UPDATE 5-6-15: Click here for LDA/LDo Press release on IDSA guidelines process In a move designed to spotlight concerns about the Infectious Diseases Society of America (IDSA) guidelines’ development process, groups in the Lyme community nationwide have come together to make their voices heard. The effort to date consists of three different letters which were […]
Allison DeLongA just published statistical review in Contemporary Clinical Trials, August 19, 2012, has cast doubt on the NIH funded studies which have been used as a basis for Lyme disease guidelines most often used by treating physicians for diagnosis and treatment and by insurers to determine reimbursement, i.e. Infectious Diseases Society of America […]
May 1, 2008, Atty. Gen. Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Iinfectious Diseases Society of America’s (IDSA) process for writing it’s 2006 Lyme disease guidelines and the IDSA has agreed to reassess them what the assess assistance of an outside arbiter. Click here for press release.
January 21, 2012- Congressman Christopher Smith (NJ) with co-signers Congressmen Gibson (NY), and Wolf (VA) recently sent a letter to the National Guideline Clearing House (NGC), Agency for Healthcare Review & Quality (AHRQ) requesting the removal of the highly controversial Infectious Diseases Society of America’s (IDSA) Lyme Disease Treatment Guidelines from the NGC website, since […]
STATEMENT OF THE NATIONAL NON PROFIT LYME DISEASE ASSOCIATION, INC. ON THE IDSA GUIDELINES PANEL DECISION 4-22-10 We are not surprised by the conclusions reached by the IDSA review panel but are certainly disappointed. It is certainly suspect that in considering a disease with numbers on the rise (250% increase from 1993-2008), one which is […]
Analysis: Why Klempner Study is Not Useful to Rule Out Benefits of Long-Term Treatment Allison DeLong, Brown University I. The clinical trial by Klempner et al. cannot be used to assess the effectiveness of re-treatment of Lyme disease in patients with continued symptoms following standard treatment A. The trial was poorly designed […]
IDSA Violates Lyme Antitrust Settlement Agreement with Connecticut Attorney General Greenwich, CT, February 4, 2010 – On Monday, February 1, 2010, the Connecticut Attorney General Richard Blumenthal sent a letter to the IDSA expressing “concern” over “improper voting procedures” used by the IDSA in the Lyme guidelines review voting process. The IDSA may soon approve […]
FOR IMMEDIATE RELEASE CONTACT: Melissa Chefec, 203-968-6625 or Nicole Rodgers, 202-822-5200, ext. 249/226 Settlement Announced in Landmark Investigation of Lyme Disease Diagnosis and Treatment Guidelines Patients’ Rights Groups Applaud Connecticut Attorney General Blumenthal’s Settlement in Anti-trust Case Against Powerful Medical Society Hartford, CT, May 1, 2008 – Patients’ rights groups today hailed Connecticut Attorney […]
Lyme Organizations: New IDSA Guidelines Panel, Unbalanced & Biased Congressman and Patient Groups Voice Concerns Greenwich, CT, January 28, 2009 – Patient groups voiced concern and disappointment about the new Infectious Diseases Society of America (IDSA) Lyme disease guidelines’ panel, which excludes physicians who treat patients with chronic Lyme disease. Last May, the Connecticut Attorney […]
FOR IMMEDIATE RELEASE CONTACT: April 9, 2008 Nicole Rodgers or Eliza Brinkmeyer 202-822-5200, ext. 249/226 Lyme Disease Physicians and Patients Expose Research Group’s Ploy to Silence Them Already caught up in an anti-trust investigation, IDSA opposes research bill in order to maintain monopoly over Lyme diagnosis and treatment options Washington, DC – Physicians specializing in […]