The Lyme Disease Association announces that the Food and Drug Administration (FDA) yesterday cleared for marketing four previously cleared tests for the diagnosis of Lyme disease. Called the modified two-tier, enzyme immune assay, (EIA), the new tests are able to be run at the same time or sequentially. The current two-tier testing has an EIA […]
This section contains information on legislation that has been introduced and/or passed by the federal government and individual states. It includes sections that contain the position the Lyme Disease Association has taken on various bills, if any; information on how to contact your legislator; and what you can do to help specific laws be passed or defeated. Additionally, there is a section on various government departments. From time to time, the LDA will post articles from the departments/agencies in these sections that pertain to Lyme disease that might be of interest or importance to the public, including policies being considered or adopted.
It is important for the LDA to take a lead role in forming relationships with all levels of government. Laws and policy decisions often affect how Lyme disease is viewed by the public and physicians, and LDA needs to clearly articulate the problems which are created by government actions or which can be rectified by government actions. Additionally, we need to ensure that the information presented to government officials is accurate and supported by science.
Congressman Christopher Smith (R-NJ-04) has been pushing for funding and recognition of Lyme and tick-borne diseases over the past 27 years. On July 9, 2019, Mr. Smith testified before the Committee on Rules and introduced two amendments relating to Lyme and tick-borne diseases to the Defense Authorization Bill (National Defense Appropriations Act). ONE PASSED RULES […]
Senator Susan Collins (R-ME), along with Tina Smith (D-MN), a member of the Senate Health Committee, and Senator Angus King (I-ME) an original cosponsor, introduced a bipartisan effort to improve research, prevention, diagnostics, and treatment for tick-borne diseases. Representative Christopher Smith (R-NJ), with lead co-sponsor Representative Collin Peterson (D-MN) introduced a bipartisan companion bill, the […]
The last year has seen a flurry of activity in Washington. Here’s the scoop on the bills, briefings, and bipartisan politics.
Patricia V. Smith, has been appointed as one of the public members of the new panel for Health and Human Services Tick-Borne Disease Working Group (TBDWG). Pat is in her 22 year as President of the all-volunteer run national non-profit Lyme Disease Association (LDA) and has been a leading voice and advocate for patients for […]
On May 29, 2019, The Lyme & Tick-Borne Diseases Congressional Town Meeting Sponsored by Congressman Christopher H. Smith (NJ-4) was held in the Wall Township, NJ, Municipal Building. Despite tornado warnings, flash flood warnings with torrential rains, a packed house of more than 200 people attended the three and a half hour event. Wall Mayor Kevin […]
The House Lyme Caucus members sent this letter to the House Appropriations Committee for inclusion in the 2020 Labor HHS Appropriations.
Since 2016, the Congressionally Directed Medical Research Programs (CDMRP) Tick-Borne Disease Research Program (TBDRP) has received a $5 million Congressional appropriation each year to allocate to awardees focused on Lyme disease research or research on other tick-borne disease (TBDs). Awards address at least one of four TBDRP focus areas which include diagnosis, treatment, prevention, and […]
Lorraine Johnson, JD, MBA, Chief Executive Officer of LymeDisease.org delves into the importance of meaningful patient representation on the Federal HHS Tick-Borne Disease Working Group (TBDWG) in her latest blog. This is especially important as we await the announcement of panelists to the new TBDWG charged with the next report to Congress due in 2020. […]
The Lyme & Tick-Borne Diseases Congressional Town Meeting will be held Wednesday, May 29, 2019 from 6:45pm-930pm at the Wall Township Municipal Building Community Room, 2700 Allaire Rd, Wall Township, NJ. The town meeting is sponsored by US Congressman Christopher H. Smith. Hear from nationally-recognized Lyme disease experts about current efforts to combat Lyme and Tick-Borne diseases, updates on diagnosis and treatment, and how to protect yourself and your family, and more. LDA president, Pat Smith, will join US Congressman, Christopher H. Smith; CDC, Deputy Director, Division of Vector-Borne Diseases, Ben Beard, PhD; and Richard Horowitz, MD as speakers at the meeting […]