1

Peconic Bay Fishing Tournament Benefit Reels in Monies for Lyme Research

On June 12, 2010, the first annual Peconic Bay Fishing Tournament was held in New York as a benefit to raise monies and awareness for the Lyme Disease Association research programs. Event host Mike Cirrito was able to pull in many sponsors and over 200 fisherman registered to try for the $1,000 first prize or one of the TVs. Stripers, blue fish and fluke were weighed in by volunteers and a barbecue followed the all day event.  




Congressman Smith Hosted Lyme Forum

Announcement From the Office of Congressman Chris Smith Save the Date
Congressman Christopher Smith (4-NJ) is hosting a Congressional Lyme Disease Forum in Wall Township, New Jersey, on June 2, 2010, 7PM, at the Wall Township Municipal Building. The panel of speakers includes renowned Lyme disease experts Dr. Nick Harris, IGeneX Labs, an authority on testing for tick-borne diseases, and Dr. Joseph Burrascano, recognized internationally for his guidelines on Lyme disease treatment. Other speakers will include (pending Army approval) tick expert Dr. Ellen Stromdahl, entomologist, U.S. Army CHPPM, who will discuss what species of ticks are found, where and what organisms are being found in ticks, and Pat Smith., president, of the national Lyme Disease Association.

Congressman Chris Smith Reports Home Summer 2010 Newsletter – Summary of Lyme Disease Forum

LDA Update after the Event

About 350 people showed up, spilling out into the hallways, at the Wall Municipal Buidling to hear the speakers and to ask questions. The program lasted from 7PM until almost 11PM, when it was stopped due to the lateness of the hour. A young man with Lyme, Myles Hutcherson, opened the program with a talk about how Lyme has affected his life and the obstacles he has had to overcome. He is 10 years old. LDA President Pat Smith followed with the spread of Lyme disease and the reasons patients are unable to get diagnosis and treatment and this is why legislation is being sought. Dr. Stromdahl spoke about the work of the US Army Public Health Service (formerly US Army CHPPM) which has a tick collection program for armed forces members and their dependents. Dr. Nick Harris presented a comprehensive program on the testing for Lyme disease and why some of the problems exist with current tests and interpretations. Dr. Joseph Burrascano closed the program with a powerpoint on diagnosing and treating Lyme disease and on the many co-infections. The forum shows the extent of the problem in the region.




Minnesota Lyme Action Support Walk/Run

Join us for the 4th annual 5K Walk/Run, May 22, 2010,  to Raise Awareness and Fund Educational Programs of Minnesota Lyme Action Support Group. This year’s 5K will be held at Running Aces Harness Park, on a groomed oval track of crushed limestone.  On-site registration begins at 10:00 am., with the 5K starting at 11:00 am. Go to www.mlasg.com for details




Rumson (NJ) Forrestdale PTO Presents Lyme Disease Event

The Rumson PTO Friends of Different Learners Presented A Screening of Under Our Skin on May 19, 2010, at the Forrestdale School in Rumson, NJ. LDA President Pat Smith gave an opening Powerpoint presentation with a question and answer period prior to the movie to an audience of parents and educators and the general public




University of New Haven Lyme Disease Symposium

 

On May 8, 2010, the University of New Haven hosted its 4th Lyme Disease Symposium, chaired by Dr Eva Sapi.  Researcher Dr. Alan MacDonald was honored at the all day event which was moderated by Sandy Berenbaum, LCSW, BCD. LDA President Pat Smith presented “A National Overview of Lyme Disease & Its Impact on Children, Families & Schools.”  (The video will be available free here soon.)

 




VA Dept. of Health: Lyme Advisory to Dr.’s

Citing the increased number of cases of Lyme disease, the VA State Health Commissioner has issued an advisory to doctors asking them to be vigilant for Lyme, report their cases of Lyme disease, and stress prevention to their patients.

Click here for full Advisory




West Milford NJ Health Department Hosts Lyme Disease Talk

 

On April 15, 2010, Lyme Disease Association President Pat Smith spoke at the Elks Club in West Milford, NJ to the general public at a free Lyme disease talk sponsored by the Health Department. Her Powerpoint, entitled Lyme & Other Tick-Borne Diseases, focused on the epidemiology and an overview of the disease and of the types of ticks spreading different tick-borne diseases, especially in this very rural area of New Jersey.

