Lyme Disease in the Schools: From a Board Perspective By: Pat Smith, President, Lyme Disease Association January 20, 2006 – Twelve years on the Board of Education in my community in New Jersey taught me one thing: board members do not know, cannot know and should not know everything that happens in a school district. […]
Professional & Govt Articles
Professional articles are usually articles in a professional journal which is directed to a specific professional audience– research articles, reports, practical articles– usually published by a professional organization. They are not peer reviewed (see link to peer review).
The Tick-Borne Disease Working Group (TBDWG) was established by the 21st Century Cures Act to improve federal coordination of efforts related to tick-borne diseases. The TBDWG’s purpose is to review federal activities and research related to all tick-borne diseases and provide a summary of its findings and any recommendations regarding changes or improvements to such findings to the HHS Secretary and Congress every two years.
The Tick-Borne Disease Working Group 2020 Report to Congress is now available (Report). The Report was presented to the Secretary of Health & Human Services in December 2020 by the Working Group (WG). The Secretary sent the Report to the Energy & Commerce Committee in the House of Representatives and the Health, Education, Labor, and Pensions […]
The Pike County (PA) Tick Borne Diseases Task Force has provided a 6 minute video slide show with results from the Pike County Tick Borne Diseases Base-Line Study, a county-wide assessment of the tick-borne diseases and infection rates of ticks funded in part by a 2018 grant awarded by the LDA. From Spring 2018 […]
A new study lead by researchers from the University of California Los Angeles (UCLA) analyzed data from the MyLymeData patient registry. The Registry, with over 13,000 enrolled patients, is a project of the non-profit LymeDisease.org.
The researchers used machine learning techniques and analyzed more than 2,000 patients with chronic Lyme disease (CLD) from the database to identify key features associated with improved patient response. They found that the extended use of antibiotics was an important element of improved health.
The results of a study to collect ticks from Pike County, Pennsylvania, conducted by the Northeast Wildlife DNA Laboratory of East Stroudsburg University included real time PCR analysis of ticks countywide. The county was divided into 9 grids, each with several collection sites. The sites were based on use by community members and presence of […]
Fair Health, is “an independent non-profit that collects data for and manages the nation’s largest database of privately billed health insurance claims,” including Medicare Parts A & B. In December 2019, it published a white paper “Trends and Patterns in Lyme Disease, An Analysis of Private Claims Data. The Paper analyzed 30 billion privately billed […]
Elizabeth L. Maloney, MD, President of the Partnership for Tick-Borne Diseases Education and Family Medicine Physician in Wyoming, MN published a paper titled “Reducing the Burden of Lyme Disease” in Minnesota Family Physician. It includes discussion of tick bite management, early treatment, and shared decision-making.
John Aucott, Director, Johns Hopkins Lyme Disease Research Center and Associate Professor of Medicine, Johns Hopkins University, published a piece in The Conversation providing his insight on the highly controversial topic of chronic Lyme disease.
Elizabeth Maloney, MD, explains current Lyme disease testing issues, including the ELISA and Western Blot, sensitivity and specificity of the testing, and the problems associated with the two-tier testing recommended by the CDC. It begins with the general characteristics of diagnostic testing The Summary states: “Serologic testing for Lyme is inaccurate. While the inadequate sensitivity […]