Working Group Selects Sub-Committee Chairs/Cong. Smith Reports on Working Group

2017 chrisSmith patSmith confexhibThe Lyme Disease Association Inc. announces that the new HHS Tick-Borne Disease Working Group (TBDWG) has selected co-chairs from the TBDWG for its 6 newly formed sub-committees. LDA President Pat Smith will be co-chair the Disease Vectors, Surveillance and Prevention (includes epidemiology of tick-borne diseases) Subcommittee. The other co-chair is Dr. Ben Beard, Acting Deputy Director, Division of Vector-Borne Diseases. The co-chairs will work together to select members for their committee.

2017 chrisSmith patSmith confexhibCongressman Chris Smith & Pat Smith, LDA Pres.The ThTTTTTThe The Lyme Disease Association Inc. announces that the new HHS Tick-Borne Disease Working Group (TBDWG) has selected co-chairs from the TBDWG for its 6 newly formed sub-committees. LDA President Pat Smith will be co-chair the Disease Vectors, Surveillance and Prevention (includes epidemiology of tick-borne diseases) Subcommittee. The other co-chair is Dr. Ben Beard, Acting Deputy Director, Division of Vector-Borne Diseases. The co-chairs will work together to select members for their committee.

Reports from the subcommittees will be presented to the TBDWG for that group’s public deliberation. The Committees selected by the TBDWG and the newly designated chairs are as follows:

1. Disease Vectors, Surveillance and Prevention (includes epidemiology of tick-borne diseases). (Pat Smith/Ben Beard)

2. Pathogenesis, Transmission, and Treatment (Wendy Adams/Estelle Jones)

3.Testing & Diagnostics (includes lab-based diagnoses & clinical-diagnoses) (Lise Nigrovic/Vanila Singh/Designee)

4. Access to Care Services and Support to Patients (Karen Vanderhoof Forschner/Scott Cooper)

5. Vaccine and Therapeutics (Dennis Dixon/ Robert Smith)

6. Other Tick-Borne Diseases and Co-infections (Richard Horowitz/Allen Richards)

According to HHS, each subcommittee will be led by two subcommittee co-chairs. The co-chairs of each committee will work with the Working Group Chair, Vice Chair, the Designated Federal Official (DFO) and his alternate, and the other subcommittee co-chairs to align the work of the subcommittees with the goals and priorities of the Working Group and to conduct the work in a similar manner across subcommittees. It is expected that each subcommittee will have about 8-10 members, including two members who are members of the Working Group.

Congressman Christopher Smith Reports on HHS Working Group Creation & History
Congressman Chris Smith (NJ-4) has reported in his newsletter to his district on the working group formation and on the appointment of Pat Smith as a member of the working group. He includes a history of the process of getting legislation passed to create the TBDWG.

UPDATE: HHS has appointed a new member, Robert Smith, MD, MPH, for the Working Group to fill the vacancy left by Dr. Gary Wormser’s withdrawal.  New member Appointed to HHS Working Group

Related links

Congressman Chris Smith Newsletter Article on HHS Working Group

“A Golden Opportunity for Change on Chronic Lyme Disease” by Jerry Carino in Asbury Park Press

Videos of Meetings 1 and 2 of HHS Tick-Borne Disease Working Group

Transcripts, Agenda, and Videos of HHS Tick-Borne Disease Working Group Meetings 1 and 2

LDA President Appointed to HHS Tick-Borne Disease Working Group

HHS Working Group Sub Committee Chairs Currently Selecting Members

HHS Intentions on Tick-Borne Diseases Working Group Announced

 

 

 

 




Lyme Disease Association Announces that HHS Working Group Seeks Subcommittee Members

hhsThe new HHS Tick-Borne Disease Working Group (TBDWG) is seeking nominations from federal employees and members of the public who are interested in being considered for appointments to subcommittees being established to provide information for the TBDWG. Nominations will be accepted until midnight on January 7, 2018.

hhsThe new HHS Tick-Borne Disease Working Group (TBDWG) is seeking nominations from federal employees and members of the public who are interested in being considered for appointments to subcommittees being established to provide information for the TBDWG. Nominations will be accepted until midnight on January 7, 2018.

Reports from the subcommittees will be presented to the TBDWG for that group’s public deliberation. The Committees selected by the TBDWG are as follows:

1. Disease Vectors, Surveillance and Prevention (includes epidemiology of tick-borne diseases).

2. Pathogenesis, Transmission, and Treatment

3. Testing and Diagnostics (including laboratory-based diagnoses and clinical-diagnoses)

4. Access to Care Services and Support to Patients

5. Vaccine and Therapeutics

6. Other Tick-Borne Diseases and Co-infections

According to HHS, each subcommittee will be led by two subcommittee co-chairs. The co-chairs of each committee will work with the Working Group Chair, Vice Chair, the Designated Federal Official (DFO) and his alternate, and the other subcommittee co-chairs to align the work of the subcommittees with the goals and priorities of the Working Group and to conduct the work in a similar manner across subcommittees. It is expected that each subcommittee will have about 8-10 members, including two members who are members of the Working Group.

From HHS: Submission Process and Deadline Nominations will only be considered from two sources: (1) nominations that are submitted by persons who would like to serve on the subcommittee and (2) follow up with persons who previously submitted their names for consideration as members of the full Working Group. Persons who are interested in serving on a subcommittee are invited to nominate themselves by submitting an email with the necessary information from the HHS website to tickbornedisease@hhs.gov. Nominations will be accepted until midnight on January 2, 2018.

