The Tick-Borne Disease Working Group was established by the 21st Century Cures Act to improve federal coordination of efforts related to tick-borne diseases. Members will review all U.S. Department of Health and Human Services efforts related to tick-borne diseases to provide expertise and help ensure interagency coordination and minimize overlap, examine research priorities and identify unmet needs.
The NIH Strategic Plan for Tickborne Disease Research, October 9, 2019, is good news for everyone in the Lyme and tick-borne diseases community! The plan builds on the activities of the Department of Health and Human Services Tick-Borne Disease Working Group (TBDWG), which issued a 2018 report to Congress outlining research recommendations. Through inventories sent […]
The tenth meeting of the Tick-Borne Disease Working Group (TBDWG) was held via webcast on Sept 12, 2019 from 9:00 a.m. to 3:00 p.m. ET. Subcommittee members were announced, and the Working Group received reports from the eight subcommittees that were formed during the June 4, 2019 meeting. Two subcommittee name changes were […]
The Department of Health and Human Services (HHS) gave notice that the Tick-Borne Disease Working Group (TBDWG) will hold a public meeting via webcast on September 12, 2019, from 8:30 a.m. to 5 p.m. ET (times are tentative and subject to change). At the upcoming meeting, the TBDWG will receive updates from eight subcommittees that […]
The federal Tick-Borne Disease Working Group (TBDWG) held their ninth meeting in D.C. on June 4, 2019 with a focus on developing the next report to be drafted for the HHS Secretary and Congress. The report will include an update on federal tick-borne disease activities and research findings. Read Meeting Summary and Written Public Comments […]
Patricia V. Smith, has been appointed as one of the public members of the new panel for Health and Human Services Tick-Borne Disease Working Group (TBDWG). Pat is in her 22 year as President of the all-volunteer run national non-profit Lyme Disease Association (LDA) and has been a leading voice and advocate for patients for […]
Lorraine Johnson, JD, MBA, Chief Executive Officer of LymeDisease.org delves into the importance of meaningful patient representation on the Federal HHS Tick-Borne Disease Working Group (TBDWG) in her latest blog. This is especially important as we await the announcement of panelists to the new TBDWG charged with the next report to Congress due in 2020. […]
The May 10, May 15-16, and June 21, 2018 meeting summaries of the HHS Tick-Borne Disease Working Group are now available. Click on the following links and then click on “Meeting Summary.” June 21, 2018, TBDWG Meeting (on-line) May 15-16, 2018, TBDWG Meeting (in-person) May 10, 2018, TBDWG Meeting (on-line) The May 10, […]
https://www.federalregister.gov/documents/2018/11/16/2018-25082/solicitation-of-nominations-for-appointment-to-the-tick-borne-disease-working-group
Update: Click here for Draft of TBD Working Group’s report to Congress The seventh meeting of the Tick-borne Disease Working Group will be held on July 24, 2018, from 10:00 a.m. to 4:00 p.m. EDT. The Working Group will review and vote on the content of the five chapters that will be submitted into the […]
From HHS.gov – The sixth meeting of the Tick-borne Disease Working Group will be from 9:30 a.m. to 6:30 p.m. (Eastern) on June 21. The Working Group will focus on consensus of the six subcommittee findings and determine the major content of the five chapters that will be submitted into the Working Group Congressional Report. Note: If […]