Lorraine Johnson, JD, MBA, Chief Executive Officer of LymeDisease.org delves into the importance of meaningful patient representation on the Federal HHS Tick-Borne Disease Working Group (TBDWG) in her latest blog. This is especially important as we await the announcement of panelists to the new TBDWG charged with the next report to Congress due in 2020. […]
Govt. Departments & Policies
The departments and agencies of the federal government often play a role in Lyme disease. They may issue policies, guidelines, advisories, or other information which may be useful to Lyme patients, doctors, or the general public. LDA may link to or list some of those government publications which it feels may be important. Complete agency or department information on Lyme disease may be found on each individual agency/department website.
Candy Brassard, Senior Biologist, U.S. Environmental Protection Agency Office of Pesticide Programs; C. Ben Beard, PhD, Director, Bacterial Diseases Branch, Division of Vector-Borne Infectious Diseases, Centers for Disease Control & Prevention at a Meeting at EPA on Lyme in Virginia in 2006.
The May 10, May 15-16, and June 21, 2018 meeting summaries of the HHS Tick-Borne Disease Working Group are now available. Click on the following links and then click on “Meeting Summary.” June 21, 2018, TBDWG Meeting (on-line) May 15-16, 2018, TBDWG Meeting (in-person) May 10, 2018, TBDWG Meeting (on-line) The May 10, […]
The Pain Management Best Practices Inter-Agency Task Force (Task Force) was established to propose updates to best practices and issue recommendations that address gaps or inconsistencies for managing chronic and acute pain. The U.S. Department of Health and Human Services is overseeing this effort with the U.S. Department of Veterans Affairs and U.S. Department of […]
The CDC released a series of articles and papers on the new tick Haemaphysalis longicornis (Hl), also known as the Asian longhorned tick, which has already spread to 8 other states after being discovered in NJ in 2017. Read about a call to action for vector-borne disease prevention and control to include a national strategy. […]
In a press release by the Centers for Disease Control & Prevention (CDC) on the state of tick-borne diseases in the US, CDC introduced its new platform for reporting Lyme disease statistics. The release indicates that there has been an increase in all tick-borne diseases, not just Lyme disease, and that it is the highest […]
Nov. 14: HHS Tick-Borne Disease Working Group Announces Release of Report to Congress; Centers for Disease Control & Prevention Announces Higher than Ever Lyme Disease Cases
Two major releases from the US Government today confirm what advocates and patients have long known — there is a growing Lyme & tick-borne diseases problem sweeping the land and Congress needs to take action to curb the spread. In a release long awaited by the Lyme community, the US Department of Health & Human […]
Although the numbers of tick-borne diseases have been out several days on CDC’s Wonder platform, a new data set format for tick-borne diseases has just been introduced today by CDC for 2017. It includes much pertinent information including the state numbers, state incidence map and rate, rate per 100,000 by age group, by race, by […]
Update: Click here for Draft of TBD Working Group’s report to Congress The seventh meeting of the Tick-borne Disease Working Group will be held on July 24, 2018, from 10:00 a.m. to 4:00 p.m. EDT. The Working Group will review and vote on the content of the five chapters that will be submitted into the […]
From HHS.gov – The sixth meeting of the Tick-borne Disease Working Group will be from 9:30 a.m. to 6:30 p.m. (Eastern) on June 21. The Working Group will focus on consensus of the six subcommittee findings and determine the major content of the five chapters that will be submitted into the Working Group Congressional Report. Note: If […]