See HHS.gov and the Office of Assistant Secretary of Health for full details https://www.hhs.gov/ash/advisory-committees/tickbornedisease/notices/index.html

Related links

HHS Intentions on Tick-Borne Diseases Working Group Announced

LDA President Appointed to HHS Tick-Borne Disease Working Group

Videos of Meetings 1 and 2 of HHS Tick-Borne Disease Working Group

Transcripts, Agenda, and Videos of HHS Tick-Borne Disease Working Group Meetings 1 and 2

Congressman Chris Smith Newsletter Article on HHS Working Group

“A Golden Opportunity for Change on Chronic Lyme Disease” by Jerry Carino in Asbury Park Press




LDA President Appointed to HHS Tick-Borne Disease Working Group 

2017 PatSmithHHSswearinginThe Lyme Disease Association (LDA) reports that the U.S. Department of Health and Human Services announced on November 22, 2017, the appointment of 14 members, 7 federal and 7 non-federal, to the new HHS Tick-Borne Disease Working Group. Lyme Disease Association President Pat Smith was one of 7 non-federal appointees to the Working Group, which was established through passage of the 21st Century Cures legislation. The purpose of the Working Group is to review all HHS efforts related to tick-borne diseases to provide expertise and help ensure interagency coordination and minimize overlap, examine research priorities and identify unmet needs.

2017 HHSworkingGroup loSwearing In of HHS Working Group Members, including Pat Smith, LDA Pres. (5th from L)The Lyme Disease Association (LDA) reports that the U.S. Department of Health and Human Services announced on November 22, 2017, the appointment of 14 members, 7 federal and 7 non-federal, to the new HHS Tick-Borne Disease Working Group. Lyme Disease Association President Pat Smith was one of 7 non-federal appointees to the Working Group, which was established through passage of the 21st Century Cures legislation. 

The purpose of the Working Group is to review all HHS efforts related to tick-borne diseases to provide expertise and help ensure interagency coordination and minimize overlap, examine research priorities and identify unmet needs.

As per the establishing legislation, the Working Group consists of a diverse set of stakeholders, including physicians and other medical providers with experience in diagnosing and treating tick-borne diseases; scientists or researchers with expertise in this field; patients and family members; patient advocates2017 Pat Smith HHS Working Group swearing inPat Smith, LDA Pres. being sworn in to HHS TBDWG; and federal experts who work in related areas.

The Working Group will hold its inaugural public meetings on Dec. 11, 2017, from 12:30 p.m. to 4:30 p.m. ET, and Dec. 12, 2017, from 9:00 a.m. to 4:30 p.m. ET, in the Great Hall of the Hubert H. Humphrey Building, 200 Independence Avenue, S.W., Washington, D.C. 

Signup for public to attend the meeting in DC or online, by December 8 (click here

HHS press release on the Working Group (click here)

HHS Working Group Website (click here)

Videos of Meetings 1 and 2 of the HHS Tick-Borne Disease Working Group (click here)

Transcripts, Agenda, and Videos of HHS Tick-Borne Disease Working Group Meetings 1 and 2 (click here)

Congressman Chris Smith Newsletter Article on HHS Working Group (click here)

“A Golden Opportunity for Change on Chronic Lyme Disease” by Jerry Carino in Asbury Park Press (click here)




HHS Intentions on Tick-Borne Diseases Working Group Announced

LDAUSALogo original loThe Lyme Disease Association announced that early today, July 14, the US Department of Health & Human Services (HHS) released its intent to establish the Tick-Borne Disease (TBD) Working Group called for in Section 2062 of the 21st Century Cures Act. The working group will assist HHS in its efforts to conduct and support epidemiological, basic, translational and clinical research related to vector-borne diseases, including tick-borne diseases. The working group will function as a Federal Advisory Committee and its activities will be overseen by HHS’s Office of the Assistant Secretary for Health.

LDAUSALogo original loThe Lyme Disease Association announced that early today, July 14, the US Department of Health & Human Services (HHS) released its intent to establish the Tick-Borne Disease (TBD) Working Group called for in Section 2062 of the 21st Century Cures Act. The working group will assist HHS in its efforts to conduct and support epidemiological, basic, translational and clinical research related to vector-borne diseases, including tick-borne diseases. The working group will function as a Federal Advisory Committee and its activities will be overseen by HHS’s Office of the Assistant Secretary for Health.

Language to create the TBD Working Group was incorporated into the 21st Century Cures Act, thanks to the work of Congressman Chris Gibson, advocates, and Lyme Caucus Co-Chair Congressman Chris Smith who all carefully monitored the progress of the Lyme disease bill they supported that was introduced into the House in 2015 (HR 789 Gibson- NY). There was intense grassroots lobbying efforts to ensure the language in the bill was beneficial to patients. Subsequently, some of that language was incorporated into the 21st Century Cures Act passed by the House. The Senate, however, wanted to write its own Cures Act and weakened that Lyme language, and the Lyme community had to fight to get it back. Successful negotiations with House Leadership were led by LDA President Pat Smith and a team of advocates to have the stronger language reinstituted into 21st Century Cures, which enabled the Working Group to have a seat at the table for some of the most important stakeholders: patients/advocates and treating physicians.

The working group’s mission will be to review all the efforts within HHS related to tick-borne diseases, to examine research priorities, to help ensure interagency coordination and to minimize overlap. The working group will be made up of representatives from both federal and non-federal agencies and entities.

HHS is seeking nominations for non-federal members through August 15, 2017. Information is available in the Federal Register
Notice: https://www.federalregister.gov/documents/2017/07/17/2017-14965/requests-for-nominations-tick-borne-disease-working-group

In other information from Washington, DC, the House passed HR 2810 authorization for appropriations for fiscal year 2018 for military activities of the Department of Defense. It contained an amendment from US Representative Bill Keating (MA) that permits the DOD to partner with medical researchers and universities to test for tick-borne illnesses.