1

2019 Annual Scientific Conference: Lyme & Other Tick-Borne Diseases: 20th Annual Scientific Update for Clinicians & Researchers

CONFERENCE SOLD OUT

The Lyme Disease Association will hold the 20th annual scientific conference, Lyme & Other Tick-Borne Diseases: 20th Annual Scientific Update for Clinicians & Researchers, on September 21 & 22, 2019 in Philadelphia, PA at the Hilton Penn’s Landing on the banks of the Delaware. Columbia University jointly provides the conference.

This conference is designed for medical & health professionals & researchers, but it is also open for registration to the general public. Adults only. Scholarships for conference and transportation will be made available for Medical student; resident; post-doctoral candidate; fellow;  nurse practitioner candidate; doctor or nurse practitioner new to practice, i.e., less than 5 years experience; veterinarian with equivalent status to the aforementioned; physician assistant whose sponsoring physician writes a letter of
support on office letterhead;  representative from a public health department.

The conference features faculty consisting of clinicians and researchers from across the US and other countries. Brian A. Fallon, MD, MPH, Columbia University College of Physicians & Surgeons, the Conference Director, will speak on Clinical Trials: Biologic & Clinical Measures of Change. Other speakers include Charles Chiu, MD PhD: Multi-Omics approaches to diagnosing Lyme & TBD; George Chaconas, PhD: Intravital imaging to study Lyme dissemination; Adrian Baranchuk, MD: Lyme carditis diagnosis & management; Emir Hodzic, DVM, PhD: Post-treatment persistence of Bb in mouse model; Mark Soloski: PhD, LD host immune response; Holly M. Frost, MD: Pitfalls of LD serologic assays; Ingeborg Dziedzic, MD: Lyme disease & the eye; Lance A. Liotta, MD, PhD: Shedding of urinary tick pathogen-specific proteins in patients with tick borne diseases; and Osama Haddad, MD: Mitral Valve Endocarditis: A Rare Manifestation of Lyme Disease

Additional speakers are Margaret MacDonald, MD, PhD: Powassan virus; Choukri Ben Mamoun, PhD: Babesia duncani in vitro culture; Philip Strandwitz, PhD: The Gut-Brain-Axis – Potential Therapeutic Targets and J. Stephen Dumler, MD: Human Granulocytic Anaplasmosis-Emerging Faster than Lyme; Daniel Sonnenshine, PhD: Expansion of TBD vectors & implications of spread of TBD; and Paige Armstrong, MD, MHS: Rickettsial diseases; Robert Naviaux MD, PhD: Lyme & Chronic Fatigue Syndrome;  Eric Storch, PhD: Obsessive Compulsive Disorder; Peter Novak, MD, PhD: Neurological correlates of Post Treatment Lyme Disease Syndrome; and Joanna Lyon, PharmD, MEd: The possible association between the human ABCB1 gene and Post Treatment Lyme Disease Syndrome. Elizabeth Maloney, MD and Sam T. Donta, MD will be conference facilitators.

Speakers represent Columbia University, Johns Hopkins University School of Medicine, Yale School of Medicine, Mayo, Harvard Medical School, Uniformed Services University, CDC, UCSF School of Medicine, Queens University Canada, University of Calgary Canada, Northeastern University, University of Colorado School of Medicine, UC Davis Veterinary Medicine, Rockefeller University, UCSD School of Medicine, University of Maryland School of Pharmacy, Old Dominion University, George Mason University, University of Oklahoma Health Sciences Center, Baylor College of Medicine and an ophthalmology practice.

Click here for Agenda

Click here for Faculty Biographies

Click here for Conference Flyer

Click here for Conference Brochure

Click below for Pre-Conference Video

 


Poster Presentations
Abstracts will be considered for poster presentations at the conference – submission deadline TBA
email: Baf1@cumc.Columbia.edu, copy to bettymal2003@yahoo.com


Exhibit space
Exhibit space will be available. 


