2008

Lyme Disease Association Archives: 2008

Federal Employees: LDA CFC Eligible  GOOD NEWS for Lyme disease!
The LDA has been found eligible for inclusion on the National Part of the 2008 Combined Federal Campaign (CFC) Charity list. Each year, federal employees can contribute to charities that meet the requirements of the CFC. The LDA’s CFC 2008 identification for donors is #11424 and Lyme Disease Association, Inc. will appear in the listing of National/International Independent Organizations which is published in each local campaign charity list. See your federal employer for details. Check the CFC website at:
http://www.opm.gov/cfc/. [LDA also made the 2006 & 2007 CFC campaign and thanks to all those who have been contributing.] 
 
Open Eye Pictures Presents: UNDER OUR SKIN
Don’t Miss the opportunity to see the world premier of the Lyme documentary that goes behind the scenes of the Lyme disease crisis. 
Featured at the Tribeca Film Festival!
Lyme Documentary tickets on sale at Tribeca Premiere April 26-May 2, NYC.
    
 
Photo_2008_001.jpg (34591 bytes) Framingham, Massachusetts April 12 garden in the Woods Lyme Forum sponsored by The Underground & New England Wildflower Society
Lyme Disease Association President Pat Smith ( C) is flanked by Massachusetts activists Rose Cruz (L) and Shelia Statlender, PhD (R). Standing are Rolf Briggs, certified tree expert, President of Tree Specialists; Jeanne Hubbuch, MD, family practitioner from Newton, MA; and Dori Smith owner, Garden of Life. Ms. Smith, Dr. Hubbuch and Mr. Briggs spoke about Lyme disease, with Ms. Smith addressing the surveillance and prevalence issues, canine Lyme and other tick-borne diseases in Massachusetts, prevention, and what is being done by government. 

Lyme doctors, leaders, organizations honored
Photo_2008_003.jpg (52888 bytes) LDA president awarded citizen of the year 2008 
(click image to enlarge)
LDA President Pat Smith was presented with the Citizen of the Year Award (woman) from the Jackson Chamber of Commerce on September 19, 2008. She received resolutions from Governor Corzine, the NJ Senate & General Assembly, Ocean County Freeholders, and the Township of Jackson. Additionally, Congressman Chris Smith made a surprise appearance and presented a flag which was flown over the US Capitol.
No Photo at this Time NJ Monthly Magazine
2008-2009
100 Top NJ Doctors Survey
“Physicians all over the state cast ballots for the doctors they’d trust to treat their friends and family. “
Rheumatology, Andrea Gaito, Basking Ridge, NJ
West Chester Magazine October 17, 2008
Top 150 doctors in 65 specialties
Internal Medicine Daniel Cameron Lyme Disease
Mount Kisco, NY
Northern Westchester Hospital

“Castle Connolly’s physician-led team of researchers follows a rigorous screening process to select top doctors on both the national and regional levels. Using mail and telephone surveys, and electronic ballots, they ask physicians and the medical leadership of leading hospitals to identify highly skilled, exceptional doctors.”

No Photo at this Time Greenwich Magazine October 30, 2008
Light a Fire 2008: A Celebration of Giving
Keeping Us Healthy Category: Time for Lyme, Greenwich
Diane Blanchard & Debbie Siciliano, Co-Presidents
United Way Woman of Impact by the United Way of Western CT
This award recognizes a few women in the area for their volunteer efforts in the community.
Maggie Shaw, Newtown Lyme Disease Task Force
Pesticide Environmental Stewardship Program logo LDA has been accepted as partner in the Environmental Protection Agency’s Pesticide Environmental Stewardship Program (PESP)
The Pesticide Environmental Stewardship Program (PESP) is a voluntary program that forms partnerships to reduce the potential health and environmental risks associated with pests and pesticide use and to implement pollution prevention strategies. Although LDA does not recommend or endorse products, many individuals choose to use repellents against ticks. The informed actions of pesticide users help reduce risk to people and the environment. See
http://www.epa.gov/pesp/ for program details. LDA will work with PESP to develop a strategy which will be forthcoming on this site.
Photo_2008_002.jpg (36499 bytes) (front row) LDA president Pat Smith and Dr. Robert Bransfield Lyme disease forum speakers, with Christa Vanderbilt, PhD, LDASEPA Secretary and other Lyme Disease Association of Southeastern Pennsylvania Board Member hosts in West Chester, PA on April 19, (back row L-R: Anita Swayne, Treasurer; Ron Hamlen, PhD, Vice chairman; Doug Fearn Chairman; and Larry Linford, Communications Director). 
 
