Wishing you good times, good cheer, a healthy New Year!
All of us at the Lyme Disease Association (LDA) thank you for your support in 2018.
Let’s continue to work together in 2019 to find a cure.
Lyme Disease Association: Volunteers in Action—Stop Lyme
12/30/2018
When Deciding on Year End Giving,
Check out Lyme Disease Association Inc.
How long has it been in existence?
LDA since 1991
What % of income goes directly to programs?
LDA approximately 96%
Does it provide a list of its accomplishments?
LDA website lists research grants, peer review science supported by LDA that has been published in 48 journal articles, educational grants, LymeAid 4 Kids grants, support for legislative issues, education conferences including 19 CME conferences for physicians/researchers, printed brochures mailed for postage only, doctor referral, school issues, annually updated mapsand graphson the spread of Lyme disease, and other free material and videos.
Does its programs accomplish what is necessary for patients?
LDA programs provide monies for research, education, prevention, and patient support including advocacy.
Is its information reliable?
LDA has been a national member of the Combined Federal Campaign for 13 years (#11424), a Guidestar gold member, and a 10-year partner in the Environmental Protection Agency’s Pesticide Environmental Stewardship Program to reduce the potential health and environmental risks associated with pests (ticks) and pesticide use.
In 2018, LDA had its funded research published in two more scientific journals, bringing its total to 48 journal articles which contain research supported by LDA. Drs. Keilp, Fallon, et al, published Neurocognition in Post-Treatment Lyme Disease & Major Depressive
LDA provided 3 new research grants in 2018: Effie E. Bastounis, PhD, University of Washington; Nicole Chinnici, Lab Director, Northeast Wildlife DNA Laboratory (Pike County Commissioners-PA); and Christine Ann Denny, PhD, Columbia University.
Photo: Longicornis tick, also know as longhorn tick. Thanks to J. Occi, Rutgers
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LDA 19th Annual Continuing Medical Education (CME) Scientific Conference for Physicians & Researchers Jointly sponsored in Providence, Rhode Island, by Columbia University, 22 conference faculty presented to doctor/researcher attendees from across the US. LDA provided conference scholarships to medical students/others. Steven & Alexandra Cohen Foundation and IgeneX Labs provided support for the conference.LDA Conference
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LymeAid 4 Kids Fund(LA4K) Since 2004 program inception, LDA has awarded $345,400 to families for children to get diagnosed/treated for Lyme & tick-borne diseases. In 2018, LDA awarded $7,000 in funds, and now we ask your help to provide more funds for our children. Author Amy Tan, herself a Lyme patient, helped LDA initiate and has supported the fund. LA4K
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Education & Scholarship Grants LDA has provided 203 education & conference scholarship grants to date. In 2018, LDA awarded education grants to the Colorado Tick-Borne Diseases Awareness Association’s 3rd Rocky Mountain Lyme Forum; the 4th Midcoast Maine Lyme conference for the public; to Lyme Association of Greater Kansas City; Lyme West NY; VTLyme.org; and NE Ohio Lyme Foundation. Education Grants
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Distribution of LDA Brochures/LiteratureThe LDA has provided ~2.75 million pieces of literature to the general public, officials, doctors and other health care providers, schools, the military, corporations. This program is accomplished through website orders, distribution at events, and through the LDAnet umbrella network organized by LDA, which has over 44 groups nationwide participating. Most literature is free (LymeR PrimerTM, ABCs of Lyme DiseaseTM, TickCardTM) except for mailing charge. LDA Brochures
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Automatic Doctor Referral The LDA maintains a national online doctor referral for Lyme literate physicians. Tens of thousands of members of the public have used the free service. Doctor Referral
LDA President
was selected as a public member by Health & Human Services (HHS) on the first Tick-Borne Disease Working Group, which just produced the first report to Congress
was invited participant by HHS at the first Lyme Innovations DC meeting to bring together diverse groups to help government solve the problems associated with Lyme disease.
serves as a member of the Department of Defense Congressionally Directed Medical Research Programmatic Panel which awards research grants on tick-borne diseases