Hilton Philadelphia at Penn’s Landing
201 S. Christopher Columbus Blvd., Philadelphia, Pennsylvania 19106
(website)

For online reservations click here (Room Block)

Or call 1-215-521-6500 (You must tell the hotel that you are a “Lyme Conference Attendee” for the room block discount)

Parking:
Self parking: $32.00 (Connected to hotel)
Valet: $44.00 (24 hour service)
 
Check-in 3 pm / Check-out 12 pm

 

Click here for Photos from 2019 Conference (alternate view)

Or use page navigation for photos below

ngg_shortcode_0_placeholderPhotos from Prior Conferences

Zhang Lyme Disease Association Conference 2015Ying Zhang, MD, PhD, Johns Hopkins School of Public Health – November 14, 2015 – LDA/Columbia Annual Scientific Conference (LDA file photo)
 
DSC03118 Breen sm2Joseph Breen, PhD National Institutes of Health (NIH) Morning Facilitator – May 3, 2014, LDA/Columbia Annual Scientific Conference (LDA file photo) 2012 Conf Speak LQ14September 29, 2012, LDA/Columbia Annual Scientific Conference ~ Discussion (morning speakers) (Photo: Jessica Harper Thomson)

Conference Registration
Exhibitor Registration

 




10th Meeting of TBDWG – Sept 12, 2019 Summary

The tenth meeting of the Tick-Borne Disease Working Group (TBDWG) was held via webcast on Sept 12, 2019 from 9:00 a.m. to 3:00 p.m. ET. 

 

 

  • Subcommittee members were announced, and the Working Group received reports from the eight subcommittees that were formed during the June 4, 2019 meeting. 
  • Two subcommittee name changes were approved, since the Subcommittees felt names did not reflect the focus of the Subcommittees. Dr. Ben Beard, CDC, presented the change to the first committee, and Pat Smith, President LDA presented the change to the second. The two Subcommittees are now 1.) Babesiosis & Tick-Borne Pathogens and 2.) Training, Education, Access to Care & Reimbursement. Dr. Beard indicated his committee needed to include more of the tick-borne diseases and not just viral TBD. Ms. Smith was concerned because Working Group discussion had included Access to Care & Reimbursement and that without that aspect in the title, patients needs  were being being removed from the focus of the Subcommittee.
  • Public comments were presented by eight patients and avocates over a 30 minute time period. Issues shared included alpha-gal, 2019 TBDWG membership as it relates to patient/advocate representation, and transparency of the TBDWG process.
  • Three topic development briefs were shared with the Working Group. A common theme throughout the briefs was that the most existing research that had been collected in this process is either inconclusive or indicates that further research is needed in each of the three topic areas presented. The three topic development briefs were: 1.) Cause of increase for tick-borne diseases, 2.) Cause of persistent Lyme disease, and 3.) State of current testing for tick-borne diseases.
  • The Working Group created a new subcommittee, Federal Inventory, to analyze the new Federal inventory content for use in the 2020 report to congress. LDA President and TBDWG member, Pat Smith, volunteered to Chair this committee and Sam Donta volunteered to be Co-Chair.
  • Pat Smith also requested the list of NIH grants be released to the public.
  • Timeline for subcommittee work and dates for the next two (in-person) TBDWG meetings were announced.

The next (in-person) public meetings will be held January 28 & 29, 2020 in Washington, DC and March 3 & 4, 2020 in Philadelphia, PA

For details visit HHS-TBDWG webpage

Comments to the TBDWG may be emailed directly to tickbornedisease@hhs.gov




Scholarship Application

NO MORE SCHOLARSHIPS AVAILABLE

Lyme & Other Tick-Borne Diseases: 20th Annual Scientific Update for Clinicians & Researchers


If you DO NOT meet the below eligibility requirements, PLEASE DO NOT APPLY.

Who is eligible to apply

Medical student; resident; post-doctoral candidate; fellow;  nurse practitioner candidate; doctor or nurse practitioner new to practice, i.e., less than 5 years experience; veterinarian with equivalent status to the aforementioned; physician assistant whose sponsoring physician writes a letter of support on office letterhead;  representative from a public health department.

