Lorraine Johnson, JD, MBA

Patricia V. Smith, BA 2023 Conf.
Chief Executive Officer,
Principal Investigator, MyLymeData

A data-driven approach to optimizing clinical study eligibility criteria based on MyLymeData registry data


Lorraine Johnson, JD, MBA, is the Chief Executive Officer of and the principal investigator of its patient registry, MyLymeData, which has enrolled over 17,000 patients. She has published over 50 peer reviewed articles on Lyme disease and patient centered healthcare, including five big data patient driven research studies.
She has served on five federal advisory committees related to big data, patient centered research, and patient registries. She also sat on both the Steering Committee and the Executive Committee of PCORnet, the big-data project of the Patient Centered Outcomes Research Institute. She participated in the White House Precision Medicine Summit. She has presented extensively at professional, medical, and governmental conferences including the Cochrane Colloquium, the National Academies of Science, Engineering and Medicine, the American Association for the Advancement of Science, the NIH Collaboratory, the NIH Science of Team Science Conference, and the Society to Improve Diagnostics in Medicine


2023 Scientific Conference Jointly Provided by
LDA Columbia CME Conference Logo

This 2023 Scientific Conference is supported by independent educational grants from

IGeneX, Inc.