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In 1991, the Lyme Disease Association began as an informal group and then incorporated as Lyme Disease Association of Central Jersey, Inc. (LDACJ) in 1992 and then became Lyme Disease Association of New Jersey, Inc. (LDANJ) in 1993. It was formed by several patients and doctors─the Fordyce and Drulle Families were particularly instrumental ─who saw the need to organize and fund research and educate people. It had first a regional then state focus. In 1997, Pat Smith became President of LDANJ and it began to have influence far beyond NJ borders. She saw the increasing need for a national organization. Supported by entreaties from doctors and patients alike, the LDANJ Board of Directors in 2000 changed the name to Lyme Disease Association, Inc. (LDA) and changed the focus to a national one, which had a broader mission expanding research funding (LDA funded research has appeared in 62 scientific journal publications to date) and including patient support, e.g., LymeAid 4 Kids fund. At that time, LDA decided to remain an all volunteer organization without paid employees so that all monies would be dedicated to the mission. In 2013, 144 individuals volunteered 22,840 hours to assist with LDA programs. Additionally, LDA created a loose umbrella, LDAnet, where other groups could strategize and collaborate with LDA to impact Lyme disease issues nationally.
The Lyme Disease Association, Inc. (LDA) is designated by the IRS as a 501(c)(3) non-profit, a charity focusing on research, education, prevention and patient support. History The Lyme Disease Association […]
The Lyme Disease Association, Inc. (LDA) has been working with Lyme and tick-borne diseases (TBD) for 31 years– patients and family members of patients driving the programs. We care […]
Tick-Borne Disease Working Group, Report to Congress 2020; David Hughes Walker, MD (Co-Chair); Leigh Ann Soltysiak, MS (Co-Chair); Charles Benjamine (Ben) Beard, PhD; Scott Palmer Commins, BS, MD, PhD; Angel […]
Lyme Disease Association, Inc., LDA, is proud to celebrate 30 years of advocacy and volunteerism to improve research, education, and patient support surrounding Lyme and tick-borne disease. Early Years By […]
LDANet Groups under the LDAnet umbrella Working together for a common cause Lyme Disease Association, Inc. (National) [email protected] Chapters: Part of LDA LDA Rhode Island […]
Enhance the capability and productivity of TBD researchers Write for grants and hold fundraisers for Lyme disease research Develop a direct mail campaign for Lyme disease research funding Solicit Request […]
LDA Doctor Referral System © Terms & Conditions and Guidelines
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About LDA DOCTOR REFERRAL SYSTEM ©
Welcome to the Lyme Disease Association’s LDA Doctor Referral System ©. LDA made updates and enhancements to its prior system and has launched a new site to provide patients with information about doctors, other practitioners, testing labs, and pharmacies that are knowledgeable about chronic Lyme disease and often about many other tick-borne diseases (TBD). Many of the doctors listed are often referred to as Lyme Literate Physicians/Doctors (LLMD). Tens of thousands of patients have successfully used the prior LDA system to locate Lyme and TBD resources.
Terms & Conditions and Guidelines
Because there is a negative political climate surrounding Lyme disease, many LLMDs do not want their names posted outright on the internet. LDA has tried to balance the doctors’ wishes with patients’ need to find a doctor. This new system is a result of that compromise and therefore:
Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines, Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the LDA Doctor Referral System © contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the location entered and specaialty/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of so we can investigate.