What is the scholarship for

To enable participation in the LDA/Columbia CME Conference  “Lyme Disease Association’s 20th annual  Lyme & Other Tick-Borne Diseases Scientific Conference”  (September 21 & 22, 2019, Philadelphia, PA)

Why is this scholarship being provided

Our goal is to disseminate knowledge to the above eligible categories so they can learn from leading scientists and clinicians about the progress in Lyme & tick-borne diseases. Such knowledge stimulates novel research ideas, forges collaborations, and enhances clinical care.

Deadline

LDA must receive the application from you by August 1, 2019 to be considered for a scholarship. Applicants will be considered on a first come first serve basis until the funds are depleted.

How will the scholarships be awarded

Scholarships will be awarded at the sole discretion of the Lyme Disease Association, Inc. (LDA). If the information you provided is found subsequently to be untrue, you will be required to reimburse the LDA for the full cost of the scholarship award.

How will the scholarship will be administered

The LDA will notify you of its decision.  If you are accepted, detailed instructions will be sent to you.  Reimbursement policies will be sent to you at the time of acceptance.

Total of scholarship including registration fee, hotel, and transportation will not exceed $1,000. ALL expenses are incurred by you upfront for conference registration, hotel and transportation.  Accepted applicants will need to submit an LDA reimbursement form with all receipts attached after the conference to receive eligible reimbursement up to $1,000.


How to Apply

Submit the following documentation to certify your eligibility for this scholarship:

  1. Verify identity:
    • ID card from the institution/practice/health dept. in which you are attending/employed OR
    • Letter on institution/practice/health dept. stationary signed by the department chair, dean, faculty mentor/member who knows you the best, doctor or director. His/her contact information should be included.
  2. Personal W-9 (don’t forget to sign and date it)
  3. The online application form below and required documents you will upload must be received by August 1, 2019 (12M ET). Questions email LDA@LymeDiseaseAssociation.org

2019 Conference Scholarship Application

  • Max. file size: 32 MB.
  • Max. file size: 32 MB.
  • Max. file size: 32 MB.

THANK YOU!
This activity is supported by independent educational grants from:

Steven & Alexandra Cohen Foundation

CohenLogo


2019 Scientific Conference Jointly Provided by




Educate Your Doctors! Publicize the 20th Annual Lyme Conference

Help ensure that our doctors and others are educated about Lyme and tick-borne diseases.
 
The Lyme Disease Association & Columbia University will be holding their 20th CME scientific conference, Lyme & Other Tick-Borne Diseases: 20th Annual Scientific Update for Clinicians & Researchers, on September 21 & 22, 2019 in Philadelphia, PA at the Hilton Penn’s Landing on the banks of the Delaware. 
 
Please print CONFERENCE FLYER and distribute to places in your community such as:
  • Doctor’s office2019 Conference Flyer
  • Local hospital
  • Urgent Care Centers
  • School Nurse
  • Support group meetings
  • Library
Note: adjust printer for legal-sized paper
 
Click here to Register
Click here for General Info
Pre-Conference Video



Exhibitor Registration

CONFERENCE SOLD OUT

Exhibitor Opportunities

LDA/Columbia University Conference 

Lyme & Other Tick-Borne Diseases: 20th Annual Scientific Update for Clinicians & Researchers

Sept. 21 & 22, 2019
Hilton Philadelphia at Penn’s Landing, Philadelphia, PA


General Information

A limited amount of space for exhibitors is available on a first come, first served basis. Each space is $1,275 which includes 1 standard table, 2 chairs. Exhibit fee includes only one conference admission (see “entrance badge name” on form). One other company representative can sit at the table but must register and pay for a separate conference admission if he/she intends to enter the conference itself. Exhibit space is limited to a table. Those with a popup need to contact LDA first to see if a slot is available for a popup and any extra charge that might be necessary. Exhibitors are responsible for payment of any box handling charges they incur while shipping to the hotel and any electric they order from the hotel.


Terms & Conditions

Deadline for receiving online registration to be included in conference book is 12M Eastern time, July 28, 2019

No cancellations after registration received.

No audiotaping, videotaping or picture taking of the conference is permitted.

