TBD Working Group Subcommittee Reports Available

The Tick-Borne Disease Working Group (Working Group) is required to submit a report on its activities and any recommendations to the HHS Secretary and Congress every two years. The first report is due December 2018.  The six subcommittees of the Working Group prepared reports to inform the Working Group and its 14 voting members. These reports offer insights into gaps, opportunities and potentials actions to be considered by the Working Group for the report to Congress and HHS Secretary. 

The Tick-Borne Disease Working Group (Working Group) is required to submit a report on its activities and any recommendations to the HHS Secretary and Congress every two years. The first report is due December 2018. 

The six subcommittees of the Working Group prepared reports to inform the Working Group and its 14 voting members. These reports offer insights into gaps, opportunities and potentials actions to be considered by the Working Group for the report to Congress and HHS Secretary. 

Report of the Access to Care Services and Support to Patients Subcommittee

Report of the Disease Vectors, Surveillance, and Prevention Subcommittee

Report of the Other Tick-Borne Diseases and Co-Infections Subcommittee

Report of the Pathogenesis, Transmission and Treatment Subcommittee

Report of the Testing and Diagnostics Subcommittee

Report of the Vaccine and Therapeutics Subcommittee

 




Midcoast Lyme Draws Crowd: HHS Working Group Slides Available From HHS V. Chair

kristenhoney presentation loHundreds of people came out to hear about Lyme disease at the 4th Annual Midcoast Lyme Disease Support & Education Conference in Augusta, Maine, on April 28th, 2018. Over thirty experts spoke, including LDA President Pat Smith, Drs. Brian Fallon, Neil Spector, Lee Cowden and Kristen Honey, PhD, PMP, Vice Chair of the HHS Tick-Borne Disease Working Group. Dr. Honey is also a Lyme survivor. Her presentation titled Lyme Innovation, provided an overview of the TBD Working group– it’s background, responsibilities, including details of operation, reporting and timelines. Click here to view slide presentation

kristenhoney presentation loHundreds of people came out to hear about Lyme disease at the 4th Annual Midcoast Lyme Disease Support & Education Conference in Augusta, Maine, on April 28th, 2018. Over thirty experts spoke, including LDA President Pat Smith, Drs. Brian Fallon, Neil Spector, Lee Cowden and Kristen Honey, PhD, PMP, Vice Chair of the HHS Tick-Borne Disease Working Group. Dr. Honey is also a Lyme survivor. Her presentation titled Lyme Innovation, provided an overview of the TBD Working group– it’s background, responsibilities, including details of operation, reporting and timelines. CLICK HERE TO VIEW SLIDE PRESENTATION

Working Group meetings are open to the public, and minutes, reports, expenses and related documents are stored in a searchable database that is available to the public.

 

kristen honeyBio – Kristen Honey, PhD, PMP (Vice-Chair, HHS Tick-Borne Disease Working Group)

Senior Policy Analyst, Office of Management and Budget,
Office of the Federal Chief Information Officer
Executive Office of the President;
Senior Research Scholar, Stanford University;
Member, Stanford University Lyme Disease Working Group

Dr. Honey is a Senior Policy Analyst in the White House Office of Management and Budget, Executive Office of the President, Washington D.C. She is also a Senior Research Scholar at Stanford University and member of the Stanford University Lyme Disease Working Group. As a broadly trained biologist and ecologist with a passion for real-world challenges, she gravitates to “wicked problems” like tick-borne diseases. She transforms scientific methods through open data, open science, open source, and open innovation (e.g., crowdsourcing, citizen science, prizes, challenges, and public-private collaborations). In 2015 to 2016, Dr. Honey co-founded Lyme Innovation and led data-driven innovations for invisible illness, mental health, and suicide prevention from the White House Office of Science and Technology Policy. She was a 2013–2015 Science and Technology Policy Fellow with the American Association for the Advancement of Science.

Dr. Honey earned her Ph.D. at Stanford University in the Emmett Interdisciplinary Program in the Environment and Resources, School of Earth Sciences, while simultaneously earning a Ph.D. minor in Civil and Environmental Engineering. She holds an M.A. in Environmental Studies from the University of California, Santa Cruz, and a B.A. in Human Biology with Honors from Stanford University. She is originally from Portland, Maine, and the small island town of Long Island in Casco Bay, Maine, and is a late-stage Lyme disease survivor.