Special Presentation by Dr. Joseph Burrascano on Saturday, September 20, 2008
Dr. Joseph Burrascano, world-renowned Lyme expert will be speaking on Lyme Disease – “What you need to know about Lyme and other tick-borne diseases” with Pamela Weintraub, Senior Editor Discover Magazine and author of the new book “Cure Unknown – Inside the Lyme Epidemic” on Saturday, September 20, 2008 at noon in the Unionville, PA High School auditorium. 
Free admission – Free parking. No reservations needed. 
750 Unionville Road, Route 82, Kennett Square, PA 19348 
Directions and maps at
www.lymepa.org 
LDA’s 9th annual Lyme & Tick-Borne Diseases Conference
Friday, October 17, 2008, Cathedral Hill Hotel, San Francisco, California 
 
 
Jointly sponsored by Columbia University College of Physicians Surgeons & Lyme Disease Association: Solutions Through Cutting Edge Science 9.75 category 1 CME credits

Course Co-Directors: Brian Fallon, MD, MPH, Assoc. Professor Clinical Psychiatry, Columbia University College of Physicians & Surgeons; and James Miller, PhD, Professor Emeritus, UCLA

Faculty includes: Steven W. Barthold, DVM, PhD, UC Davis, A Mouse Model for Persistent Lyme Disease; Mario T. Philipp, PhD, Tulane Medical School, Pathogenesis of Neuroborreliosis in Rhesus Monkeys; Steven Schutzer, MD, UMDNJ, Pathogens in Ticks: Eastern Versus Western United States; Patricia A Conrad, DMV, PhD, UC Davis,
Babesia duncani and Babesia microti: Genetic Differences and Clinical Features; Diego Cadavid, MD, Biogen Idec, Neuroborreliosis and the Role of IL-10; Fabio Tavora, MD, Armed Forces Institute of Pathology, Cardiovascular Pathology of Lyme Carditis Confirmed By PCR; George Chaconas, PhD, University of Calgary, 3-D Real-Time High Resolution of the Lyme Disease Spirochete. 

 
   

 
 
Gear Up for Lyme
Presented by the Manchester (VT) Rotary Club to benefit the Lyme Dsiease Association and charities of the Manchester Rotary. Saturday, August 2, 2008. The Gear Up For Lyme Mt. Equinox Uphill Bike Climb is a challenging 5.4 mile bike race up the scenic Mt. Equinox Skyline Drive finishing at the top of Mt. Equinox in beautiful Manchester, VT.
LymeQuest Support Group Sponsoring Lyme Movie “UNDER OUR SKIN”
August 4th – 6:45 PM East Brunswick Library Comm Rms. 2 Civic Center Dr East Brunswick NJ.
Panel discussion after film featuring Robert Bransfield, MD, President Elect, ILADS, & Ms. Pat Smith, President, Lyme Disease Association RSVP limited seating & for questions to
NewBrunswickLyme@comcast.net.
Innovative Lyme Teen Auctions Her Designer Gowns to Benefit LDA & Lyme Research
Pennsylvania teen and Lyme patient Heather Holtry was given the opportunity to show her designed gowns at the Pure Fashion Runway Show this year in Atlanta Georgia, through Make a Wish Foundation. She wanted to raise Lyme disease awareness and monies for research, too. Her efforts have paid off, as Heather’s gowns are now being auctioned on EBay, with any monies she raises to be donated to LDA for research. Go to
http://www.stylebyheatherrose.com to see the gowns, to get information on how to bid, and read Heather’s Story. 
Lyme Disease Association Announces Two Lyme Seminars
Research & Physician Experts & Advocate to speak in Eastern Connecticut

The Eastern Connecticut Chapter of the Lyme Disease Association (ECCLDA) announces it is hosting two Lyme disease seminars on June 17, 2008. An expert in the field of genetics will discuss cutting edge research into the survival of the Lyme disease spirochete and a prominent Lyme disease treating physician will talk about the clinical aspects of the disease. Each will be joined by the national president of the Lyme Disease Association, Pat Smith, who is recognized for raising research and education funds for Lyme disease and advocating for Lyme patients. Exhibitors will also be present.

Morning Event
Eastern Connecticut State University, Student Center, 10 am-12:30 pm, doors open 9 am 
Open to the public

Eva Sapi, PhD, Genetics, Associate Professor at University of New Haven, will speak about Lyme disease biofilms & a possible connection to Lyme disease resistance, and about other tick-borne diseases. 

Pat Smith, President, Lyme Disease Association and member of the Columbia Lyme & Tick-Borne Diseases Research Center Advisory Committee, will give an update on Lyme disease including infection rates, spread of the disease, patient problems, and legislation. 