If hotel requires a breakdown Saturday after conference and reset Sunday of exhibits, it is beyond control of the LDA

For sending packages to the hotel and for any electrical services, you need to contact the Hotel for details and any charges will be paid to Hotel by you.


How to Register

By Mail

  1. Print out Conference Exhibitor Letter (Letter pdf)
  2. Complete Exhibitor Registration By Mail Form and mail in with check or money order.
  3. Download, fill out and return the Conference Exhibitor Agreement form.

Online (2 steps required)

  1. Print out & read Conference Exhibitor Letter (Letter pdf)
  2. Complete form below
  3. Download, fill out and upload the Conference Exhibitor Agreement form this form below.

Email: LDA@LymeDiseaseAssociation.org with questions

Once LDA has received registration form, payment, and reviewed the Exhibitor Contract you will be notified of final acceptance.


2019 Exhibitor Registration

  • If not applicable write (NA)
  • Max. file size: 32 MB.
  • Payment Information

  • $0.00
  • American Express
    Discover
    MasterCard
    Visa
    Supported Credit Cards: American Express, Discover, MasterCard, Visa
     

 




President's Blog
Tick Talk from Washington, DC & the Scoop on Companion Bills

State CapitalThe last year has seen a flurry of activity in Washington. Here’s the scoop on the bills, briefings, and bipartisan politics.

2018 HISTORY  In the last Congress, May 2018, HR 5900, “National Lyme and Tick-Borne Diseases Control and Accountability Act of 2018’’ was introduced into the US House of Representatives by Congressman Christopher H. Smith (R-NJ). Representative Collin Peterson (D-MN) and others cosponsored the bill. The Act will establish the Office of Oversight and Coordination for Tick-Borne Diseases in the Office of the Secretary of Health & Human Services (HHS) to be headed by a director appointed by the Secretary. The bill purposes are to oversee the creation and establishment of an integrated national strategy to overcome Lyme disease and other tick-borne diseases (TBD) and to oversee and coordinate Lyme and TBD programs and activities across agencies and offices of HHS.

The objectives of the Office of Oversight & Coordination for Tick-Borne Diseases include expansion and enhancement of research; expansion and improvement of surveillance and reporting of Lyme and TBD; development of effective diagnostic tests to accurately and timely diagnose, including direct detection tests; development of treatments to cure or improve the lives of those affected with Lyme & TBD/ disorder; design and conduct clinical trials of sufficient size and duration to support clinical recommendations; development of patient registries; documentation of experiences of health care professionals in diagnosing TBD; inclusion of individuals with chronic Lyme disease in clinical, research; coordination with international bodies.

 The Lyme Disease Association had significant input into development of the bill, but Congress ended before any action was taken.  Lyme & TBD Control & Accountability Act of 2018

2019 EFFORTS  Congressman Smith (R-NJ) introduced the identical bill to the above HR-5900 in the new Congress, January 3, 2019. Collin Peterson (D-MN) was onboard as lead co-sponsor of this bipartisan legislation, HR 220. The two Congressmen are co-chairs of the House Lyme Disease Caucus and have initiated many actions over time to bring help to those afflicted with Lyme and other TBD.  In 2017, Mr. Smith’s state of NJ ranked 3rd in Lyme disease case numbers (~12% of all Lyme in US) and Mr. Peterson’s state of Minnesota ranked 5th  (with ~5 ½% of cases). This bill with the same provisos as in the 2018 History above, sits idling in the House Energy & Commerce Committee. Lyme Bill HR 220

In May 2019, the Senate Committee on Aging asked me to provide a phone briefing for them on Lyme and TBD and to provide follow-up material. That Committee is chaired by Senator Susan Collins (R-ME), whose state ranks 8th in case numbers (with 4+% of all Lyme in the US). The Senator’s office also held meetings on Lyme with the Midcoast Lyme Disease Support & Education non-profit, an affiliate partner of the Lyme Disease Association, Inc. 

