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In this interview, Kenneth Liegner, MD, a Board Certified Internist with specialized training in Pathology and Critical Care Medicine, shares his journey into the world of Lyme disease, its evolving treatment, and his ongoing efforts to improve diagnostic methods and therapeutic solutions. Dr. Liegner offers valuable insights and reflections on tackling one of the most challenging and misunderstood diseases of our time.
In this May Awareness Guest Blog, we interview Richard Horowitz, MD, the Medical Director of the Hudson Valley Healing Arts Center. As a board-certified internal medicine specialist and a key member of various tick-borne disease working groups, Dr. Horowitz has dedicated his work to understanding and treating Lyme disease and other tick-borne illnesses.
President of the Lyme Association of Greater Kansas City, Judy Campbell, expresses her appreciation for the LDA’s support of their local initiatives since 1993.
In the summer of 2022, the Duke Law Lyme Disease Advocacy Project gained recognition as a formally recognized pro bono group within Duke University School of Law. Madison Pinckney and Luke Mears, who are now third year law students, founded the group as first year students. They wanted to help the Lyme disease community and provide with students with opportunities to work on legal, legislative, and advocacy questions centering around Lyme disease. The group partnered with the Lyme Disease Association and began researching and answering questions surrounding Lyme disease advocacy that have gone unanswered for years.
In this video, the Lyme Disease Association presents a Lyme Disease Awareness Month Program: National Public Health Strategy to Prevent and Control Vector-Borne Diseases in People With a Focus on Lyme & Ticks featuring LDA Board Member Timothy Lynagh, Congressman Christopher Smith, and CDC experts Susanna Visser and Charles Ben Beard. They discuss advocacy, research, and public health strategies to combat Lyme and other tick-borne diseases.
Dr. Maxwell is an expert on tick-borne disease surveillance and the use of triangulation and thematic mapping to assess tick-borne disease risk, particularly in perceived non-endemic areas and among vulnerable populations. Her recent work includes a grant from the Rita & Alex Hillman Foundation, titled Nursing in the Fields: Vector-borne Illness Prevention and Detection among Migrant and Seasonal Farmworkers. She has numerous publications on tick-borne diseases in high-impact journals. Dr. Maxwell served as a Fellow and continues her role as Faculty Affiliate at Boston University School of Medicine, Laboratory for Human Neurobiology. She is also a Research Affiliate, Center for Science, Technology, and Innovation Policy, George Mason University and founding member of Integrate, Communicate, Inform (ICI)-Vector-borne Disease Working Group.
Cynthia Cobb is a seasoned registered nurse with nearly 30 years of nursing experience. She is a master’s-prepared certified school nurse in New Jersey and is currently finishing her doctorate (DNP) degree in the specialty area of Systems-Level Leadership with an anticipated completion date this August 2024. Cynthia is the Lead Nurse for the West Deptford School District where she has worked for the past 13 years, the President of the Gloucester County School Nurses Association since November 2018, and an active member of both the New Jersey State School Nurses Association and the National Association of School Nurses.
There are many versions of what happened out there on the net about the meeting held March 7 and 8 at the CDC Atlanta. Here is a detailed version from my perspective of that meeting including the Centers for Disease Control & Prevention’s (CDC) actual role in the meeting.
We miss you, TC
Over the decades, I have been fortunate to work with some of the finest people I have ever known. These are the people who have been fighting against influential individuals preventing the diagnosis and treatment of thousands of Lyme patients—instead of working for those who have helped provide or enable treatment.
After 39 years as a Lyme educator and advocate, I’ve become immune to the fact that the status quo with Lyme rarely alters, and if it does, it does not often make a dent in the lives of patients. I had hoped that the new webpage placed on the CDC website the last week of October 2023, would change that.
LDA Doctor Referral System © Terms & Conditions and Guidelines
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About LDA DOCTOR REFERRAL SYSTEM ©
Welcome to the Lyme Disease Association’s LDA Doctor Referral System ©. LDA made updates and enhancements to its prior system and has launched a new site to provide patients with information about doctors, other practitioners, testing labs, and pharmacies that are knowledgeable about chronic Lyme disease and often about many other tick-borne diseases (TBD). Many of the doctors listed are often referred to as Lyme Literate Physicians/Doctors (LLMD). Tens of thousands of patients have successfully used the prior LDA system to locate Lyme and TBD resources.
Terms & Conditions and Guidelines
Because there is a negative political climate surrounding Lyme disease, many LLMDs do not want their names posted outright on the internet. LDA has tried to balance the doctors’ wishes with patients’ need to find a doctor. This new system is a result of that compromise and therefore:
Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines, Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the LDA Doctor Referral System © contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the location entered and specaialty/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of so we can investigate.