1

MA Legislature Overrides Gov. Lyme Bill Veto

Patient Victory in MA! Three minutes before midnight on July 31 in a 37-1 vote, the MA Senate voted to override the Governor’s veto of the Lyme bill which contained the language supported by patients for mandatory insurance coverage for long-term treatment. This vote followed closely the override vote in the House on July 30 with a vote of 153-3. The LDA congartulates MA on its great victory and thanks all involved, especially the MA Legislative Task Force who led the override effort, and all those who called or wrote to demand relief for patients. Thank you, MA legislature, for listening. Click here for MA Legislative Task Force Press Release

HISTORY–Governor Vetoes Patient Lyme Language–Governor Baker has vetoed the H4491. He has also filed an alternate bill which is unacceptable. The legislature is preparing to override his veto, but MA residents ONLY must continue to urge them to do so in the largest numbers possible. The message is simple and direct: please OVERRIDE Governor Baker’s veto of H4491, the Lyme treatment coverage bill.

The House and Senate will be in formal session on Saturday and Sunday, which is when the override vote can occur. We need to contact them now. Massachusetts residents only – and each person should contact only her/his own state representative and state legislator.

(This action is supported by the Lyme Disease Association, Inc. which had already testified originally on bill and also written the Governor)

Click here for history of bill actions

Message above from the Lyme Legislative Task Force

Helen Brown – Whitman

Donna Castle – Ayer

Janice Dey – Westport

Susan Fairbank-Pitzer – Danvers

Sharon Hawkes, MLIS – Nahant

Jayme Kulesz – Groton

Robin LeMieux – Lowell

Sheila Statlender, Ph.D. – Framingham




ME Lyme Bill Passes Into Law

“An Act to Improve Access to Treatments for Lyme Disease” passed both houses of the Maine legislature and was given to the Governor who did not veto or sign the bill. Under Maine law, that means the bill becomes law. The bill provides for doctor protection for doctors who prescribe long term treatment for Lyme disease.  Congratulations to the Maine advocates who worked so hard to make this happen!  The LDA provided testimony favorable to bill passage.

SUMMARY

This bill prohibits the Board of Licensure in Medicine from disciplining a physician or revoking or suspending a physician’s license for prescribing, administering or dispensing long-term antibiotic therapy to a patient with acute, persistent or chronic Lyme disease if the therapy was pursuant to a treatment plan recommended by the United States Department of Health and Human Services, Centers for Disease Control and Prevention that considered the patient’s individual circumstance or was in the best judgment of the physician with respect to the particular patient or special clinical situation.

Click here for testimony
Cick here for bill language




Illinois Passes Doctor Protection Legislation

Illinois lawmakers vote unanimously to override Gov. Bruce Rauner’s veto on a bill proposed to protect physicians from possible discipline for aggressively treating Lyme disease. The bill requires the establishment of a Lyme disease task force as well as a statewide Lyme disease prevention and outreach program. Click here for the article

 




DE Legislature Declares Lyme Awareness Month

Delaware Legislature Declares Lyme Awareness Month

By passing Delaware House of Rep. Concurrent Resolution #79, the Delaware legislature declared May 2016 as Lyme Disease Awareness month. The legislature sent the resolution to the Lyme Disease Association, a provision included in the resolution, which has posted it here online. Rep. Schwartzkopf and Rep. D. Short are the Hourse sponsors and Sen. Lopez is the Senate sponsor. Thank you Delaware legislators! Click Here for DE Resolution




Delaware Bills Focus on Ticks & Educating Doctors

 

2016 08 29 DEBills(L to R) Sen. Ernie Lopez, House Rep. Pete Schwartzkopf, Gov. Jack Markell Cape Gazette / Photo by Chris FlOn 8/29/16, Delaware Governor Jack Markell joined Speaker of the House Rep. Pete Schwartzkopf (D-Rehobeth) and Sen. Ernie Lopez (R-Lewes) for the signing of 2 Lyme disease bills.

These bills are a direct result from the findings of the June 1, 2015 Lyme Disease Prevention Task Force Report.  The task force was created in 2014 and Schwartzkopt and Lopez were its co-chairs.

