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Lyme Disease Association
Non-profit, a charity focusing on research, education, prevention and patient support.
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LDA Staffs Info Table for RI School Nurses Conference

March 27, 2023
LDA Staffs Info Table for RI School Nurses Conference

The Rhode Island Chapter of the Lyme Disease Association recently provided Lyme disease educational information  to school nurses.  The Rhode Island Certified School Nurse Teachers Association presented a conference on 3.21.23 in Warwick RI entitled “What Rhode Island School Nurses Should Know about Vector-borne Diseases.” Speakers included Sandi Delak, MEd, BSN, RN, NCSN-E, FNASN and […]

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CDC Foundation Collaboration with Groups Key: LDA Meeting Report

February 11, 2023
LDA Board of Directors Member Jeannine Phillips

Lyme Disease Association Inc (LDA) Board of Directors Member Jeannine Phillips attended the first virtual meeting of ICUE, the CDC Foundation’s new infectious disease-based initiative, February 8, 2023, which includes Lyme disease. About 40 patient advocacy and community-based organizations from different health conditions were represented in the initial endeavor. Meeting report from Jeannine (picture) follows.

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Lyme Disease Misdiagnosis Resulting in Death: Jury Awards Parents $6.5 M

February 2, 2023
Lyme carditis

According to BangorDailyNews.com, Judy Harrison, February 2, 2023, the Mercy Hospital, Northern Light Health, Maine, has been found guilty in a wrongful death lawsuit filed by the parents of Peter A. Smith. Smith twice saw the same doctor at the hospital in June 2017 but was never diagnosed with Lyme disease. The doctor noted on a visit,“No signs of Lyme disease.”

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Pregnancy, Breastfeeding & Lyme Bibliography

January 26, 2010

Any woman who has Lyme disease and is considering becoming pregnant or who is pregnant, or who is bitten by a tick during pregnancy, should see a Lyme disease doctor, one who understands the serious medical implications of Lyme during pregnancy. The Lyme bacteria, Borrelia burgdorferi, can cross the placenta and can cause death of […]

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White-Tailed Deer: Incompetent Hosts of Lyme Spirochetes

March 26, 2023
Deer 2

Vector-Borne and Zoonotic Diseases (Pearson, P. et al.) published “White-Tailed Deer Serum Kills the Lyme Disease Spirochete, Borrelia burgdorferi” ahead of print on 3.21.23. In this study, researchers used an in-vitro serum sensitivity assay to determine that serum of white-tailed deer kills Lyme spirochete (Borrelia burgdorferi). A number of competent vertebrate reservoirs maintain the Lyme spirochete, […]

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Forms of Lyme Bacteria (Bb) Studied: May Affect Persistence

March 22, 2023
Lyme Bacteria

International Journal of Molecular Sciences (Corak, N., et al.) 3.15.23, published “Pleomorphic Variants of Borreliella (syn. Borrelia) burgdorferi Express Evolutionary Distinct Transcriptomes.” The study examined the lifecycle of B. burgdorferi, and its development of numerous pleomorphic forms, to gain clarity regarding possible biological and medical importance.

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How Does Lyme Spirochete Control OspC?

March 22, 2023
OspC

Journal of Bacteriology (Castro-Padovani, T., et al.) 3.15.23 published “Gac Is a Transcriptional Repressor of the Lyme Disease Spirochete’s OspC Virulence-Associated Surface Protein.” The study investigated the processes by which the Lyme disease spirochete, Borrelia burgdorferi sensu lato, controls production of OspC.

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Chemokine Autoantibodies and COVID Disease Course

March 22, 2023
virus-g4f1b8a599_1920

Nature Immunology (Muri, J., et al) published a letter on 3.6.23 “Autoantibodies against chemokines post-SARS-CoV-2 infection correlate with disease course.” During this investigation it was discovered that the antibodies against specific chemokine were most common post-COVID-19. These antibodies were also associated with favorable outcome of disease and negatively related with the development of long COVID. […]

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Research Grant Application Package

March 19, 2023
Research Grant Application Package

LDA is committed to funding Lyme and tick-borne diseases research leading to better diagnostics, treatment, and cure.  Click here for prior grant award descriptions. Grant application package links are below. (You can download the Microsoft Word Version, or the PDF.) Grant Application – Research Projects Microsoft Word PDF Grant Application for Extension of Existing Grants – […]

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About the LDA

March 19, 2023
2018 BoardComposite

The Lyme Disease Association, Inc. (LDA) is designated by the IRS as a 501(c)(3) non-profit, a charity focusing on research, education, prevention and patient support. History The Lyme Disease Association began as Lyme Disease Association of Central Jersey in 1991 and then became Lyme Disease Association of New Jersey in 1993. Formed by patients and […]

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LDA Education Grants Resulting in Published Materials/Conferences

March 19, 2023

The LDA annually awards a number of small education grants.  These grants are for public programs, materials, or conferences or Sometimes the grants  are restricted to publications or conferences.  Below is a very small sample of  resulting conferences or materials  produced by the grantees.  New York 1999 – Arman Manasar, DDS, Bard College: 2 Day Discussion […]

