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TBDWG Mtg 12: Public Comments (Video)
At the start of the second day of the HHS Tick-Borne Disease Working Group meeting in Philadelphia on March 4, 2020, nine Lyme disease advocates and patients who preregistered either called in or were present at the meeting in person to provide public comments. Their input was invaluable and helped Working Group members appreciate issues of concern throughout the country.
TBD Working Group Committee Members / Meeting #12 Agenda / LDA Written Summary of Meeting
Full Video: March 3rd – Day 1 / March 4th – Day 2
Other Video Clips: Training, Education, Access to Care / Dr. Donta, MD & Other
Public Comments: Day 2, March 4th
Lonnie Markham, LDO: Tick Attachment Time
1:41:57 to 1:44:42
6117 to 6282
Dorothy Leland, VP LDO: Process Integrity
1:52:05 to 1:55:17
6725 to 6917
Mark Liberto: Patient Story
1:55:18 to 1:59:11
6918 to 7151
Phyllis Mervine, President LDO: 2 Standards of Care
1:59:14 to 2:02:39
7154 to 7359
Melissa Potter, LDO: Patient Registry-MyLymeData
2:02:40 to 2:05:39
7360 to 7539
Dr. Betty Maloney: CDC Treatment Recommendations
2:05:40 to 2:08:47
7540 to 7727
Mira Shapiro, LDO: Big Data Research
2:08:49 to 2:11:55
7729 to 7915
Jennifer Platt,TBC United: Alpha-gal & lesser known conditions
2:11:55 to 2:15:04
7915 to 8104
Jill Auerbach, HVLDA: Prevention Emergency
2:15:05 to 2:18:01
8105 to 8281