Evening Event
Connecticut College, Blaustein Humanities Center, New London, 7-9:30 pm, doors open 6pm
Open to the public

Kenneth B. Liegner, MD, PC Diplomate, American Board of Internal Medicine, will cover diagnostic and treatment issues surrounding Lyme & other tick-borne diseases in his presentation.

Pat Smith, President, Lyme Disease Association and member of the Columbia Lyme & Tick-Borne Diseases Research Center Advisory Committee, will give an update on Lyme disease including infection rates, spread of the disease, patient problems, and legislation. 

Determined Teens Organize Walk for Lyme Research
Co-sponsored by the Corning-Fingerlakes Area Chapter, Lyme Disease Association
June 7th, 2008 at the Holding Point Park 
190 Wygant Road in Horseheads, New York
Victoria, who has Lyme, and her friend, Sarah, wanted to find a way to promote Lyme disease awareness and prevention. They decided on a walk open to everyone in the community; with no registration fee. Walkers have the option of donating money to the Lyme Disease Association or obtaining sponsors for the walk. T-shirts are available for purchase. Go to
http://lymewalk.org for details.
Bergen Forum Media Advisory
Paramus, New Jersey May 2008 ─ The national Lyme Disease Association announces a forum at the Bergen County Community College, May 29. The forum will feature speakers who will delve into the Lyme disease controversy focusing on various aspects of the disease.
      
UPDATED SPEAKERS & INFORMATION! Free, open to the public, no registration required
Forum: “Lyme Disease: Insights into the Crisis, Key Players and the Future” 
Hear from those who have intimate knowledge of the Lyme crises
Also: Exclusive Pre Release of Book for Sale & Signing
7PM, Thursday, May 29, 2008 (easy access from NY, CT, PA, NJ)
Bergen County Community College 
400 Paramus Road
Paramus, New Jersey 07652 
Technology Education Center
Tec Education Building, Room 128
Sponsored by Lyme Disease Association 
All book sales by cash or check only ($25)
Attorney Elliott Pollack is current Counsel for Dr. Charles Ray Jones and former Counsel for Dr. Bernard Raxlen in defending Connecticut Department of Health actions against the Doctors related to Lyme disease treatment. Attorney Pollack will discuss the legal & political issues surrounding Lyme disease and how they impact treating doctors and patients. He is a member of Pullman & Comley, LLC.

Author Pamela Weintraub, an editor at Discover Magazine, is featured in her first public discussion about her book, Cure Unknown: Inside the Lyme Epidemic, to be released June 19 by St. Martin’s Press. The book, a narrative history of the Lyme experience and a deconstruction of the science and politics, discloses the research of some major players in the Lyme war and includes surprising, and to some perhaps shocking, revelations from researchers who have been behind the effort to debunk chronic Lyme disease. Patients, advocates, treating physicians, and other scientists are also interviewed and the reader will gain insight into living with Lyme as portrayed through the examples of several “Lyme families”. At the forum, she will discuss the book, difficulties pulling the information together in a meaningful fashion, her thoughts as to how her work can impact the current Lyme disease crises, and the future direction she sees for Lyme disease. Cure Unknown will be available at the event for signing and purchase with profits going to LDA toward research.

Also featured will be Dr. Joseph Burrascano, Jr., one of the most notable physicians to treat Lyme disease patients. His treatment philosophies have inspired physicians worldwide to search for new methodologies to treat chronic patients. Now retired from private practice, Dr. Burrascano will share his insights from over 20 years of treating chronic Lyme disease patients, his on-going database project which is amassing clinical data never before compiled, and what he sees as the future of Lyme treatment based on current research and his data base. Dr. Burrascano will touch upon what he sees as his immediate role in Lyme disease. 

 
LDA Presents Spotlight on Lyme, Sandy Hook Spotlight.JPG (542171 bytes)National Park (Gateway Recreational Area), New Jersey.  May 18, 2008.  Rain or Shine!
Join with family and friends to ride or walk this beautiful oceanfront area peninsula across the water from Manhattan. A fun day for all. Your participation will raise awareness for Lyme disease. Proceeds will be used by LDA for Lyme and tick-borne diseases research.  For information and sponsorship opportunities contact Kim Cronin at
kimcronin@msn.com.
Lyme Disease Association (LDA) Announces Lyme Walk/Ride on Sandy Hook
Lyme & Other Tick-Borne Diseases Continue to Rise in NJ 
Wall Township, May 12, 2008–The NJ-based national Lyme Disease Association (LDA) announces it is hosting a bike ride and a walk, Spotlight on Lyme, on May 18 in Monmouth County New Jersey. Participants have a choice of a 3 mile walk or 15 mile bike ride taking place on Sandy Hook to raise funds for the LDA for research to fight this debilitating disease and to raise awareness. New Jersey is third in the nation in CDC reported Lyme disease case numbers and Monmouth County ranks 2nd in case numbers in New Jersey.

