The Tick-Borne Disease Working Group was established by the 21st Century Cures Act to improve federal coordination of efforts related to tick-borne diseases. Members will review all U.S. Department of Health and Human Services efforts related to tick-borne diseases to provide expertise and help ensure interagency coordination and minimize overlap, examine research priorities, and identify unmet needs.
Patricia V. Smith, has been appointed as one of the public members of the new panel for Health and Human Services Tick-Borne Disease Working Group (TBDWG). Pat is in her 22 year as President of the all-volunteer run national non-profit Lyme Disease Association (LDA) and has been a leading voice and advocate for patients for […]
Lorraine Johnson, JD, MBA, Chief Executive Officer of LymeDisease.org delves into the importance of meaningful patient representation on the Federal HHS Tick-Borne Disease Working Group (TBDWG) in her latest blog. This is especially important as we await the announcement of panelists to the new TBDWG charged with the next report to Congress due in 2020. […]
The May 10, May 15-16, and June 21, 2018 meeting summaries of the HHS Tick-Borne Disease Working Group are now available. Click on the following links and then click on “Meeting Summary.” June 21, 2018, TBDWG Meeting (on-line) May 15-16, 2018, TBDWG Meeting (in-person) May 10, 2018, TBDWG Meeting (on-line) The May 10, […]
The May 10, May 15-16, and June 21, 2018 meeting summaries of the HHS Tick-Borne Disease Working Group are now available. Click on the following links and then click on “Meeting Summary.” June 21, 2018, TBDWG Meeting (on-line) May 15-16, 2018, TBDWG Meeting (in-person) May 10, 2018, TBDWG Meeting (on-line) Click here to view […]
https://www.federalregister.gov/documents/2018/11/16/2018-25082/solicitation-of-nominations-for-appointment-to-the-tick-borne-disease-working-group
First biennial report to Congress gives blueprint for federal response 2018 Tick-Borne Disease Working Group Report Confirms Lyme is Spreading, Time for Action is Now Washington, Nov 14, 2018 | Matt Hadro ((202) 225-3765) The 2018 Tick-Borne Disease Working Group Report to Congress—the very first report by the new HHS Working Group—confirms what Rep. Chris […]
Two major releases from the US Government today confirm what advocates and patients have long known – there is a growing Lyme & tick-borne diseases problem sweeping the land and Congress needs to take action to curb the spread. In a release long awaited by the Lyme community, the US Department of Health & Human […]
https://lymediseaseassociation.org/government/federal-government/govt-departments-a-policies/hhs-tbd-working-group/press-release-from-congressman-chris-smith-on-hhs-working-group/news Update: Click here for Draft of TBD Working Group’s report to Congress The seventh meeting of the Tick-borne Disease Working Group will be held on July 24, 2018, from 10:00 a.m. to 4:00 p.m. EDT. The Working Group will review and vote on the content of the five chapters that will be submitted into […]
From HHS.gov – The sixth meeting of the Tick-borne Disease Working Group will be from 9:30 a.m. to 6:30 p.m. (Eastern) on June 21. The Working Group will focus on consensus of the six subcommittee findings and determine the major content of the five chapters that will be submitted into the Working Group Congressional Report. Note: If […]
See summaries, transcripts, slide presentations, written public comment, transcripts of verbal comment, agendas, and webcasts. May 15-16, 2018, TBDWG Meeting (in-person) May 10, 2018, TBDWG Meeting (on-line) February 12, 2018, Meeting (on-line) December 11 and 12, 2017, Meetings (in-person) See summaries, transcripts, slide presentations, written public comment, transcripts of verbal content, agendas, and webcasts. […]