In Her Own Words: “I am a late-stage Lyme disease survivor. My personal Lyme healing journey is one of grit, courage, and inspiring recovery.”


CLICK HERE FOR INFO/REGISTER FOR 4TH MEETING OF THE TBD WORKING GROUP – MAY 10, 2018 

CLICK HERE FOR INFO/REGISTER FOR 5TH MEETING OF THE TBD WORKING GROUP – MAY 15-16, 2018

RELATED ARTICLES:

NEW MEMBER NAMED TO SERVE ON TICK-BORNE DISEASE WORKING GROUP – ROBERT SABATINO

NEW SUBCOMMITTEE CO-CHAIR NAMED BY HHS – PAULA JACKSON JONES

 

 




New Member Named to Serve on Tick-Borne Disease Working Group

Bob SabatinoRobert Sabatino, Founder and Executive Director of Lyme Society Inc., was named a public member of the Tick-Borne Disease Working Group. Lyme Society is the New York affiliate partner of Lyme Disease Association. As a patient and advocate, he continues to contribute to legislation, education, and awareness. From his own perspective as a patient, his focus is on the life and struggles of patients and treatments in society today. He retired from the New York Police Department that specialized in Drug Enforcement, Addiction Services, Community Outreach and Domestic Violence Awareness.

Posted May 2, 2018 on Bob SabatinoRobert SabatinoHHS.gov

Robert Sabatino, Founder and Executive Director of Lyme Society Inc., was named a public member of the Tick-Borne Disease Working Group. Lyme Society is the New York affiliate partner of Lyme Disease Association. As a patient and advocate, he continues to contribute to legislation, education, and awareness. From his own perspective as a patient, his focus is on the life and struggles of patients and treatments in society today. He retired from the New York Police Department that specialized in Drug Enforcement, Addiction Services, Community Outreach and Domestic Violence Awareness. He is a founding member of the Staten Island patients support group formed by the State Island Burroughs Presidents Office.

Lyme Society, Inc. is having its First Annual Lyme and Tick-Borne Disease Conference, Staten Island, NY, on May 12, 2018. Free to the public. LDA President, Pat Smith will be speaking, as well as Dr. Kenneth Liegner, Dr. Brian Fallon, Dr. Robert Bransfield, and Dr. Ernest Visconti will be at Q&A. Click here for more information on Lyme Society Conference

Click here for information on the 4th meeting of the TBD Working Group – May 10, 2018




Membership Changes on Access to Care Services & Support to Patients Subcommittee

Posted April 24, 2018 on HHS.gov

Sherill Franklin, a small business owner and patient advocate from Pennsylvania, will join the Access to Care Services and Support to Patients Subcommittee of the Tick-Borne Disease Working Group. Ms. Franklin has written extensively about her own 30-year experience with Lyme disease and has advocated for better diagnostic tools and definitive treatments for tick-borne disease. She will replace Dr. Enid Haller, who is departing.

Posted April 24, 2018 on HHS.gov

Sherill Franklin, a small business owner and patient advocate from Pennsylvania, will join the Access to Care Services and Support to Patients Subcommittee of the Tick-Borne Disease Working Group. Ms. Franklin has written extensively about her own 30-year experience with Lyme disease and has advocated for better diagnostic tools and definitive treatments for tick-borne disease. She will replace Dr. Enid Haller, who is departing.




New Subcommittee Co-Chair Named by HHS

Paula Jackson Jones loPaula Jackson Jones, President of Midcoast Lyme Disease Support and Education (MLDSE), was named co-chair of the Access to Care Services and Support to Patients Subcommittee. Jones co-founded the Maine-based group in 2014 as a result of her own experiences as a patient with Lyme disease. (LDA note: MLDSE is a partner with the Lyme Disease Association LDAnet umbrella organization.)

Paula Jackson Jones loPaula Jackson JonesSubcommittee Co-Chair Named (posted April 16, 2018 on HHS.gov)

Paula Jackson Jones, President of Midcoast Lyme Disease Support and Education (MLDSE), was named co-chair of the Access to Care Services and Support to Patients Subcommittee. Jones co-founded the Maine-based group in 2014 as a result of her own experiences as a patient with Lyme disease. (LDA note: MLDSE is a partner with the Lyme Disease Association LDAnet umbrella organization.)

