LDA Giving Tuesday Supports LymeAid 4 Kids/New! 2018 Lyme Case Numbers Reported/Lyme Wars Are Not Over/Tick Act Needs Your Help




Giving Tuesday LA4K Fund

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Kids & Lyme disease
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GivingTuesday

LDA #GivingTuesday, Dec. 3, 2019

LDA #GivingTuesday. Our campaign runs Oct. 31 through Dec. 31, 2019

  • The Lyme Disease Association, Inc. (LDA) is a national non-profit whose mission to increase nationwide funding and awareness about Lyme and tick-borne diseases.
  • This year LDA is asking #GivingTuesday donors to support LDA’s LymeAid 4 Kids (LA4K) fund.
  • Children, ages 0-19 years old, make up 29% of Lyme disease cases in the US.
  • Many Lyme cases may become chronic, leaving children with physical, cognitive, & learning disabilities.
  • Your help is greatly appreciated by the families helped through the LymeAid 4 Kids fund.
  • You may donate directly through our website at https://lymediseaseassociation.org/donate/ or donate through Facebook.
  • LA4K helps Children 21 and under who may qualify for up to $1,000 toward diagnosis and treatment for Lyme disease.

 

 

 

 

 

 

 

 

 

 

 

 

 

 




2018 Reported Lyme Cases – Top 15 States

The LDA has used CDC total reported Lyme case numbers (includes “confirmed” and “probable”) to create a pie graph of the 15 states in the US with the highest case numbers for 2018. 

Click here for pdf version of pie graph




2018 US Reported Lyme Disease Cases Featuring Top 15 States

Lyme Disease Association Announces 2018 Final Lyme Cases Reported by CDC.

The Centers for Disease Control & Prevention (CDC) has just released the 2018 final Lyme disease reported cases numbers. Total US reported cases was 33,666 ─ CDC has reported that only 10% of cases are actually reported─ that translates into 336,660 actual new Lyme cases in the US in 2018.

Lyme Disease Association, Inc. (LDA) has ranked the top 15 states based on those CDC reported Lyme case numbers below.

 

 

 

 

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*In recent years, an increasing number of NY Counties have used estimating to determine Lyme case numbers. The Council of State & Territorial Epidemiologists, in charge of surveillance, doesn’t permit estimation to be reported by CDC in the national counts. In 2018, NY State reported it had 7,320 Lyme cases including those 30 estimated county numbers. CDC reported 3,638 Lyme cases for NY State, which excluded the 30 counties’ estimated numbers.
https://www.health.ny.gov/statistics/diseases/communicable/2018/docs/cases.pdf

Note: In 2016, MA changed reporting requirements and very few MA cases are now able to be included in the CDC reported Lyme cases (in 2018 CDC reported 16 cases in Massachusetts)

Click here for Ranking of all US states/DC

Click here for pie chart of 2018 Reported Lyme Cases – Top 15 States

Click here to go to LDA’s Interactive Lyme Disease Case Maps




The Tick Act Needs Your Help! Here’s What You Can Do




List of Current Co-Sponsors of HR 3073, Tick Act

 

If you DO NOT see your congressperson’s name on list below, or for more info, Return to Tick Act Article & Steps to Take 

CosponsorDate Cosponsored
Rep. Smith, Christopher H. [R-NJ-4]Sponsor
Rep. Peterson, Collin C. [D-MN-7]Original Cosponsor
Rep. Walorski, Jackie [R-IN-2]6/5/2019
Rep. King, Peter T. [R-NY-2]6/19/2019
Rep. Davis, Rodney [R-IL-13]6/19/2019
Rep. Fitzpatrick, Brian K. [R-PA-1]6/19/2019
Rep. Posey, Bill [R-FL-8]6/19/2019
Rep. Vela, Filemon [D-TX-34]6/19/2019
Rep. Norton, Eleanor Holmes [D-DC-At Large]6/19/2019
Rep. Stefanik, Elise M. [R-NY-21]6/21/2019
Rep. Bilirakis, Gus M. [R-FL-12]6/21/2019
Rep. Upton, Fred [R-MI-6]6/21/2019
Rep. Reed, Tom [R-NY-23]6/21/2019
Rep. Gonzalez-Colon, Jenniffer [R-PR-At Large]6/21/2019
Rep. Thompson, Glenn [R-PA-15]6/21/2019
Rep. Yoho, Ted S. [R-FL-3]6/21/2019
Rep. Fortenberry, Jeff [R-NE-1]6/21/2019
Rep. Mitchell, Paul [R-MI-10]6/21/2019
Rep. Rogers, Mike D. [R-AL-3]6/21/2019
Rep. LaMalfa, Doug [R-CA-1]6/21/2019
Rep. Carter, John R. [R-TX-31]6/21/2019
Rep. Katko, John [R-NY-24]6/21/2019
Rep. Hunter, Duncan D. [R-CA-50]6/21/2019
Rep. Lipinski, Daniel [D-IL-3]6/24/2019
Rep. Gibbs, Bob [R-OH-7]6/24/2019
Rep. Cole, Tom [R-OK-4]6/24/2019
Rep. Rutherford, John H. [R-FL-4]6/25/2019
Rep. Hagedorn, Jim [R-MN-1]6/26/2019
Rep. Kuster, Ann M. [D-NH-2]6/26/2019
Rep. Welch, Peter [D-VT-At Large]6/27/2019
Rep. Langevin, James R. [D-RI-2]6/28/2019
Rep. Payne, Donald M., Jr. [D-NJ-10]6/28/2019
Rep. Pingree, Chellie [D-ME-1]7/9/2019
Rep. Steube, W. Gregory [R-FL-17]7/10/2019
Rep. Pocan, Mark [D-WI-2]7/10/2019
Rep. Hartzler, Vicky [R-MO-4]7/12/2019
Rep. Marshall, Roger W. [R-KS-1]7/12/2019
Rep. Chabot, Steve [R-OH-1]7/18/2019
Rep. Norcross, Donald [D-NJ-1]7/23/2019
Rep. Miller, Carol D. [R-WV-3]7/23/2019
Rep. Maloney, Sean Patrick [D-NY-18]8/16/2019
Rep. Blunt Rochester, Lisa [D-DE-At Large]8/30/2019
Rep. Delgado, Antonio [D-NY-19]9/17/2019
Rep. Himes, James A. [D-CT-4]10/4/2019
Rep. Rose, Max [D-NY-11]10/4/2019
Rep. Rice, Kathleen M. [D-NY-4]10/17/2019
Rep. Sarbanes, John P. [D-MD-3]10/23/2019
Rep. Golden, Jared F. [D-ME-2]10/23/2019
Rep. Cooper, Jim [D-TN-5]10/30/2019
Rep. Lofgren, Zoe [D-CA-19]11/8/2019
Rep. Tonko, Paul [D-NY-20]11/8/2019
Rep. Malinowski, Tom [D-NJ-7]11/8/2019
Rep. Trone, David J. [D-MD-6]11/18/2019
Rep. Olson, Pete [R-TX-22] 11/26/2019