On May 23rd, I went to Washington to provide a briefing to a packed room of House staff arranged by Congressman Chris Smith (R-NJ). CDC’s Paul Mead, Columbia’s Dr. Brian Fallon, Live Lyme Foundation’s Olivia & Holiday Goodreau also spoke. Congressman Smith opened with the seriousness of Lyme and TBDs, and his decades of frustration with his work in Congress to get Lyme legislation passed to help patients—legislation similar to other disease legislation he has gotten passed without the strenuous opposition he faced with Lyme. He then spoke about Kris Newby’s newly released book, Bitten, which credibly documents a biological warfare program in the US which focused on ticks and tick-borne diseases. He announced his efforts to have an investigation to determine what happened, how it happened, and what impact it may have had on the current Lyme and TBD situation. Tornado warning sirens ended the briefing after two hours, a long time in DC. Congressman Chris Smith Guest Blog

Simultaneous to the House briefing, Senator Susan Collins (R-ME), along with Tina Smith (D-MN), a member of the Senate Health Committee, and Senator Angus King (I-ME) an original cosponsor, introduced a bipartisan effort to improve research, prevention, diagnostics, and treatment for tick-borne diseases. The Tick Act, Ticks: Identify, Control, and Knockout (TICK) Act, S1567, is an effort to effort to improve research, prevention, diagnostics, and treatment. The Tick Act incorporates significant language from the HR 220 Smith bill above to establish an office for tick-borne diseases but broadens the scope to vector-borne diseases, which include tick-borne diseases but also mosquito and other insect-borne diseases. The bill also reauthorizes Regional Centers for Excellence in vector-borne diseases for FY2021-2026, $10M per fiscal year, as their current funding runs out in 2021. Additionally, the bill authorizes CDC grants of $20M per year to state health departments to improve collection of data, improve early diagnosis, improve treatment, and raise awareness.

On May 29, Congressman Smith hosted a Congressional Town Meeting on Lyme & TBD in Wall, NJ. Dr. Ben Beard, CDC, Dr. Richard Horowitz, and I spoke for over 3 hours to a packed room despite flash flood and tornado warnings, DC déjà vu. Press coverage of the event was great. Some individuals in positions to help are beginning to take Lyme seriously. Read More

As I traveled to DC to be sworn in for a second term as a public member representing patients on the Health & Human Services Tick-Borne Disease Working Group on June 3, 4, Representative Christopher Smith (R-NJ), with lead co-sponsor Representative Collin Peterson (D-MN) was introducing a companion bill, the identical House version of the Tick Act, HR3073, into the House of Representatives. It was referred to the House Energy & Commerce Committee. APP: ‘Tick Act’ expected to aid fight against Lyme disease

Pat Smith Appointed to New Panel of TBDWG

LDA POSITION  The Lyme Disease Association supports all of these bills. With the companion bills, we have to ensure whenever we can both during the process of passage and after passage that the monies will be distributed according to disease burden in the US, a proviso that LDA successfully strove to get included in the legislation.  CDC says tick-borne diseases made  up 77% of vector-borne diseases from 2004-2016. That is why we need the lion’s share of funding to go to tick-borne diseases, especially Lyme disease, with its 427,000 cases in 2017.

No tornadoes occurred during my last Working Group trip to DC; however, I picked up an unwelcome hitchhiker that “latched” on to me in DC, a tick that either decided NJ was a great place to vacation or heard that I was a danger to her kind. My 35 years working to help patients with tick-borne diseases has confirmed that we have to simultaneously deal with diagnosing and treating patients with tick-borne diseases while dealing with the perpetrators of the epidemic− to quote New York Lyme advocate Jill Auerbach, “well, it’s the ticks of course!”  Let’s help these legislators provide government with the tools necessary to make our patients well, to stop ticks, and reclaim our outdoors.  

 




Pat Smith Appointed to New Panel of the TBDWG

Patricia V. Smith, has been appointed as one of the public members of the new panel for Health and Human Services Tick-Borne Disease Working Group (TBDWG).  Pat is in her 22 year as President of the all-volunteer run national non-profit Lyme Disease Association (LDA) and has been a leading voice and advocate for patients for over 3 decades. She was instrumental in writing and passing the legislation that resulted in the formation of this federally mandated TBDWG. This appointment was announced publicly during the first meeting of the new TBDWG on June, 4, 2019. 

