Hundreds of people came out to hear about Lyme disease at the 4th Annual Midcoast Lyme Disease Support & Education Conference in Augusta, Maine, on April 28th, 2018. Over thirty experts spoke, including LDA President Pat Smith, Drs. Brian Fallon, Neil Spector, Lee Cowden and Kristen Honey, PhD, PMP, Vice Chair of the HHS Tick-Borne […]
Govt. Departments & Agencies
The Government Department & Agencies section on the submenu includes federal government departments such as Health & Human Services (HHS), Department of Defense (DoD), and Department of Education (USDE). Often agencies under these departments adopt policies that affect Lyme & TBD, such as those from the CDC and NIH, both agencies are under HHS. The HHS Tick-Borne Disease Working group can be found under HHS. Military can be found under DoD. From time to time, the LDA will post articles in these sections that pertain to Lyme disease/TBD that might be of interest or importance to the public, including policies and rule making being considered or adopted.
Candy Brassard, Senior Biologist, U.S. Environmental Protection Agency Office of Pesticide Programs; C. Ben Beard, PhD, Director, Bacterial Diseases Branch, Division of Vector-Borne Infectious Diseases, Centers for Disease Control & Prevention at a Meeting at EPA on Lyme in Virginia in 2006.
Robert Sabatino, Founder and Executive Director of Lyme Society Inc., was named a public member of the Tick-Borne Disease Working Group. Lyme Society is the New York affiliate partner of Lyme Disease Association. As a patient and advocate, he continues to contribute to legislation, education, and awareness. From his own perspective as a patient, his […]
Just in time for May Lyme Disease Awareness month, the CDC has released the Morbidity and Mortality Weekly Report (MMWR). Results as reported by the New York Times: “The number of people getting diseases transmitted by mosquito, tick and flea bites has more than tripled in the United States in recent years, federal health officials […]
Posted April 24, 2018 on HHS.gov Sherill Franklin, a small business owner and patient advocate from Pennsylvania, will join the Access to Care Services and Support to Patients Subcommittee of the Tick-Borne Disease Working Group. Ms. Franklin has written extensively about her own 30-year experience with Lyme disease and has advocated for better diagnostic tools […]
May is Lyme Disease Awareness Month. Let’s get our Representatives in the US House of Representatives to sign up for the House Lyme Caucus. It is a bi-partisan group working together in Congress to take action on Lyme & tick-borne diseases. Under the leadership of Congressmen Chris Smith (NJ) and co-chair Colin Peterson (MN), it […]
Paula Jackson Jones, President of Midcoast Lyme Disease Support and Education (MLDSE), was named co-chair of the Access to Care Services and Support to Patients Subcommittee. Jones co-founded the Maine-based group in 2014 as a result of her own experiences as a patient with Lyme disease. (LDA note: MLDSE is a partner with the Lyme […]
From HHS.gov and Office of the Federal Register. The Department of Health and Human Services (HHS) announces the fourth “on-line” meeting of the Tick-Borne Disease Working Group (Working Group) on May 10, 2018, from 8:30 a.m. to 6:45 p.m., Eastern Time. This is an on-line meeting that is open to the public. Members of the […]
Working Group Member Resigns (posted March 8, 2018) A member of the Tick-Borne Disease Working Group, Karen Vanderhoof-Forschner, resigned on March 6, 2018. Ms. Vanderhoof-Forschner also served as one of two co-chairs on the Access to Care Services and Support to Patients Subcommittee. Three non-federal subcommittee members were nominated by the other members to take […]
The Department of Health and Human Services announces changes to the composition of three of the six subcommittees of the Tick-Borne Disease Working Group (Working Group). The changes were made in response to three members who did not accept the invitations they received to be a part of a subcommittee. New members were selected from […]
The U.S. Food and Drug Administration (FDA) has approved the first tests to screen human plasma and whole blood samples for the Babesia parasite species, Babesia Microti (B. Microti), the main species that causes infection in the United States. Babesia parasites are transmitted by Ixodes scapularis ticks, also known as blacklegged or deer ticks but […]