provided on this site. The maps on LDA’s Doctor Referral System are for informational purposes and provide an approximate locality of the listing based on the addresses we are provided with at the time of site updates. Practitioners often relocate and addresses can change. Notification of changes in listed information can be updated on our Dr. Referral Contact Form. Thank you, Lyme Disease Association, Inc. (LDA)
Subscriber information will not be shared outside of the Lyme Disease Association, Inc. nor used for donor solicitation.
The Lyme Disease Association, Inc. reserves the right to unsubscribe anyone from this service without cause.