The last year has seen a flurry of activity in Washington. Here’s the scoop on the bills, briefings, and bipartisan politics.
Author: Monica White
About Monica White
Posts by Monica White:
Patricia V. Smith, has been appointed as one of the public members of the new panel for Health and Human Services Tick-Borne Disease Working Group (TBDWG). Pat is in her 22 year as President of the all-volunteer run national non-profit Lyme Disease Association (LDA) and has been a leading voice and advocate for patients for […]
On May 29, 2019, The Lyme & Tick-Borne Diseases Congressional Town Meeting Sponsored by Congressman Christopher H. Smith (NJ-4) was held in the Wall Township, NJ, Municipal Building. Despite tornado warnings, flash flood warnings with torrential rains, a packed house of more than 200 people attended the three and a half hour event. Wall Mayor Kevin […]
The House Lyme Caucus members sent this letter to the House Appropriations Committee for inclusion in the 2020 Labor HHS Appropriations.
Since 2016, the Congressionally Directed Medical Research Programs (CDMRP) Tick-Borne Disease Research Program (TBDRP) has received a $5 million Congressional appropriation each year to allocate to awardees focused on Lyme disease research or research on other tick-borne disease (TBDs). Awards address at least one of four TBDRP focus areas which include diagnosis, treatment, prevention, and […]
Lorraine Johnson, JD, MBA, Chief Executive Officer of LymeDisease.org delves into the importance of meaningful patient representation on the Federal HHS Tick-Borne Disease Working Group (TBDWG) in her latest blog. This is especially important as we await the announcement of panelists to the new TBDWG charged with the next report to Congress due in 2020. […]
May Awareness LDA Guest Blogger, Dr. Richard I. Horowitz, MD, PLLC: “Why Patients with Chronic Lyme-MSIDS Should Have Hope” …. These doctors all wanted to know how to treat their sickest and most resistant patients with chronic Lyme symptoms who were also being adversely affected by environmental illness […]
The 5th Annual Midcoast Lyme Disease Support & Education Conference was another success! The conference was held on Friday, April 26th at the Augusta Civic Center, in Augusta, Maine. Admission was free for the all day event. The positive feedback from all who attended, including community partners and exhibitors, was as Paula Jackson Jones, President […]
A revised complaint has been filed for the Torrey et al v. Infectious Diseases Society of America et al lawsuit initiated in 2017. The initial lawsuit was filed on behalf of Lyme disease patients who say they have been denied care which resulted in harm under existing insurance and medical protocols. Plaintiffs claims include injury […]
In a recent study by Allison DeLong, Mayla Hsu and Harriet Kotsoris, published April 24, 2019, findings show the cumulative prevalence of post-treatment Lyme disease (PTLD) in the United States is estimated to be high and predicted to increase. In the study, the authors estimated the number of PTLD cases in the US in 2016 […]