 

Pat Smith, HHS TBDWG meeting, June 4, 2019. Photo courtesy of LymeDisease.org.

As witnessed during the meeting, Pat will continue to be the voice of the patient and the growing numbers of chronically ill.  The panel convened for introductions, to hear public comment, and to develop subcommittee topics and establish subcommittee chairs to begin the work toward the next report to Congress due November of 2020.  Unlike last term, nomination for subcommittee members will not be publicly solicited, but will be selected by the prospective co-chairs for each of the 7 subcommittees determined at the meeting. 

Swearing in of the HHS TBDWG members, June 4, 2019. Photo courtesy of LymeDisease.org.

 

 

Pat served on the inaugural panel of the TBDWG, which presented it’s first report to Congress in November of 2018.  She is joined for a second term by other returning members:

Charles Benjamin (Ben) Beard, Ph.D.-Deputy Director, Division of Vector-Borne Diseases, National Center for Emerging and Zoonotic Infectious Diseases, Centers for Disease Control and Prevention;

Dennis M. Dixon, Ph.D.-Chief, Bacteriology and Mycology Branch, National Institute of Allergy and Infectious Diseases, National Institutes of Health

Captain Estella Jones, DVM– Deputy Director, Office of Counterterrorism and Emerging Threats, Food and Drug Administration 

Other new public and federal members and their alternates were also announced at the first meeting of the new TBDWG panel, which took place June 4, 2019 in Washington DC, and include: 

Public Members

The new Working Group will be chaired by David Hughes Walker, M.D., Professor of Pathology and Executive Director, University of Texas Medical Branch Center for Biodefense and Emerging Infectious Diseases. He is an expert in Rickettsial diseases, particularly RMSF; and Leigh Ann Soltysiak, Owner, Principal, Silverleaf Consulting, LLC. 

Robert Sabatino– Founder and Executive Director, Lyme Society Inc., Staten Island, New York (Term expires in August 2019).

Scott Palmer Commins BS, M.D., Ph.D.– Associate Professor of Medicine & Pediatrics, University of North Carolina at Chapel Hill; Member, UNC Food Allergy Initiative, Thurston Research Center (Chapel Hill, North Carolina)

Sam T. Donta, M.D.– Infectious Disease Consultant, Falmouth Hospital; and Former Member, U.S. Department of Defense Tick Borne Disease Research Programmatic Review Panel (Falmouth, Massachusetts)

Eugene David Shapiro, M.D.– Professor of Pediatrics, Epidemiology, and Investigative Medicine, Yale University School of Medicine; Vice Chair for Research of the Department of Pediatrics; Co-Director of Education for the Yale Center for Clinical Investigation; and Deputy Director of Yale’s PhD Program in Investigative Medicine (New Haven, Connecticut)

Regular Government Employees (Federal Members)

Commander Rebecca Bunnell, MPAS, PA-C– Senior Advisor, Learning and Diffusion Group, Innovation Center, Centers for Medicare and Medicaid Services

Angel M. Davey, Ph.D.– Program Manager, Tick-Borne Disease Research Program, Congressionally Directed Medical Research Programs, U.S. Department of Defense

Leith Jason States, M.D., MPH (FMF)– Deputy Chief Medical Officer, Office of the Assistant Secretary for Health, U.S. Department of Health and Human Services

Adalberto (Beto) Pérez de León, M.D.– Director, Knipling-Bushland U.S. Livestock Insects Research Laboratory, Agricultural Research Service, U.S. Department of Agriculture

Alternate Government Employees (Federal Members)

Chien-Chung Chao, Ph.D.– Research Chemist, Viral and Rickettsial Diseases Department Infectious Diseases Directorate, Naval Medical Research Center, U.S. Department of Defense

Captain Scott J. Cooper, MMSc, PA-C- Senior Technical Advisor and Lead Officer for Medicare Hospital Health and Safety Regulations, Centers for Medicare and Medicaid Services

Shahla Jilani, M.D.-Deputy Chief Medical Officer, Office of the Assistant Secretary for Health, U.S. Department of Health and Human Services