An updated listing of the co-chairs of the six subcommittees of the Tick-Borne Disease Working Group is provided below.

Subcommittee Co-Chairs (as of April 16, 2018)

Disease Vectors, Surveillance, and Prevention

Pat Smith
Ben Beard, MS, PhD

Pathogenesis, Transmission and Treatment

Wendy Adams, MBA
Captain Estella Jones, DVM

Testing and Diagnostics

Lise E. Nigrovic, MD, MPH
David Roth, JD

Access to Care Services and Support to Patients

Paula Jackson Jones
Commander Scott Cooper, MMSc, PA-C

Vaccine and Therapeutics

Robert Smith, MD, MPH, FACP, FIDSA
Dennis Dixon, PhD

Other Tick-Borne Diseases and Co-Infections

Richard Horowitz, MD
Allen Richards, PhD

Click here for information on the 4th meeting of the TBD Working Group – May 10, 2018




Tick-Borne Disease Working Group 4th Meeting, May 10 – Online and Open for Comment

2017 HHSworkingGroup closerFrom HHS.gov and Office of the Federal Register. The Department of Health and Human Services (HHS) announces the fourth “on-line” meeting of the Tick-Borne Disease Working Group (Working Group) on May 10, 2018, from 8:30 a.m. to 6:45 p.m., Eastern Time. This is an on-line meeting that is open to the public. Members of the public may attend the meeting via webcast; instructions on how to attend will be posted one week prior to the meeting at https://www.hhs.gov/ash/advisory-committees/tickbornedisease/index.html The meeting will be recorded. You must be registered to access the meeting. Register Here

2017 HHSworkingGroup closerFrom HHS.gov and Office of the Federal Register

The Department of Health and Human Services (HHS) announces the fourth “on-line” meeting of the Tick-Borne Disease Working Group (Working Group) on May 10, 2018, from 8:30 a.m. to 6:45 p.m., Eastern Time.

The meeting will focus on the reports describing the work of the six subcommittees of the Working Group.  These subcommittees were established to assist the Working Group with the development of the report to Congress and the HHS Secretary as required by the 21st Century Cures Act. The subcommittees are:

1. Disease Vectors, Surveillance and Prevention (includes epidemiology of tick-borne diseases);

2. Pathogenesis, Transmission, and Treatment;

3. Testing and Diagnostics (including laboratory-based diagnoses and clinical-diagnoses);

4. Access to Care Services and Support to Patients;

5. Vaccine and Therapeutics; and

6. Other Tick-Borne Diseases and Co-infections.

This is an on-line meeting that is open to the public. Members of the public may attend the meeting via webcast; instructions on how to attend will be posted one week prior to the meeting at https://www.hhs.gov/​ash/​advisory-committees/​tickbornedisease/​index.html. The meeting will be recorded. You must be registered to access the meeting. Register Here

Click here (and scroll down) to see Agenda for May 10th Working Group Meeting


Public Comment – Information and Instructions

The Working Group invites public comment on issues related to its charge. Comments are particularly welcome on issues related to the work of the six subcommittees that merit consideration in the Working Group’s Report to Congress and the HHS Secretary.

You have the option of verbal comment, written comment or both. Thus, if you provide verbal comment, you may also submit it as written comment or submit written comment on a different issue.

Verbal (by phone) comments:

To be considered for providing verbal comment, you must register for the meeting.
Requests to provide verbal comment must be submitted via email by May 3, 2018 Eastern Time to tickbornedisease@hhs.gov. In the Subject line please enter: Verbal Public Comment – May 10 Meeting.
A total of 60 minutes has been set aside for verbal comments. Each person will be limited to 3 minutes in order to accommodate as many speakers as possible.
If more requests are received than can be accommodated, speakers will be randomly selected. The nature of the comments will not be considered in making this selection.
We encourage you to practice your talk to ensure it fits within the allotted time.
Your remarks will be broadcast over a live webcast and will become part of the archived recording and meeting transcripts that will be posted on this website.

