The Consolidated Appropriations Act, 2018, signed into law on March 23, 2018 (Public Law 115-141), funds the Federal government through Sept. 30, 2018. It includes increased funding of $12.2 million for CDC’s vector-borne diseases activities and an increase of $353.6 million for the National Institutes of Allergy & Infectious Diseases, NIAID, which is the NIH […]
This section contains information on legislation that has been introduced and/or passed by the federal government and individual states. It includes sections that contain the position the Lyme Disease Association has taken on various bills, if any; information on how to contact your legislator; and what you can do to help specific laws be passed or defeated. Additionally, there is a section on various government departments. From time to time, the LDA will post articles from the departments/agencies in these sections that pertain to Lyme disease that might be of interest or importance to the public, including policies being considered or adopted.
It is important for the LDA to take a lead role in forming relationships with all levels of government. Laws and policy decisions often affect how Lyme disease is viewed by the public and physicians, and LDA needs to clearly articulate the problems which are created by government actions or which can be rectified by government actions. Additionally, we need to ensure that the information presented to government officials is accurate and supported by science.
Paula Jackson Jones, President of Midcoast Lyme Disease Support and Education (MLDSE), was named co-chair of the Access to Care Services and Support to Patients Subcommittee. Jones co-founded the Maine-based group in 2014 as a result of her own experiences as a patient with Lyme disease. (LDA note: MLDSE is a partner with the Lyme […]
From HHS.gov and Office of the Federal Register. The Department of Health and Human Services (HHS) announces the fourth “on-line” meeting of the Tick-Borne Disease Working Group (Working Group) on May 10, 2018, from 8:30 a.m. to 6:45 p.m., Eastern Time. This is an on-line meeting that is open to the public. Members of the […]
Working Group Member Resigns (posted March 8, 2018) A member of the Tick-Borne Disease Working Group, Karen Vanderhoof-Forschner, resigned on March 6, 2018. Ms. Vanderhoof-Forschner also served as one of two co-chairs on the Access to Care Services and Support to Patients Subcommittee. Three non-federal subcommittee members were nominated by the other members to take […]
The Department of Health and Human Services announces changes to the composition of three of the six subcommittees of the Tick-Borne Disease Working Group (Working Group). The changes were made in response to three members who did not accept the invitations they received to be a part of a subcommittee. New members were selected from […]
The U.S. Food and Drug Administration (FDA) has approved the first tests to screen human plasma and whole blood samples for the Babesia parasite species, Babesia Microti (B. Microti), the main species that causes infection in the United States. Babesia parasites are transmitted by Ixodes scapularis ticks, also known as blacklegged or deer ticks but […]
NBC News 4 New York aired a piece on the federal Tick-Borne Working Group, Tri-State Helps Bring Hope to Lyme Wars Public Health Crisis, on February 21, 2018. The video featured LDA President, Pat Smith; Lyme Society, Inc. President, Bob Sabatino; John Aucott, Co-Chair of the Working Group; as well as a number of patients. […]
The Lyme Disease Association announces that the Department of Health and Human Services (HHS) has selected 53 individual to serve on one of six subcommittees of the Tick-Borne Disease Working Group (Working Group). After reviewing the nominations, selections were made by the co-chairs overseeing each of the subcommittees. The Chair and Vice-Chair of the Working Group […]
The Lyme Disease Association Inc. announces that the new HHS Tick-Borne Disease Working Group (TBDWG) has selected co-chairs from the TBDWG for its 6 newly formed sub-committees. LDA President Pat Smith will be co-chair the Disease Vectors, Surveillance and Prevention (includes epidemiology of tick-borne diseases) Subcommittee. The other co-chair is Dr. Ben Beard, Acting Deputy […]
The new HHS Tick-Borne Disease Working Group (TBDWG) is seeking nominations from federal employees and members of the public who are interested in being considered for appointments to subcommittees being established to provide information for the TBDWG. Nominations will be accepted until midnight on January 7, 2018. The new HHS Tick-Borne Disease Working Group (TBDWG) […]