At the start of the second day of the meeting, 9 Lyme disease advocates and patients called in to provide public comments. Their input was invaluable and helped committee members appreciate issues of concern throughout the country.
This section contains information on legislation that has been introduced and/or passed by the federal government and individual states. It includes sections that contain the position the Lyme Disease Association has taken on various bills, if any; information on how to contact your legislator; and what you can do to help specific laws be passed or defeated. Additionally, there is a section on various government departments. From time to time, the LDA will post articles from the departments/agencies in these sections that pertain to Lyme disease that might be of interest or importance to the public, including policies being considered or adopted.
It is important for the LDA to take a lead role in forming relationships with all levels of government. Laws and policy decisions often affect how Lyme disease is viewed by the public and physicians, and LDA needs to clearly articulate the problems which are created by government actions or which can be rectified by government actions. Additionally, we need to ensure that the information presented to government officials is accurate and supported by science.
The 12th meeting of the Tick-Borne Disease Working Group (TBDWG) took place over two days, March 3rd-4th, 2020, at The College of Physicians of Philadelphia in Philadelphia, PA. A summary of this in-person public meeting is as follows: Opening statements were presented by Tammy R. Beckham, Director, Office of Infectious Disease and HIV/AIDS Policy (OIDP), […]
In February 2020, the Lyme Disease Association, Inc. (LDA) asked you to contact your Congress Member and request that he/she sign on to two important letters from the US House Lyme Disease Caucus. The language in the bipartisan letters was developed with input from the LDA and other TBD advocates. Below are links to the […]
The FY20 Tick-Borne Disease Research Program (TBDRP) Program Announcements managed by the Department of Defense (DOD) office of Congressionally Directed Medical Research Programs (CDMRP) are now posted to the grants.gov (search grants by CFDA Number 12.420) and on the CDMRP website. FY20 funding opportunities include the following: · Career Development Award · Idea Development Award […]
Rep. Chris Smith Rep. Collin Peterson ISSUE At this time the Lyme Disease Association, Inc. is asking you to contact your Congress Member to ask him/her to sign on to 2 important letters from the US House Lyme Disease Caucus. These bipartisan letters provide details that the Lyme Caucus is asking the 2 Appropriations Committees […]
The CDC released a report on FY 2018 tick-borne disease funding, which was requested by the Senate Appropriations Committee. The report includes an overview of the request from the Senate Appropriations Committee. It also provides an update on CDC’s work with states and progress in that area. This section includes information on Ticknet, a public health […]
The White House released the Fiscal Year 2021 budget proposal which includes a $14 million increase compared to the 2020 enacted level that focuses on tick-borne diseases. Excerpts from Budget of the United States Government, Fiscal Year 2021: “Prioritizes Critical Health Research and Supports Innovation” … “NIH would continue to address the opioid epidemic and […]
The FY20 Tick-Borne Disease Research Program (TBDRP) Program managed by the Department of Defense (DOD) office of Congressionally Directed Medical Research Programs (CDMRP) has issued a preannouncement for the FY20 funding opportunity. The link to the preannouncement can be found here: https://cdmrp.army.mil/pubs/press/2020/20tbdrppreann FY20 funding opportunities available for the Tick-Borne Disease Research Program (TBDRP) include a […]
The House Lyme Disease Caucus is a bi-partisan group working together in Congress to take action on Lyme & tick-borne diseases. Under the leadership of Congressmen Chris Smith (NJ) and co-chair Colin Peterson (MN), it has initiated letters and actions to benefit Lyme patients, such as the inclusion of the monies for Lyme & tick-borne […]
The Centers for Disease Control (CDC) updated its website to include information regarding maternal-fetal transmission of Lyme disease. According to the CDC, “Untreated Lyme disease during pregnancy can lead to infection of the placenta. Spread from mother to fetus is possible but rare. Fortunately, with appropriate antibiotic treatment, there is no increased risk of adverse birth outcomes.”