David A. Leiby, Ph.D.-Chief, Product Review Branch, Division of Emerging & Transfusion-Transmitted Diseases, Office of Blood Research & Review, Center for Biologics Evaluation & Research, Food and Drug Administration

Commander Todd Myers, Ph.D.-Scientist, Office of the Chief Scientist, Office of Counter Terrorism and Emerging Threats, Food and Drug Administration

Samuel S. Perdue, Ph.D.-Section Chief, Basic Sciences and Program Officer, Rickettsial and Related Diseases, Bacteriology and Mycology Branch, National Institute of Allergy and Infectious Diseases), National Institutes of Health

Susanna N. Visser, Dr.PH -Associate Director for Policy, Division of Vector-Borne Diseases, National Center for Emerging and Zoonotic Infectious Diseases, Centers for Disease Control and Prevention

HHS TBDWG website

HHS TBDWG Members Press release




Congressional Town Meeting Weathered the Storm

Pat Smith, Lyme Disease Association President, is shown with US Congressman Chris Smith (R-NJ); C. Ben Beard, Deputy Director, Division of Vector-Borne Diseases Center for Disease Control and Prevention, Dr. Richard Horowitz, Internist in Private Practice in New York  at Congressional Town Hall Meeting. Photo by Joyce Scatuccio Jolliffe

On May 29, 2019, The Lyme & Tick-Borne Diseases Congressional Town Meeting Sponsored by Congressman Christopher H. Smith (NJ-4) was held in the Wall Township, NJ, Municipal Building. Despite tornado warnings, flash flood warnings with torrential rains, a packed house of more than 200 people attended the three and a half hour event.

Wall Mayor Kevin Orender gave opening remarks on the seriousness of Lyme followed by Congressman Chris Smith discussing the spread of Lyme and tick-borne diseases and the difficulties of getting legislation passed to try to prevent disease and to help get research monies for patients who have difficulty getting diagnosis and treatment. He showed a stack of bills he has authored over two decades for Lyme disease. Dr. Ben Beard, Deputy Director , CDC Division of Vector-Borne Diseases, spoke on “Tick-Borne Diseases in the US: Burden, Trends, & What You Can Do To Protect Yourself.”  Dr. Richard Horowitz, Internist in Private Practice in New York, provided “Updates in the Diagnosis & Treatment of Lyme & Chronic Disease.”  Pat Smith, President, Lyme Disease Association, Inc.,  presented “Lyme & Tick-Borne Diseases: Their Spread, The Ticks, & Government Activity.”

Question & Answer session followed. View all Congressional Town Hall presentations on Rep. Smith’s website 

More Lyme information from Congressman Smith:
News 12 NJ – Rep. Smith: Federal funding for tick-borne diseases is a ‘joke’

Asbury Park Press (Jerry Carino)Lyme disease a bioweapon gone awry? Rep. Chris Smith pushes Trump to investigate

Video: News 12 NJ

Video: Asbury Park Press




Lyme & Tick-Borne Diseases Congressional Town Meeting

The Lyme & Tick-Borne Diseases Congressional Town Meeting will be held Wednesday, May 29, 2019 from 6:45pm-930pm at the Wall Township Municipal Building Community Room, 2700 Allaire Rd, Wall Township, NJ.  The town meeting is sponsored by US Congressman Christopher H. Smith. Hear from nationally-recognized Lyme disease experts about current efforts to combat Lyme and Tick-Borne diseases, updates on diagnosis and treatment, and how to protect yourself and your family, and more.  LDA president, Pat Smith, will join US Congressman, Christopher H. Smith; CDC, Deputy Director, Division of Vector-Borne Diseases, Ben Beard, PhD; and Richard Horowitz, MD as speakers at the meeting.  Seating is limited, and advanced registration is required.  To register click here, or visit ChrisSmith.House.gov.

 




US House Caucus Letter for Lyme/TBD Appropriations

The House Lyme Caucus members sent this letter to the House Appropriations Committee for inclusion in the 2020 Labor HHS Appropriations.  2019-03-28 FY 20 Lyme LHHS