IMPORTANT: When you submit your request to provide verbal comment, please include a statement letting us know how you would like your comments to be identified. This information will be used during the meeting to link you with your comments. You may choose to use your name, or to be anonymous, and identify your city and/or state. If you are providing comments on behalf of an organization we will identify you and the organization, if you provide a statement requesting we include this information. Please be clear in your request to provide which of these options you would like us to use.

Written comments:

Written comments must be submitted via email by May 3, 2018 Eastern Time to tickbornedisease@hhs.gov . In the Subject line please enter: Written Public Comment – May 10 Meeting.
Comments should be no more than 4 pages in Calibri or Times New Roman, 11 point font. Text that exceeds the 4 pages will be deleted.
Written comments should either be provided in the body of the email, or in an attachment in Word format.
So that your comments meet federal government website standards for the visually and hearing impaired, please do not include
graphics, images, or text boxes. If included with your written comment, we will not be able to retain them. Simple tables are acceptable.
hyperlinks. If included, they will be unlinked. Instead, we suggest you insert the full URL (e.g., https://www.jscimedcentral.com/ClinicalCytology/clinicalcytology-3-1085.pdf)
Any highlighting or underlining of text will need to be removed. Any text that is in a color other than black will be converted to black.

IMPORTANT: When you submit your written comments, please include a statement letting us know how you would like your comments to be identified. This information will be used to link you with your comments. You may choose to use your name, or to be anonymous, and identify your city and/or state. If you are providing comments on behalf of an organization we will identify you and the organization, if you provide a statement requesting we include this information. Please be clear in your submission to provide which of these options you would like us to use.
Note: Unlike verbal public comment, which is presented by the requesting individual during a Working Group meeting, written public comment is not read during a meeting. Written comment will be provided to the Working Group before the meeting.


Click here for Federal Register Website

Click here for May 15-16 in-person Working Group Meeting – details to be announced


Background and Authority: The Tick-Borne Disease Working Group was established on August 10, 2017, in accordance with section 2062 of the 21st Century Cures Act, and the Federal Advisory Committee Act, 5 U.S.C. App., as amended, to provide expertise and review all HHS efforts related to tick-borne diseases to help ensure interagency coordination and minimize overlap, examine research priorities, and identify and address unmet needs. In addition, the Working Group will report to the Secretary and Congress on their findings and any recommendations for the federal response to tick-borne disease prevention, treatment, and research, and addressing gaps in those areas.




HHS Tick-Borne Disease Working Group Member Resigns

Working Group Member Resigns (posted March 8, 2018) A member of the Tick-Borne Disease Working Group, Karen Vanderhoof-Forschner, resigned on March 6, 2018. Ms. Vanderhoof-Forschner also served as one of two co-chairs on the Access to Care Services and Support to Patients Subcommittee. Three non-federal subcommittee members were nominated by the other members to take on this leadership role. Early next week, subcommittee members will vote on their preference to replace Ms. Vanderhoof-Forschner.

Posted March 8, 2018 on U.S. Department of Health and Human Services (HHS) website

A member of the Tick-Borne Disease Working Group, Karen Vanderhoof-Forschner, resigned on March 6, 2018. Ms. Vanderhoof-Forschner also served as one of two co-chairs on the Access to Care Services and Support to Patients Subcommittee. Three non-federal subcommittee members were nominated by the other members to take on this leadership role. Early next week, subcommittee members will vote on their preference to replace Ms. Vanderhoof-Forschner. The results of the vote will be considered along with other information by the Chair and the Vice-Chair of the Working Group. A replacement for Ms. Vanderhoof-Forschner to serve on the Working Group will be appointed by Secretary Azar.

Click here for Working Group Updates on HHS website




Working Group Subcommittee Membership Update

The Department of Health and Human Services announces changes to the composition of three of the six subcommittees of the Tick-Borne Disease Working Group (Working Group). The changes were made in response to three members who did not accept the invitations they received to be a part of a subcommittee. New members were selected from the list of existing nominees by the Co-Chairs of the affected subcommittees. The Chair and Vice-Chair of the Working Group provided input and approved the final changes.

