LymeAid 4 Kids Provided $383,000 in Grants Since 2004

About LymeAid 4 Kids (LA4K) – The Lyme Disease Association started LA4K fund in 2003 and has helped children all over the U.S. and in Canada. Developed with the help of author Amy Tan, the fund is for children who do not have/receive insurance coverage for Lyme disease treatment for children and have economic difficulties. Donations can be made on-line to LDA help this LA4K fund as there are so many applicants, the fund does run out of money frequently. Click here for application

LymeAid4Kids Logo2014Small

 

 

Total Funds distributed since 2004 totals $383,000

 

 

 

In 2019, 38 applicants were awarded grants for a total of $38,000:
1 California
2 Connecticut
1 Florida
1 Idaho
8 MD
1 NY
23 PA
1 VA

In 2018, 7 applicants were awarded grants for a total of $7000:
1 Pennsylvania
2 Maryland
1 North Carolina
1 Tennessee
2 Mississippi

In 2017, 18 applicants were awarded grants for a total of $17,400:
4 Oregon
5 Connecticut
1 New York
1 Pennsylvania
4 Maryland
1 Indiana
1 Kansas
1 Idaho

In 2016, 45 applicants were awarded grants for a total of $45,000:
6 New York
2 Ohio
2 Oregon
1 Texas
5 California
1 Illinois
2 North Carolina
1 Michigan
1 Mississippi
2 Tennessee
5 New Jersey
7 Virginia
4 Pennsylvania
3 Massachusetts
1 Maine
1 Connecticut
1 Florida

In 2015, 26 applicants were awarded grants for a total of $26,000:
6 Maine
4 Ohio
1 Connecticut
1 Michigan
2 Washington
2 New York
1 Illinois
1 North Carolina
3 Indiana
1 California
1 Oklahoma
3 Oregon

 

In 2014, 9 applicants were awarded grants for a total of $9000:
1 Texas
1 Washington
1 Wisconson
1 Maryland
1 Illinois
2 Connecticut
1 New York
1 California

 

In 2013, 11 applicants were awarded grants for a total of $9,000:
5 California
1 New Jersey
2 New York
1 Wisconsin

In 2012, 11 applicants were awarded grants for a total of $11,000:
3 Idaho
1 Illinois
1 Iowa
2 New York
1 Massachusetts
1 Tennessee
1 Wisconsin
1 Florida

In 2011, 35 applicants were awarded grants for a total of $35,000:
1 British Columbia
3 California
2 Connecticut
2 Georgia
5 Iowa
4 Illinois
2 Massachusetts
2 Missouri
1 New Hampshire
4 New Jersey
1 New York
3 Ohio
2 Pennsylvania
1 Rhode Island
1 Texas
1 Washington

In 2010, 29 applicants were awarded grants for a total of $29,000:
3 California for a total of $3,000
5 Connecticut for a total of $5,000
1 Georgia for a total of $1,000
3 Illinois for a total of $3,000
1 Maine for a total of $1,000
1 Missouri for a total of $1,000
2 New Hampshire for a total of $2,000
3 New Jersey for a total of $3,000
4 New York for a total of $4,000
1 Pennsylvania for a total of $1,000
1 Rhode Island for a total of $1,000
1 South Carolina for a total of $1,000
3 Virginia for a total of $3,000

In 2009, 20 applicants were awarded grants for a total of $20,000:
4 Connecticut for a total of $4,000
3 Massachusetts for a total of $3,000
1 Rhode Island for a total of $1,000
2 New Jersey for a total of $2,000
2 California for a total of $2,000
2 New York for a total of $2,000
3 Pennsylvania for a total of $3,000
2 Nevada for a total of $2,000
1 British Columbia for a total of $1,000 

In 2008, 36 applicants were awarded grants for a total of $36,000:
1 Ohio for a total of $1,000
1 Rhode Island for a total of $1,000
1 Maine for a total of $1,000
3 Massachusetts for a total of $3,000
6 New York for a total of $6,000
1 Tennessee for a total of $1,000
2 California for a total of $2,000
2 Pennsylvania for a total of $2,000
4 Connecticut for a total of $4,000
1 Florida for a total of $1,000
4 Kansas for a total of $4,000
1 New Hampshire for a total of $1,000
4 Texas for a total of $4,000
3 Georgia for a total of $3,000
2 New Jersey for a total of $2,000

