LDA Board of Directors – Patricia V. Smith, BA
Lyme Disease Association Inc. Board of Directors 2023 Patricia V. Smith, BA President Patricia V. Smith, a Monmouth University graduate, is in her 26th year as President of the […]
Lyme Disease Association Inc. Board of Directors 2023 Patricia V. Smith, BA President Patricia V. Smith, a Monmouth University graduate, is in her 26th year as President of the […]
Lorraine Johnson, JD, MBA
Chief Executive Officer, LymeDisease.org
Principal Investigator, MyLymeData
A data-driven approach to optimizing clinical study eligibility criteria based on MyLymeData registry data
Today I took time out of my schedule to watch a movie, one I’d heard about but not seen, one that deals with an issue I have advocated and educated for over 39 years. After 4 decades, people ask me why do I continue to volunteer for the Lyme disease cause. This movie lays it out; my life flashed before my eyes, emotions tore at my heart─ anger and sadness─ and brought me to tears. Quiet Epidemic is a journey through the often times sordid history of Lyme to the present through the words and deeds of some of the most competent and giving scientists and doctors in the Lyme movement, including doctors Brian Fallon, Rich Horowitz, Ken Liegner, and others too numerous to mention.
Hart C., et al, published “Powassan Virus Lineage I in Field-Collected Dermacentor variabilis Ticks, New York, USA, in Emerging Infectious Diseases, on January 13, 2023. Powassan virus (POWV) is a tickborne flavivirus that can cause lethal or debilitating neurologic illness. POWV was initially found in the woodchuck tick, Ixodes cookei, and later in the I. scapularis tick.
An article in bayjournal.com, “Study: Controlled burns reduce ticks, Lyme disease” was published on Jan 13, 2023, written by Ad Crable. The article covers a study published in Ecological Applications in which researchers from Penn State, the U.S. Forest Service and New Jersey Department of Environmental Protection demonstrated that “more use of prescribed burns on public and private forests could help reduce both the numbers of ticks and incidence of the disease.”
On December 5, 2022, John D Scott, et al., published “Molecular Detection of Anaplasma phagocytophilum, Babesia odocoilei, Babesia species and Borrelia burgdorferi Sensu Lato in Songbirds” in Journal of Biomedical Research & Environmental Sciences. Songbirds in North America (Order: Passeriformes) are parasitized by the blacklegged tick, Ixodes scapularis, larvae and nymphs.
Pat Smith, President of the Lyme Disease Association, Inc, presented at the 7th Annual LymeMIND Virtual Conference on November 5, 2022, on the panel, Finding Your Voice and Fighting for the Future – A Discussion on Patient Advocacy, Clinician Education and Access to Care. Speakers included Lorraine Johnson, CEO of LymeDisease.org and principal investigator of MyLymeData; and Elizabeth Maloney, MD, President of Partnership for Tick-Borne Diseases Education, with moderator, Bennett Nemser, PhD
PA Lyme Resources Presents Lyme Impact Series – LDA President, Pat Smith on Lyme Disease: 47 years – Past, Present & Moving Forward, May 17th, 2022 TOPICS COVERED IN VIDEO: […]
Katherine Leavey, et al., published, “Lyme borreliosis in pregnancy and associations with parent and offspring health outcomes: An international cross-sectional survey” in Frontiers in Medicine on November 3, 2022. Data regarding the health outcomes of people infected with Lyme disease during pregnancy is limited, as is perinatal transmission to their fetus, and the long-term effects on their children…
Rappahannock News published “Lyme disease is on the rise in Rappahannock. The pandemic obscured by how much.” In the past five years, Rappahannock-Rapidan Health District has seen a rise in cases of Lyme disease, Rocky Mountain spotted fever, Anaplasmosis, and Ehrlichiosis. However, local residents and experts believe case numbers of tick-borne diseases have been vastly under-reported in Virginia.
LDA Doctor Referral System © Terms & Conditions and Guidelines
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About LDA DOCTOR REFERRAL SYSTEM ©
Welcome to the Lyme Disease Association’s LDA Doctor Referral System ©. LDA made updates and enhancements to its prior system and has launched a new site to provide patients with information about doctors, other practitioners, testing labs, and pharmacies that are knowledgeable about chronic Lyme disease and often about many other tick-borne diseases (TBD). Many of the doctors listed are often referred to as Lyme Literate Physicians/Doctors (LLMD). Tens of thousands of patients have successfully used the prior LDA system to locate Lyme and TBD resources.
Terms & Conditions and Guidelines
Because there is a negative political climate surrounding Lyme disease, many LLMDs do not want their names posted outright on the internet. LDA has tried to balance the doctors’ wishes with patients’ need to find a doctor. This new system is a result of that compromise and therefore:
Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines, Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the LDA Doctor Referral System © contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the location entered and specaialty/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of so we can investigate.
Some providers may not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. Contact the provider to confirm.
It is your responsibility to contact the provider’s office to confirm the current address, directions, nature of services provided, and all other provider information before you make an appointment.
DISCLAIMER: The Lyme Disease Association, Inc. provides referrals to health care providers who treat Lyme disease, and often other TBD, as a courtesy to those seeking Lyme Literate Physicians (LLMD). However, some of the providers included do not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. We do not evaluate the professional competence or qualifications of health care providers on our referral list or the costs of services provided. Accordingly, the LDA neither warrants nor endorses the health care providers contained on this list nor the quality of care you will receive from those providers. We do not make recommendations, only referrals. LDA does not receive any monies from physicians to be included on this list nor does LDA provide any monies to physicians. Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines: Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the Doctor Referral System contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the zip code entered and category/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of.
LDA does not accept or reply to any comments on:
We cannot guarantee that the information provided will be timely and accurate or that physicians on the list are accepting new patients, or that they accept insurance. The selection of a physician should be made by you after careful consideration. There are two approaches in the treatment of Lyme disease. Our list contains physicians who generally follow more flexible treatment approaches than those advocated by the Infectious Diseases Society of America (IDSA). LDA is not responsible for incorrect information on the website. BEFORE DOCTOR VISIT: Please contact the physicians’ offices directly to confirm their current address, directions, and any other necessary information before scheduling an appointment. Do not rely only on the maps provided on this site. The maps on LDA’s Doctor Referral System are for informational purposes and provide an approximate locality of the listing based on the addresses we are provided with at the time of site updates. Practitioners often relocate and addresses can change. Notification of changes in listed information can be updated on our Dr. Referral Contact Form. Thank you, Lyme Disease Association, Inc. (LDA)
Subscriber information will not be shared outside of the Lyme Disease Association, Inc. nor used for donor solicitation.
The Lyme Disease Association, Inc. reserves the right to unsubscribe anyone from this service without cause.