House Bill 290:
This Act enforces the task force recommendation of an Integrated Pest Management strategy incorporating acaricide use, biological controls, management of tick-host animals and backyard habitat management.  DN-REC can now go on public and private land after permission to conduct research on tick habitats, tick-host animals, and tick vegetation.

House Bill 291:
An Act to amend Title 16 of the Delaware code relating to the creation of an oversight board to educate health care professionals about Lyme disease.

  • Educating health care professionals to develop a high index of suspicion for Lyme disease, because Delaware is in an endemic area for the disease.
  • Educating health care professionals that Lyme disease can be diagnosed clinically based on history and physical examination, and serologic antibody testing can confirm, but is not required to make, a clinical diagnosis.
  • Encouraging continuing medical education credits and nursing continuing education units regarding Lyme disease and make the topic enticing to encourage health care professionals to attend such courses as soon as they are available.
  • Hosting continuing education credits and units in all three counties, making efforts to host the courses in hospitals to get the most health care professionals together at once.
  • Delivering education in a variety of methods, using professional associations, medical journals, radio, internet, and conferences, and linking medical training with a public awareness campaign.
  • Trying to bring all health care professionals together for collaboration.

This Act includes a sunset provision and will expire 8 years after its enactment unless otherwise provided by a subsequent act of the General Assembly.

Delaware declared May 2016 Lyme Disease Awareness Month and sent LDA the resolution (click here for article

Gov. Markell signs two tick control bills into law (WMDT47 abc)

Markell signs Lyme disease measure (Cape Gazette)

 




2018 May Awareness Proclamations / Resolutions

States and counties throughout the US have proclaimed May Lyme Disease Awareness Month.

Many states and counties have taken steps to raise awareness regarding Lyme and tick-borne diseases. Declaring “May Lyme Awareness Month” is one move to help remind people spring is here, ticks are out, prevention & proper education are your best tools to staying healthy.

Proclamations are issued by governors and resolutions are adopted by the legislature. The LDA salutes and thanks all the governors, legislators, Lyme groups, and advocates who have helped raise awareness throughout the year.

Your efforts make a difference! 

Please submit an image of your state or county proclamation/resolution so we can include it on our annual list.

Any questions, email webmaster@lymediseaseassociation.org

{rsform 51}

Click here for last years list

 




Improving Care in Lyme Disease

Published on Sept. 7, 2017 (13th segment)
Panelists Peter L. Salgo, MD; Robert C. Bransfield, MD, DLFAPA; Samuel Shor, MD, FACP; Leonard Sigal, MD; and Patricia V. Smith offer their insights regarding the future of Lyme disease and ways to improve care for patients. Click here for transcript of the video on Contagion® website

Published on Sept. 7, 2017 (13th segment)
Panelists Peter L. Salgo, MD; Robert C. Bransfield, MD, DLFAPA; Samuel Shor, MD, FACP; Leonard Sigal, MD; and Patricia V. Smith offer their insights regarding the future of Lyme disease and ways to improve care for patients.

Click here for transcript of the video on Contagion® website

Full list of interview segments




How Lyme Disease Spreads

Published on May 15, 2017 by ContagionLive (1st of 9 segments)
Patricia Smith, President of the Lyme Disease Association, Inc. briefly discusses how Lyme Disease has spread throughout the United States in the past decade.

Link to the Contagion® website

Full list of interview segments




Lyme Disease: What Makes Diagnosis & Treatment Difficult?

Published on May 18, 2017 by ContagionLive (2nd of 9 segments)
Patricia Smith, President of the Lyme disease Association, discusses the difficulty of diagnosing and treating Lyme disease.

Link to the Contagion® website

Full list of interview segments




What Do I Need to Know About Lyme Transmission Time?

Published on May 24, 2017 by ContagionLive (4th of 9 segments)
Patricia Smith, President of the Lyme Disease Association, Inc, explains what you need to know about the time it takes for Lyme to be transmitted from tick to host.

Link to the Contagion® website

Full list of interview segments