In 2007, 45 applicants were awarded grants for a total of $45,000:
1 California for a total of $1,000
6 Connecticut for a total of $6,000 
1 Florida for a total of $1,000
2 Georgia for a total of $2,000
4 Illinois for a total of $4,000
3 Indiana for a total of $3,000
1 Iowa for a total of $1,000
2 Massachusetts for a total of $2,000* 
3 New Hampshire for a total of $3,000 
1 New Mexico for a total of $1,000 
5 New York for a total of $5,000
2 Ohio for a total of $2,000
8 Pennsylvania for a total of $8,000
1 Rhode Island for a total of $1,000
1 Texas for a total of $1,000 
1 West Virginia for a total of $1,000 
1 Wisconsin for a total of $1,000
2 Canada, (have US doctors) for a total of $2,000

*$780 of this total was not used and returned to the fund

In 2006,19 applicants were awarded grants for a total of $19,000:
1 Connecticut for a total of $1,000 
3 Pennsylvania for a total of $3,000 
8 Massachusetts for a total of $8,000 
3 New York for a total of $3,000
1 California for a total of $1,000
1 Arizona for a total of $1,000
1 Maryland for a total of $1,000
1 Illinois for a total of $1,000 

In 2005, 28 applicants were awarded grants for a total of $28,000: 
2 Rhode Island for a total of $2,000
1 Texas for a total of $1,000
2 New Jersey for a total of $2,000
1 Maine for a total of $1,000
6 California for a total of $6,000
3 Massachusetts for a total of $3,000
5 Connecticut for a total of $5,000
2 New York for a total of $2,000
4 Pennsylvania for a total of $4,000
2 Canada (have US doctors) for a total of $2,000

In 2004, 9 applicants were awarded grants for a total of $9,000: 
1 West Virginia for a total of $1,000
3 Texas for a total of $3,000
2 Connecticut for a total of $2,000
1 Massachusetts for a total of $1,000
1 Illinois for a total of $1,000
1 North Carolina for a total of $1,000

For more information on LymeAid 4 Kids click here




LymeAid 4 Kids: Lyme Disease Association & Amy Tan, Partners

Amy Tan Lyme disease organizations to donate toInternationally acclaimed author Amy Tan said the following this week to LDA in continued support of its LymeAid 4 Kids fund “My heart goes out to undiagnosed children who face not only the painful and debilitating effects of this disease but are at risk for a lifetime of poor self-esteem.” Ms. Tan, herself a victim of chronic Lyme disease with neurologic symptoms, approached the LDA in 2003.

LymeAid 4 Kids Logo Lyme Disease Association, Inc. 2014 SmallInternationally acclaimed author Amy Tan said the following this week to Lyme Disease Association (LDA) in continued support of its LymeAid 4 Kids fund “My heart goes out to undiagnosed children who face not only the painful and debilitating effects of this disease but are at risk for a lifetime of poor self-esteem.” Ms. Tan, herself a victim of chronic Lyme disease with neurologic symptoms, approached the LDA in 2003. Recognized that an early diagnosis and proper early treatment may prevent patients from developing the serious manifestations which often result from chronic Lyme disease, she wanted to stop children from developing chronic Lyme and wanted the LDA to set up a fund for children seeking diagnosis and Lyme treatment.Pat Smith Amy Tan Lyme Aid 4 Kids Lyme disease organizations to donate toAuthor, Amy Tan & LDA President,   Pat Smith at the Lyme Disease Association/Columbia Conference 2008 in San Francisco, California

We worked together with the LDA attorney and a Lyme literate physicians to devise a fund which we named LymeAid 4 Kids (LA4K). We announced the fund’s creation with Amy Tan at the LDA/Columbia 2003 Philadelphia Lyme & Tick-Borne Diseases scientific conference. She presented the initial check on stage to the LDA President.

Thanks to continued support from Ms. Tan and from people like you, since that time, the LDA has awarded $338,400, including $45,000 in 2016, for children from states all across the country, enabling children whose families face financial hardship to begin the process of a Lyme diagnosis and Lyme treatment.

amy tan lyme front linkIn 2015, according to CDC statistics, almost 400,000 new cases of Lyme occurred in the US. Children ages 5-9, 10-14 are at the highest risk of acquiring the disease, and the LDA has calculated that 30% of CDC reported Lyme cases are children ages 0-19, with 5% of the cases children ages 0-5. These are children who struggle every day to get out of bed, to shower or bathe, to do school work. Sometimes, children with chronic Lyme are unable to do one or more of those things for weeks, month, or years of their lives. Many grow up not remembering a time they were well and were unable to have friends, to play, or to attend school due to their Lyme disease symptoms.