Update on Subcommittee Membership (posted March 2, 2018) from HHS website

The Department of Health and Human Services announces changes to the composition of three of the six subcommittees of the Tick-Borne Disease Working Group (Working Group). The changes were made in response to three members who did not accept the invitations they received to be a part of a subcommittee. New members were selected from the list of existing nominees by the Co-Chairs of the affected subcommittees. The Chair and Vice-Chair of the Working Group provided input and approved the final changes.

Robert Bransfield, MD, a private practice physician and Associate Clinical Professor in the Department of Psychiatry at Rutgers-RWJ Medical School, has replaced Susan Green, JD, on the Access to Care and Support to Patients subcommittee. After careful consideration, Ms. Green withdrew her name.

David Roth, JD, has accepted a Co-Chair position on the Testing and Diagnostics Subcommittee, of which he is an existing member. Vanilla Singh, MD, was not able to accept the invitation to serve as Co-Chair because of additional duties she has been asked to perform in the Office of the Assistant Secretary for Health. Dr. Singh remains a federal member of the Tick-Borne Disease Working Group. Holly Ahern, MS, Associate Professor of Microbiology at SUNY Adirondack, has accepted a position on the Testing and Diagnostics Subcommittee.

David Walker, MD, who was selected for the Vaccine and Therapeutics subcommittee, withdrew his name for personal reasons. The subcommittee will proceed with the existing members

Click here for Working Group Updates on HHS website




Federal TBD Working Group Featured on NBC News NY

NBC News 4 NewYork featuring Tick-Borne Disease Working GroupNBC News 4 New York aired a piece on the federal Tick-Borne Working Group, Tri-State Helps Bring Hope to Lyme Wars Public Health Crisis, on February 21, 2018. The video featured LDA President, Pat Smith; Lyme Society, Inc. President, Bob Sabatino; John Aucott, Co-Chair of the Working Group; as well as a number of patients.
Click here to watch the NBC clip

NBC News 4 New York aired a piece on the federal Tick-Borne Working Group, Tri-State Helps Bring Hope to Lyme Wars Public Health Crisis, on February 21, 2018. The video featured LDA President, Pat Smith; Lyme Society, Inc. President, Bob Sabatino; John Aucott, Co-Chair of the Working Group; as well as a number of patients.

The Tick-Borne Disease Working Group was established by the 21st Century Cures Act to improve federal coordination of efforts related to tick-borne diseases. Members will review all U.S. Department of Health and Human Services efforts related to tick-borne diseases to provide expertise and help ensure interagency coordination and minimize overlap, examine research priorities and identify unmet needs.

Click here to watch the NBC clip

NBC News 4 NewYork featuring Tick-Borne Disease Working Group

Tri-State Helps Bring Hope to Lyme Wars Public Health Crisis
A major change is happening in the Lyme Wars with top experts taking action with help from people in the tri-state. Natalie Pasquarella reports.

 

 

Click here for Tick-Borne Disease Working Group News on LDA website

Click here for Working Group Updates on U.S. Department of Health and Human Services (HHS) website




53 Members Named to Serve on Working Group Subcommittees

2017 HHSworkingGroup loThe Lyme Disease Association announces that the Department of Health and Human Services (HHS) has selected 53 individual to serve on one of six subcommittees of the Tick-Borne Disease Working Group (Working Group).  After reviewing the nominations, selections were made by the co-chairs overseeing each of the subcommittees. The Chair and Vice-Chair of the Working Group provided input and approved the final selections. All of the individuals were notified today, but they have not yet confirmed their availability to serve on the subcommittee that they were chosen to join. The final list of subcommittee members will be updated if any of them are no longer able to join a subcommittee.

From the Department of Health and Human Services (HHS) webpage for the Tick-Borne Disease Working Group:

BenBeard PatSmith Ben Beard, PhD, Acting Deputy Dir., DVBD, CDC & Pat Smith, LDA President – Co-Chairs, HHS Working Group Disease Vectors, Surveillance, & Prevention Subcommittee The Lyme Disease Association announces that the Department of Health and Human Services (HHS) has selected 53 individuals to serve on one of six subcommittees of the Tick-Borne Disease Working Group (Working Group).  After reviewing the nominations, selections were made by the co-chairs overseeing each of the subcommittees. The Chair and Vice-Chair of the Working Group provided input and approved the final selections. All of the individuals were notified today, but they have not yet confirmed their availability to serve on the subcommittee that they were chosen to join. The final list of subcommittee members will be updated if any of them are no longer able to join a subcommittee.

