Severe Fever with Thrombocytopenia Syndrome (SFTS) cases first appeared in April 2020 in China and since then, 37 more cases have occurred in Jiangsu and 23 in Anhui Provinces in China. SFTS is a haemorrhagic fever transmitted by the Haemaphysalis longicornis tick (Asian longhorned tick). The disease spreads rapidly and has a high fatality rate […]
News from Congressman Chris Smith website: The House of Representatives passed an amendment authored by Rep. Chris Smith (R-NJ) which increases Lyme disease research funding by $4 million, for a total of $20 million, at the Centers for Disease Control and Prevention (CDC) for fiscal year 2021. The amendment, which passed July 30th, has been […]
Co-Chair: “Persistent Lyme Religious Belief”/Lyme $$$ Amendments/ Tick Biowarfare Investigation Passes House/WNBA Denies Lyme-Covid Exemption/LDA’s New Spanish LymeR Primer/Lyme Vaccine Phase 2 Results/Asian Longhorned Tick Increases
Persistent Infection a Religious Belief? Working Group Co-Chair Says – YES! At the meeting itself, Working Group Co-Chair, Dr. David Walker, and Member Eugene Shapiro made and seconded many motions to remove material from the proposed draft report including the two sets of guidelines, shared decision making, access to care, Lyme treatment trials, and cost of Lyme disease.
These pictures of the Haemaphysalis longicornis (Asian longhorned) were taken recently by LDA’s Scientific & Professional Advisory Board member James L. Occi, Rutgers, in Bergen County NJ. The invasive tick was first discovered on a NJ farm on a sheep in 2017. The tick probably came from Asia, where it is able to transmit diseases […]
In a complex government process, the Tick Act–a bill that provides funding for Vector-Borne Diseases including Lyme – was not fully funded according to the Committee report on HHS. The Committee report has 16M for Lyme and 38M for vector-borne diseases. (NOTE: as LDA has mentioned in prior information on the Tick Act, it is […]
Update: The Bill and passed amendments such as this one (below) has now moved to the conference committee where the House and Senate will work to decide what language goes into the final product. The LDA provided input into the amendment language and has been working to get Senators to champion the inclusion of this GAO Investigation Amendment into the final bill.
Valneva announced that the vaccine candidate against Lyme disease, VLA15-201, showed positive initial results meeting its endpoints in the Phase 2 study. They stated in the July 22, 2020 press release that “compared to Phase 1, the higher doses used in this trial elicited higher antibody responses across all serotypes.” Of particular note was the […]
From LDA President Pat Smith’s Blog: What has happened to one of the best Women’s National Basketball Association (WNBA) players is no surprise to the Lyme Disease Association or hundreds of thousands of chronic Lyme patients like Elena Delle Donne, of the Mystics, who has battled Lyme disease for years. She has been denied by the WNBA league’s panel of physicians as having a health exemption due to being at high risk for COVID 19, thus unable to be paid for exemption status if she does not play the upcoming season.
Pat Smith Describes Pre-Meeting Effort to Minimize Lyme. Below in For the Record are the written comments LDA President Pat Smith, a public member of HHS TBD Working Group read (slightly compressed) into the record at the Working Group (WG) meeting on July 8 about the potential WG Chapter report for which she was responsible, […]
Working Group to Discuss Lyme Patient Issues/Goodbye Dr. Spector/Claims Show 94% Lyme/Lyme & AFib/Rickettsia in NJ Ticks
LDA Campaign: Patient Access to Care. Our government denies persistent (chronic) Lyme and refuses to acknowledge and help those patients. LDA requested the public submit comments about the existence and importance of persistent (chronic) Lyme. How it affects their life, family, job, school, and doctors. We are pleased to report this campaign was successful and thanks to the many who took action and responded.