The fund is almost depleted. LA4K applications to help our children continue to arrive. Your help is needed now; your donations of any amount are welcome. Join us in our fight to provide an early diagnosis and early treatment for the hundreds of thousands of children afflicted with this debilitating disease. Together, we can help prevent children across the United States of America from living The Eternal Nightmare.

                                                                                                                                                                 Click on Video Below

The Eternal Nightmare
We stand here…and wonder
why it is dark,
A haze covers our lives,
severing us from the world.
We search, grasp—there’s nothing to support us.
No longer do we laugh; we only cry grown up tears.
Our childhood is shattered, our souls stung and wounded.
Will sun rays ever reach
the children with Lyme?

This poem, written by a teen who had chronic Lyme & seizures, paints the bleak picture children who develop chronic Lyme often face. Together, author Amy Tan and the Lyme Disease Association (LDA) have worked to bring those “sun rays” to the children of Lyme.

Click here to read in East Brunswick Sentinel News: How a child helps other children with Lyme disease

 




LA4K Benefit by DE 87ers Basketball 2/17/15

 2015 delaware87ersheading

DELAWARE 87ERS, LYMEAID 4 KIDS PARTNER FOR SECOND SEASON
– Sevens, Delle Donne and University of Delaware College of Health Sciences to host LymeAid 4 Kids night –

NEWARK, DE – Feb. 13, 2015 – The Delaware 87ers today announced LymeAid 4 Kids night, presented by the University of Delaware College of Health Sciences, on Tuesday, Feb. 17 at the Bob Carpenter Center “The Bob.” Link to The Bob

The national non-profit Lyme Disease Association’s LymeAid 4 Kids fund raises monies for families who are struggling to pay for Lyme diagnosis and treatment, due to lack of insurance coverage for Lyme and financial hardship. The LDA has given out over $250,000 to help kids.
2015 delaware87ers
The 87ers will host the Westchester Knicks on Tuesday in an NBA Development League Atlantic Division contest. That night, the Sevens will wear special lime green shooting shirts that feature the LymeAid 4 Kids logo on the front, and the University of Delaware College of Health Sciences logo on the back. Each shooting shirt will be available for purchase via an auction at the game.

In partnership with the Lyme Disease Association, WNBA All-Star and Delaware 87ers goodwill ambassador Elena Delle Donne will make an appearance at the game, as the Sevens will host a number of activities featuring the former University of Delaware star.

The first 500 fans in attendance will receive a Rally Rag courtesy of University of Delaware College of Health Sciences. Before the game, Delle Donne will host a VIP event in the Club for Courtside Seat Holders. From the second quarter through halftime, the former Blue Hen basketball star will be signing autographs for $10, with all proceeds benefitting LymeAid 4 Kids. At halftime, the 87ers will draw a random lucky seat, and the winner will be upgraded to sit courtside next to Delle Donne for the duration of the third quarter.

TICKET INFORMATION

For tickets, please visit www.sevens.com/promo and ender the code LYMEAID, or call the 87ers office and speak to a representative at 302-504-7587.

About the Delaware 87ers
The Delaware 87ers of the National Basketball Association Development League (NBADL) were relocated to America’s first state in 2013 and named to commemorate the year in which Delaware ratified the U.S. Constitution, 1787. The Sevens are the NBADL affiliate of the NBA’s Philadelphia 76ers and are owned by the Sixers. The 87ers play at the University of Delaware’s Bob Carpenter Center in Newark, DE.

About the NBA Development League
The NBA Development League is the NBA’s official minor league, preparing players, coaches, officials, trainers, and front-office staff for the NBA while acting as the league’s research and development laboratory. Featuring 18 teams with direct affiliations with NBA franchises for the 2014-15 season, the league offers elite professional basketball at an affordable price in a fun, family-friendly atmosphere. An all-time high 26 percent of all NBA players at the start of the 2014-15 season boasted NBA D-League experience. In fostering the league’s connection to the community, its teams, players and staff promote health and wellness, support local needs and interests, and assist in educational development through NBA D-League Cares programs. Fans can watch all NBA D-League games on nbadleague.com.