These subcommittees were established by the Working Group members during the December 12, 2017 meeting to assist them in identifying and reviewing information that provides the background, context, and evidence needed to develop the report to Congress and the HHS Secretary as required by the 21st Century Cures Act. The subcommittees will be led by members of the Working Group. The Chair and Vice-Chair of the Working Group will work in collaboration with the subcommittee Co-Chairs and the Designated Federal Officer to ensure that the work of the subcommittees is consistent with the needs of the Working Group and committee management laws and regulations. The roles of the subcommittees, the work they will be doing, and the reports that they will provide to the Working Group will discussed at the February 12, 2018 meeting.

The members of the Tick-Borne Disease Working Group subcommittees are:

Disease Vectors, Surveillance, and Prevention

Co-Chairs: Pat Smith and Ben Beard, MS, PhD

Member Affiliation
Jill Auerbach Founder, Tick Research to Eliminate Diseases

Founder, Stop Ticks On People (S.T.O.P.)

Neeta Connally, PhD, MSPH Associate Professor, Tick-borne Disease Prevention Laboratory, Western Connecticut State
Katherine Feldman, DVM, MPH Senior Epidemiologist, MITRE
Thomas N. Mather, PhD Professor, Center for Vector-Borne Disease

Director, TickEncounter Resource Center

Phyllis Mervine President, LymeDisease.org
Colonel Robin Nadolny, PhD COL, Medical Service Team Lead, Tick-Borne Disease Laboratory, Army Public Health Center
Adalberto Perez de Leon, DVM, PhD, MS Director, Knipling-Bushland U.S. Livestock Insects Research Laboratory, United States Department of Agriculture-Agricultural Research Service
Daniel E. Sonenshine, PhD Eminent Professor of Biological Science, Old Dominion University
Jean I. Tsao, PhD Associate Professor, Departments of Fisheries and Wildlife and of Large Animal Clinical Sciences, Michigan State University
Monica M. White President and Co-founder, Colorado Tick-Borne Disease Awareness Association

LymeDisease.org, Lyme Disease Association, Inc., Public Tick IPM working group, Chaffee County Health Coalition

Stephen Wikel, PhD Professor and Chair Emeritus of Medical Sciences, St. Vincent’s Medical Center, Quinnipiac University
Pathogenesis, Transmission and Treatment

Co-Chairs: Wendy Adams, MBA and Captain Estella Jones, DVM

Member Affiliation
Nicole Baumgarth, DVM, PhD Professor, Center for Comparative Medicine and Dept. of Pathology, Microbiology & Immunology, UC Davis
Patricia K. Coyle, MD Neurology Professor and Vice Chair, Dept. of Neurology

Director, MS Comprehensive Care Center, Stony Brook University Medical Center

Sam Donta, MD Fellow Infectious Diseases, Infectious Disease Society of America

Consultant, Infectious Diseases

Brian Fallon, MD, MPH Professor of Clinical Psychiatry, and Director, Lyme and Tick-Borne Diseases Research Center, Columbia University
Lorraine Johnson, JD, MBA CEO, LymeDisease.org
Elizabeth Maloney, MD President, Partnership for Tick-Borne Diseases Education
Jon Skare, PhD Professor and Associate Head, Dept. of Microbial Pathogenesis and Immunology, Texas A & M University
Brian Stevenson, PhD Professor, Department of Microbiology, Immunology & Molecular Genetics, University of Kentucky College of Medicine
Testing and Diagnostics

Co-Chairs: Lise E. Nigrovic, MD, MPH and Co-chair to be determined

Member Affiliation
Charles Y. Chiu, MD, PhD Director, Abbott Viral Diagnostics and Discovery Center, UCSF
Roberta DeBiasi, MD, MS Chief, CNMC Division of Pediatric Infectious Diseases