 




LDA 3rd Annual Spotlight on Lyme©

FOR IMMEDIATE RELEASE

 LDA Announces 3rd Annual Spotlight on Lyme©
April 2010, Little Silver – The Lyme Disease Association (LDA) announces the 3rd annual “Spotlight on Lyme” Lyme disease awareness 5K run/walk, which will take place on Sunday, May 23, 2010 at Pier Village in Long Branch, NJ. The proceeds from this fun filled, family oriented event will be used to fund the research and education projects of the national Lyme Disease Association (LDA). 
Check-in begins at 9:00 am with a 10:00 am start time for the 5K. The day will also feature games, face painting, prizes, and food. Register by April 23 to receive a t-shirt and pay $25 to register adults and $15 for children age 13 and under. After April 23, the registration fee is $30 for adults and $20 for children. The walk is open to all ages. The run is for ages 10 and up. After the event, families can stay and enjoy the nearby beaches and shopping opportunities.
Trophies will be given to the top male and female finishers. Prizes will also be awarded to the highest fundraisers. Runners and walkers are encouraged to obtain pledges to benefit the LDA.   Pledge forms, registration forms and on-line registration are available at www.lymediseaseassociation.org.  
Kim Cronin, the Spotlight Chair, is a Little Silver resident and advocate who conceived of the Spotlight idea in 2007 after struggling with misdiagnosis of the disease for nearly a decade. “This debilitating disease often goes unrecognized,” said Cronin. “It can affect every system in the body and can be misdiagnosed as multiple sclerosis, ALS, lupus, chronic fatigue, fibromyalgia, and Alzheimer’s or Parkinson’s disease. To complicate matters, lab tests for Lyme disease are not reliable. You can test negative and still have the disease.”
Pat Smith, LDA president, cited a 5% increase in Lyme case numbers nationally and New Jersey ranking number four nationwide in cases as reasons this event needs to be broadly supported, and highlighted its Monmouth County venue, since the county ranked fifth in case numbers in New Jersey in 2008. She also mentioned that the Centers for Disease Control and Prevention reports children 5-14 are at the greatest risk of acquiring Lyme disease.
In organizing the Spotlight on Lyme fundraiser, Cronin hopes the benefits of the event will be twofold: not only raising money for the LDA, which provides grants to Lyme disease researchers, produces educational materials, and organizes educational forums, but also to spread awareness, locally, on the warning signs of what is often called the “great imitator”.
Cronin said, “May has traditionally been National Lyme Disease Awareness Month.We’re trying to raise awareness and dispel old, and often misunderstood information; for instance, many people don’t know a rash does not always occur with Lyme disease and that symptoms may appear days or months after a tick bite.”
The Spotlight on Lyme committee is currently seeking event sponsors with opportunities for signage, webpage, and t-shirt recognition.
For more information or questions please email SpotlightOnLyme@gmail.com.
The New Jersey-based Lyme Disease Association is an all-volunteer national nonprofit, 501 (c) (3), dedicated to Lyme disease education, prevention, raising monies for research, and patient support. Over 96% of all its funds are used for programs.
 
Press Contacts:
Run/walk information:
Kim Cronin, Walk Chair SpotlightOnLyme@gmail.com
Lyme disease information:
Pat Smith, President, LDA Lymeliter@aol.com     



Phi Sigma Sigma InterNational Sorority, Montclair U Announces Benefit for LDA

Phi Sigma Sigma Inter-National Sorority of Montclair State University (NJ) Presents an informative presentation on Lyme Disease & Other Tick Borne Infections: Lyme Disease – Children & Education, on Wednesday, April 7, 2010, 8:15 to 9:30 PM with guest speaker Kim Uffleman, Officer of the  LDA’s Board of Directors, at Montclair State University, University Hall, Room 1070 Montclair, New Jersey. Free admission and open to the public. Money raised by Phi Sigma Sigma during this event will be donated to the LymeAid 4 Kids Fund!

 




California Lyme Disease Association Announces Conference

Sign up now! CALDA is an LDA affiliate.

http://www.lymedisease.org/news/lyme_disease_events/352.html

LDA Update

The CALDA patient conference was very successful with about 200 registrants becoming educated about diagnosis and treatment of Lyme disease.