Announcement from the Lyme Rights group
Wednesday, May 7th from 11am to 2pm, Lyme Rights will amass a patient presence in front of the office of Congressman Frank Pallone (NJ), House Health Subcommittee Chair, to let him know HR 741, the Lyme bill, needs to be put on that committee agenda now. Go to
LymeRights.org for more information.

Open Eye Pictures Presents: UNDER OUR SKIN
Don’t Miss the opportunity to see the world premier of the Lyme documentary that goes behind the scenes of the Lyme disease crisis. 
Featured at the Tribeca Film Festival!
Lyme Documentary tickets on sale at Tribeca Premiere April 26-May 2, NYC.
    
Letter from Open Eye Crew

Lyme Disease Forum, April 30, 2008, 7pm-9pm (doors open 6pm)
Admission FREE, open to the public
Sponsored by: The Brookfield, Danbury Sunrise, Danbury Noon, Ridgefield, and Newtown Rotary Clubs & Ridgefield/ Newtown Lyme Disease Task Forces
Speakers: Richard I. Horowitz, M.D., Lyme & other tick-borne diseases, and Pat Smith, Update on Lyme Disease including infection rates, spread of the disease and solutions.
Western Connecticut State University, University Blvd. (off Lake Ave/Mill Plain Rd) Westside Campus. For information:
rldtf@comcast.net.

LDA SEPA Presents
Bob Bransfield, MD and Pat Smith President, LDA will speak at the Lyme forum hosted by the Lyme Disease Association of Southeastern Pennsylvania on April 19, 200 from 1-4 PM.
West Chester East High School auditorium
450 Ellis Land, West Chester, PA 19380. 
Map and directions

Forum on Lyme Disease: Management, Treatment, and Prevention 4-12-08 1-4pm
http://www.newfs.org/learn/catalog/hor6500

Open the public – Registration will be accepted at the door.
Co-sponsors: 
The Underground Landscaper Network
New England Wild Flower Society
Northeast Organic Farming Association
Garden in the Woods, Framingham, MA
Pat Smith, LDA President

Lyme Disease Recital to Benefit LDA & Lyme Awareness March 30, 2008 8:00 PM
Dr. Jim Hudson will give a vocal recital with a free-will offering to benefit the Corning-Finger Lakes Chapter of the national Lyme Disease Association at Grace United Methodist Church, 191 Bridge Street, Corning where Dr. Hudson has been Director of Music for the past thirty-eight years. He is a Corning Community College Professor Emeritus of Music, an emeritus member of the National Teachers of Singing and a life member of the American Choral Directors Association. He has been guest soloist with the Corning Philharmonic, the Orchestra of the Southern Finger Lakes and the Cantata Singers & has made several appearances at the Crane School of Music Festival of the Arts and as soloist with the late Robert Shaw that include performances of the Bach “B-Minor Mass”, Schubert’s “Mass in G” and Haydn’s “Creation.” The recital will include art songs, operatic and oratorio selections in German, French, and Italian and will include some of Dr. Hudson’s own compositions. The accompanist will be Claire Gonta Smock. The concert is dedicated to his daughter, Dr, Elisabeth Heininger, who, with her family, is experiencing the misfortunes of Lyme disease. All donations will be given to the national Lyme Disease Association which is an all-volunteer, non-profit, 501(c)(3) organization.

Lyme Disease Forum March 31, 2008 7-9:30PM
Mercy Hospital Scranton Pennsylvania
Co-Sponsored by Lyme Disease Association & Mercy Hospital
Speakers include Richard Horowitz, MD; Pat Smith, LDA President
Press contact: Heather Okun,
hokun@epix.net

Lyme Disease Goes to Carnegie Hall
Time for Lyme and C. Bechstein Pianos Proudly Present “Barry Alexander and Friends” at Carnegie Hall in a Concert to Benefit “Time for Lyme” on March 22, 2008 

 

Lyme Disease Association PA Forum
Wednesday Evening, August 20, 2008 Hope Reformed Presbyterian Church, 123 Walnut Bottom Road , Shippensburg , PA 17257 .
Event will be continuation of education begun in area by teen Heather Holtry whose Make A Wish allowed her own designed gowns to be featured in a fashion show where she sparked Lyme awareness in a new way. Details to follow.
Read Heather’s story here.Click here for the forum’s program.

Next day following LDA/Columbia University conference
International Lyme & Associated Diseases Society (ILADS) Scientific Session 
Saturday, October 18 and Sunday, October 19 in San Francisco, CA
Click here for