Director, Fetal Infectious Diseases Program

Co-Director, Congenital Zika Program at Children’s National

Noel Gerald, PhD Biologist and Senior Scientific Reviewer, Office of In Vitro Diagnostics and Radiological Health, FDA
Deborah Hoadley, MD, MPH Director, New England Institute for Lyme Disease and Tick-Borne Illnesses
Maliha Ilias, PhD Program Officer, Lyme Disease Research Bacteriology and Mycology Branch, National Institute of Infectious Diseases, NIH
Bobbi Pritt, MD, MSc Professor of Laboratory Medicine and Pathology, and Co-Director, Vector-Borne Diseases Laboratory Services,

Mayo Clinic

David Roth, JD Retired senior managing director of a private equity firm (Blackstone)
Steven Schutzer, MD Professor of Medicine, Rutgers New Jersey Medical School
Access to Care Services and Support to Patients

Co-Chairs: Karen Vanderhoof-Forschner, JD, MBA and Commander Scott Cooper, MMSc, PA-C

Member Affiliation
Ana Frost, PhD The Institute for Functional Medicine
Holiday Goodreau President and Executive Director, The LiveLyme Foundation
Susan Green, JD Legislative Counsel, NatCapLyme
Enid Haller, LCSW, PhD Executive Director, Lyme Center of Martha’s Vineyard

Martha’s Vineyard Lyme Support Group

Paula Jones Jackson President & Co-Founder, Midcoast Lyme Disease Support & Education (MLDSE)
Colonel Nicole Malachowski Retired, US Air Force
Leonard Schuchman, DO, MPH, FAAFP Osteopathic Physician
Sheila M. Statlender, PhD Clinical Psychologist, Private Practice
Kathleen Steele, LCSW Psychotherapist
Vaccine and Therapeutics

Co-Chairs: Robert Smith, MD, MPH, FACP, FIDSA and Dennis Dixon, PhD

Member Affiliation
Felipe C. Cabello, MD Professor of Microbiology and Immunology, New York Medical College
Monica E. Embers, PhD Assistant Professor, and Director, TNPRC Vector-borne Diseases Core, Division of Bacteriology and Parasitology, Tulane National Primate Research Center
Maria Gomes-Solecki, PhD Associate Professor, Department of Microbiology, Immunology and Biochemistry, University of Tennessee Health Science Center
Utpal Pal, PhD Professor, University of Maryland
Stanley A. Plotkin, MD Emeritus Professor of Pediatrics, University of Pennsylvania
Juan Salazar, MD, MPH, FAAP Professor and Chair, Department of Pediatrics, University of Connecticut Medical School, and Physician in Chief and Executive VP, Connecticut Children’s Medical Center
Leigh Ann Soltysiak, MS Self-employed, Owner, Principal Commercialization & Strategy Consultant, Silverleaf Consulting, LLC
David H. Walker, MD The Carmage and Martha Walls Distinguished University Chair in Tropical Diseases, and Professor, Department of Pathology, and Executive Director, Center for Biodefense and Emerging Infectious Diseases, The University of Texas Medical Branch
Other Tick-Borne Diseases and Co-Infections

Co-Chairs: Richard Horowitz, MD and Allen Richards, PhD

Member Affiliation
Megan Dulaney, MS Senior Interagency Liaison, DOD Center for Health Engagement, Uniformed Services University for the Health Sciences, Henry M. Jackson Foundation for the Advancement of Military Medicine
Marna Ericson, PhD Assistant Professor, Department of Dermatology, and Director, Dermatology Imaging Center, University of Minnesota
Christine Green, MD Physician, Green Oaks Medical Center, PC, and Director, LymeDisease.org
Charles Lubelczyk, MPH Vector Ecologist, Maine Medical Center Research Institute
Ulrike G. Munderloh, DVM, PhD Professor, University of Minnesota, Department of Entomology
Garth Nicolson, MD, PhD President, Chief Scientific Officer and Emeritus Professor of Molecular Pathology, The Institute for Molecular Medicine
Christopher D. Paddock, MD, MPHTM Rickettsial Zoonoses Branch, CDC
Samuel S. Perdue, PhD Section Chief, Basic Sciences, Bacteriology and Mycology Branch, DMID/NIAID/NIH
Sam R. Telford III, ScD Professor of Infectious Disease and Global Health

Cummings School of Veterinary Medicine, Tufts University