# # #

DELAWARE 87ERS PUBLIC RELATIONS
302-351-5377  87ersPR@sevens.com
________________________________________
Andrew Dzurita
PUBLIC RELATIONS
MANAGER
andrewdzurita@sevens.com




LDA Money Available For Unisured Kids

LymeAid4KidsCrpThe “new” Lyme numbers from Centers for Disease Control & Prevention (CDC), an estimated 300,000 Lyme cases annually, only scratch the surface of Lyme’s impact. The numbers are really not new but confirmation that Lyme is vastly underreported to CDC by a factor of 10─figures that are probably not inclusive of most people who are clinically diagnosed by their doctor and do not meet strict CDC surveillance criteria─ often used by insurers to deny Lyme treatment. The 300,000 cases bring us closer to actual numbers, valuable to gain attention, but not to conveying real suffering of Lyme patients, especially children.

According to LDA President Pat Smith, “Based on CDC’s Lyme reported case numbers, LDA found that 37% of reported cases are children. Thus from 1990-2011, adjusted for underreporting, 1,590,449 children have developed Lyme. More children were probably clinically diagnosed and not included in that figure─ children who often develop chronic Lyme.”

According to a new Columbia University Lyme study, based upon 10-fold underreporting and on 10% of newly infected and treated patients developing symptoms that persist for more than 6 months, “the actual incidence of new chronic cases (PTLS) is…30,000” annually─ many of them children, who often miss months/years of school and have their childhood destroyed. Showering, walking, talking, thinking can be a problem, and serious pain is a daily challenge.

honorary amytanEarly diagnosis and treatment are crucial to prevent development of chronic Lyme, yet parents often lack insurance coverage. The LDA created its LymeAid 4 Kids fund in 2003 with support from author Amy Tan, who has Lyme. LDA has distributed almost $250,000, and thanks to generous donors, LDA still has monies available. Applications can be found on  www.LymeDiseaseAssociation.org.

In 1992, CDC presented findings of its study with NJ Department of Health on NJ school children with Lyme. According to Ms. Smith, then a board of education member, who worked with CDC to facilitate information gathering from school districts: “Of 64 students studied, CDC found the median duration of Lyme was 363 days; the mean number of total school days lost, 140; the mean duration of home instruction, 153 days; 78% of parents stated their children experienced grades decreasing during illness.”

Two Columbia studies of children with Lyme provide insight into children’s lives. One study documents 22-point improvement in IQ in a 16-year-old after IV treatment; another found children with Lyme had significantly more cognitive and psychiatric disturbances. Parents indicated 41% of children had suicidal thoughts; 11% made a suicide gesture. Cognitive deficits were found after controlling for anxiety, depression, fatigue. Lyme in children may be accompanied by long-term neuropsychiatric disturbances, resulting in psychosocial and academic impairments.

ABOUT THE LDA: An all-volunteer national nonprofit 501(c)3, dedicated to Lyme disease education, prevention, research, and patient support. LDA has been accepted into the Combined Federal Campaign 2013 as an approved national charity for Federal Workplace Giving. It’s a Guidestar.org exchange gold level member, recognized for transparency and is an Environmental Protection Agency PESP Partner. LDA offers its LymeAid-4-Kids assistance program and has funded over 93 research grants─ funded research has been published in 33 scientific journals. LDA has provided 14 annual Continuing Medical Education Lyme & Other Tick-Borne Diseases conferences for physicians and researchers.




Author Amy Tan Helps Create LymeAid 4 Kids

Lyme Disease Association’s (LDA) new fund, LymeAid 4 Kids (LA4K). The fund will provide monies for families who have no health coverage for their children, so they cannot get diagnosed or treated for Lyme disease. Up to $1,000 per child will be available to be applied for through the physician.

LDA created the fund in collaboration with internationally acclaimed, New York Times best-selling author Amy Tan, who is supporting it with book tour donations from her recent work, “The Opposite of Fate: A Book of Musings.” She includes a chapter on her fight against Lyme disease, including her difficulty in getting diagnosed. Ms. Tan opened the fund with a $20,000 donation at the LDA/Columbia Philadelphia medical conference, November 2003.

