March 27, 2019 House Appropriations Committee Labor, Health and Human Services, Education Member Day Hearing 1:00:30 to 1:02:20 (Lyme & TBD Discussion) Congressman Smith (NJ) testifies about working with Pat Smith and the Lyme community since 1992, pushing for an advisory committee since 1998, how language finally got put into 21st century cures act and the first […]
This section contains information on legislation that has been introduced and/or passed by the federal government and individual states. It includes sections that contain the position the Lyme Disease Association has taken on various bills, if any; information on how to contact your legislator; and what you can do to help specific laws be passed or defeated. Additionally, there is a section on various government departments. From time to time, the LDA will post articles from the departments/agencies in these sections that pertain to Lyme disease that might be of interest or importance to the public, including policies being considered or adopted.
It is important for the LDA to take a lead role in forming relationships with all levels of government. Laws and policy decisions often affect how Lyme disease is viewed by the public and physicians, and LDA needs to clearly articulate the problems which are created by government actions or which can be rectified by government actions. Additionally, we need to ensure that the information presented to government officials is accurate and supported by science.
The May 10, May 15-16, and June 21, 2018 meeting summaries of the HHS Tick-Borne Disease Working Group are now available. Click on the following links and then click on “Meeting Summary.” June 21, 2018, TBDWG Meeting (on-line) May 15-16, 2018, TBDWG Meeting (in-person) May 10, 2018, TBDWG Meeting (on-line) The May 10, […]
Rep. Chris SmithRep. Chris Smith (R-NJ), founder and co-chair of the Congressional Lyme Disease Caucus, reintroduced legislation on January 3rd, the first legislative day of the 116th Congress, to create a new national strategy on Lyme disease and other tick-borne diseases and have a better coordinated federal response across agencies to fight, treat and prevent […]
The Pain Management Best Practices Inter-Agency Task Force (Task Force) was established to propose updates to best practices and issue recommendations that address gaps or inconsistencies for managing chronic and acute pain. The U.S. Department of Health and Human Services is overseeing this effort with the U.S. Department of Veterans Affairs and U.S. Department of […]
The CDC released a series of articles and papers on the new tick Haemaphysalis longicornis (Hl), also known as the Asian longhorned tick, which has already spread to 8 other states after being discovered in NJ in 2017. Read about a call to action for vector-borne disease prevention and control to include a national strategy. […]
In a press release by the Centers for Disease Control & Prevention (CDC) on the state of tick-borne diseases in the US, CDC introduced its new platform for reporting Lyme disease statistics. The release indicates that there has been an increase in all tick-borne diseases, not just Lyme disease, and that it is the highest […]
Nov. 14: HHS Tick-Borne Disease Working Group Announces Release of Report to Congress; Centers for Disease Control & Prevention Announces Higher than Ever Lyme Disease Cases
Two major releases from the US Government today confirm what advocates and patients have long known — there is a growing Lyme & tick-borne diseases problem sweeping the land and Congress needs to take action to curb the spread. In a release long awaited by the Lyme community, the US Department of Health & Human […]
Although the numbers of tick-borne diseases have been out several days on CDC’s Wonder platform, a new data set format for tick-borne diseases has just been introduced today by CDC for 2017. It includes much pertinent information including the state numbers, state incidence map and rate, rate per 100,000 by age group, by race, by […]
Update: Click here for Draft of TBD Working Group’s report to Congress The seventh meeting of the Tick-borne Disease Working Group will be held on July 24, 2018, from 10:00 a.m. to 4:00 p.m. EDT. The Working Group will review and vote on the content of the five chapters that will be submitted into the […]