S.1657, The Tick Act – LDA Letter to Committee on Health, Education, Welfare & Pensions

Read Letter Below or Click here for pdf

2019_SenateHelpCommittee_S.1657




Nicole Malachowski: Unfit for Duty from Debilitating Tick-Borne Disease

From Department of Defense – CDMRP:

Nicole Malachowski recently medically retired from the US Air Force as a Colonel after 21 years of service as a career fighter pilot. She was the first woman in history to fly with the Thunderbirds (US Air Force Demonstration Squadron) and went on to be the Commander of the 333rd Fighter Squadron, where she trained more than 200 students to fly the F-15E fighter jet. She later served as the Deputy Director for US Air Force Readiness and Training for the Office of the Under Secretary of Defense for Personnel and Readiness. In addition, she served in the White House: first, as a fellow for the U.S. General Services Administration (2008-2009), then as the executive director of the White House “Joining Forces” Initiative (2015-2016). Ms. Malachowski was at the peak of a long and promising career.

Her medical retirement, however, was premature. At only 43 years old, she was deemed unfit for duty due to neurological damage from tick-borne illness.

Read full story here




Congressional Press Conf/#GivTue LymeAid4Kids/Another Powassan Death/NIH Strategic Plan/LDA Educates/IDSA Guidelines Critique




Rep. Chris Smith Press Conference on NIH/Tick Act, Wall, NJ

Pat Smith, LDA President & Rep. Chris Smith

From the LDA, October 25, 2019

A press conference was held at the Wall Township Municipal Complex hosted by Congressman Christopher Smith (R-NJ). The Congressman highlighted information on the “NIH Strategic Plan for Tick-Borne Disease Research,” as well as “The Tick Act,” a bipartisan effort to improve research, prevention, diagnostics, and treatment for tick-borne diseases.

The bill H.R.3073, was introduced in the House of Representatives by Rep. Smith and Rep. Collin C. Peterson (D-MN). The Senate version S.1657, was introduced by Susan Collins (R-ME), Tina Smith (D-MN) and Angus King (I-ME). In addition, President Trump has asked his cabinet to do all they can to assist in helping those affected by Lyme and tick-borne diseases.

Rep. Chris Smith; Pat Smith, LDA President; Wall’s Deputy Mayor George K. Newberry; Brian Dashore; Dr. Jodie A. Dashore

The Congressman was joined by Wall’s Mayor Kevin P. Orender, Deputy Mayor George K. Newberry, Pat Smith, LDA President, Dr. Jodie A. Dashore, and LDA Board Members. LDA volunteers and members of the community attended.

(Images and video are the sole property of the LDA and may not be used without express written permission of the LDA.)

Click here for Rep. Chris Smith Press Release

Rep. Chris Smith, Wall’s Mayor Kevin P. Orender, Wall’s Deputy Mayor George K. Newberry, Dr. Jodie A. Dashore

 

 

 

 

 

 

 

 

 

Asbury Park Press:
‘Finally taking this seriously.’ On chronic Lyme disease, a government breakthrough
Or access app.com article on Rep. Chris Smith’s website here

Tap into Middletown:
Ticked off: Congressman Chris Smith Perseveres in the fight against Lyme disease

Watch videos below of Rep. Chris Smith, Pat Smith, LDA President & Dr. Jodie A. Dashore from Press Conference

Congressman Chris Smith (R-NJ) at Press Conference on the NIH Strategic Plan for Tick-Borne Disease Research & “The Tick Act,” Wall, NJ

Pat Smith, LDA President, speaks at Press Conference hosted by Rep. Chris Smith, Wall, NJ

Dr. Jodie A. Dashore speaks on Lyme disease and children at Press Conference hosted by Rep. Chris Smith, Wall, NJ