Link to video in Real Player

January 2004

LYMEAID 4 KIDS IS HERE! I hope you will read the enclosed material to determine if any of your patients is eligible to apply or if you know of anyone willing to donate to help children get diagnosed/treated for Lyme disease.

Thanks!  Pat Smith, President

Enclosed is a packet of material regarding Lyme Disease Association’s (LDA) new fund, LymeAid 4 Kids (LA4K).  The fund will provide monies for families who have no health coverage for their children, so they cannot get diagnosed or treated for Lyme disease.  Up to $1,000 per child will be available to be applied for through the physician.

LDA created the fund in collaboration with internationally acclaimed, New York Times best-selling author Amy Tan, who is supporting it with book tour donations from her recent work, “The Opposite of Fate: A Book of Musings.”  She includes a chapter on her fight against Lyme disease, including her difficulty in getting diagnosed. Ms. Tan opened the fund with a $20,000 donation at the LDA/Columbia Philadelphia medical conference, November 2003.

We hope that you will use the enclosed information to determine if you have a patient who is eligible for LA4K and to help the family apply for the monies.

Please display the LA4K notice in your office so that eligible families are aware of the fund.

Thank you for your cooperation.

P.S. Donations to the fund should be made payable to:

Lyme Disease Association, Inc.

PO Box 1438

Jackson, NJ  08527




Lyme Disease Association Announces LymeAid4Kids Fund with Support of NY Times Bestselling Author Amy Tan

Jackson, October 27, 2003––The Lyme Disease Association (LDA), a national non-profit organization dedicated to Lyme disease education, prevention, research, and patient support announced today the creation of LymeAid4Kids, a fund administered through the LDA and designed to be used by families with no insurance who need to have their children properly evaluated for possible Lyme disease.

Lyme Disease Association Announces LymeAid4Kids Fund with Support of NY Times Bestselling Author Amy Tan
Children without Insurance will Benefit

Jackson, October 27, 2003––The Lyme Disease Association (LDA), a national non-profit organization dedicated to Lyme disease education, prevention, research, and patient support announced today the creation of LymeAid4Kids, a fund administered through the LDA and designed to be used by families with no insurance who need to have their children properly evaluated for possible Lyme disease.


Internationally acclaimed author Amy Tan, whose books The Joy Luck Club, The Kitchen God’s Wife, and The Hundred Secret Senses have appeared on the New York Times Bestseller List, will support the fund through the proceeds from the speaking tour for her new book The Opposite of Fate: A Book of Musings, which reveals her own bout with Lyme disease in the final chapter. “We consider the creation of this formal fund, the first of its kind for Lyme disease, a beginning,” said LDA president Pat Smith, “and we hope that others will follow Ms. Tan’s lead with generous donations to the fund.”

Lyme, the most prevalent vector-borne disease in this country, often strikes children, who may lose years of school and their childhood due to its debilitating manifestations. Risky behavior may be as simple as petting the dog, playing outside, and even having a live Christmas tree. It is estimated that 10-15% of those who are diagnosed with Lyme go on to develop chronic disease, which may lodge in the central nervous system. Early diagnosis and appropriate treatment may prevent the development of chronic disease, one main reason for creation of this fund.

The fund will be administered by the LDA through individual treating physicians nationwide who agree to participate, and will provide up to $1,000 per child for evaluation including the visit, testing, and perhaps beginning treatment. “As the fund grows, the amount per child could increase to provide further services,” says Ms. Smith, whose own daughter missed four years of school due to chronic Lyme disease. “Right now, we need to address getting children properly diagnosed as early as possible.”

The LDA has funded a number of research projects coast to coast and with its Connecticut affiliate, Time for Lyme, is partnering with Columbia University to open an endowed chronic Lyme disease research center to be housed at Columbia, the first of its kind in the world. Studies from Columbia have highlighted cognitive deficits in children, causing them to develop learning disabilities, which fluctuate with the disease. One Columbia study funded by LDA, showed an increase in IQ of 22 points in a child with Lyme disease after treatment for the disease.

The LDA expects to have details of the LymeAid4Kids fund available for physicians and families on its website by the end of this year. www.LymeDiseaseAssociation.org. Tax deductible donations earmarked for the fund can be made payable to: Lyme Disease Association, Inc. and sent to: LDA P.O. Box 1438 Jackson, NJ 08527. Please note LymeAid4Kids on your check memo or letter.