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Lyme Disease Association (LDA) Grant Program

March 19, 2023
lyme disease grant program

The Lyme Disease Association (LDA) awards grants in three different areas of its mission:  Research, Education, and Patient Support  (LymeAid 4 Kids).  The sections below highlights each area of grant support.   Click below for the summary of stats on all grants awarded through 2021. Research Grant statsEducation Grants statsLymeAid 4 Kids Grant Stats Research Grants Since the LDA officially opened its […]

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Remembering Janet Mary Jemec, Lyme Warrior and Advocate

March 13, 2023
Janet Jemec

Who could forget the bright red hair, endearing smile, enthusiasm, and kindheartedness of my dear friend, Janet Jemec? Janet was a dynamo during the early struggles of the tri-state area’s Lyme community and remained active until 12 years ago.

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2023 Lyme & Other Tick-Borne Diseases CME Conference

October 13, 14, 2023

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© 2019, 2020 Lyme Disease Association | Lyme Treatment Guidelines | Dr. Referrals | Funding & Research

LDA Doctor Referral System © Terms & Conditions and Guidelines 

Save this Information for Your Records:

 

About LDA DOCTOR REFERRAL SYSTEM ©
Welcome to the Lyme Disease Association’s LDA Doctor Referral System ©. LDA made updates and enhancements to its prior system and has launched a new site to provide patients with information about doctors, other practitioners, testing labs, and pharmacies that are knowledgeable about chronic Lyme disease and often about many other tick-borne diseases (TBD). Many of the doctors listed are often referred to as Lyme Literate Physicians/Doctors (LLMD). Tens of thousands of patients have successfully used the prior LDA system to locate Lyme and TBD resources.

Terms & Conditions and Guidelines
Because there is a negative political climate surrounding Lyme disease, many LLMDs do not want their names posted outright on the internet. LDA has tried to balance the doctors’ wishes with patients’ need to find a doctor. This new system is a result of that compromise and therefore:

  • LDA permits searches over a calendar month period that will result in access to up to 15 Doctor Referrals. To access a Doctor Referral listing, first conduct a search, and then click on the desired provider from the results that populate. Clicking on a listing will re-direct you to that provider’s page which will include all necessary contact information. The system enables you to click on up to 15 Doctor Referrals every calendar month period.
  • Searches can be refined based on the search location (street address, city, zip code or country), search radius (distance from the starting point), category filter(s), and/or keyword search.

Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines, Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the LDA Doctor Referral System © contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the location entered and specaialty/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of so we can investigate.

Some providers may not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. Contact the provider to confirm.


It is your responsibility to contact the provider’s office to confirm the current address, directions, nature of services provided, and all other provider information before you make an appointment.


DISCLAIMER:   The Lyme Disease Association, Inc. provides referrals to health care providers who treat Lyme disease, and often other TBD, as a courtesy to those seeking Lyme Literate Physicians (LLMD).  However, some of the providers included do not specifically treat Lyme and TBD but see patients who have symptoms associated with Lyme and TBD to address those specific symptoms. We do not evaluate the professional competence or qualifications of health care providers on our referral list or the costs of services provided. Accordingly, the LDA neither warrants nor endorses the health care providers contained on this list nor the quality of care you will receive from those providers. We do not make recommendations, only referrals. LDA does not receive any monies from physicians to be included on this list nor does LDA provide any monies to physicians. Because of the limited number of physicians treating chronic Lyme disease nationwide, some states, and in some instances, entire regions, may not have any treating physicians who follow flexible treating approaches such as those in the International Lyme & Associated Diseases Society (ILADS) Guidelines: Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease. In the event that the Doctor Referral System contains no Lyme or TBD resource listings in a given area, the closest possible option(s) will populate based on the zip code entered and category/ies selected. The LDA appreciates any changes in provider information that you may find and make us aware of.

LDA does not accept or reply to any comments on:

  • What insurance a doctor accepts or does not accept, or if any insurance is accepted.
  • How listed doctors practice or any other aspect of the doctor-patient relationship.
  • The cost or fees charged by any healthcare provider.
  • Why a particular doctor is or is not listed.
  • Request for providers that treat COVID-19, although some of the providers in the system may treat COVID.

 

We cannot guarantee that the information provided will be timely and accurate or that physicians on the list are accepting new patients, or that they accept insurance. The selection of a physician should be made by you after careful consideration. There are two approaches in the treatment of Lyme disease. Our list contains physicians who generally follow more flexible treatment approaches than those advocated by the Infectious Diseases Society of America (IDSA). LDA is not responsible for incorrect information on the website. BEFORE DOCTOR VISIT: Please contact the physicians’ offices directly to confirm their current address, directions, and any other necessary information before scheduling an appointment. Do not rely only on the maps provided on this site. The maps on LDA’s Doctor Referral System are for informational purposes and provide an approximate locality of the listing based on the addresses we are provided with at the time of site updates. Practitioners often relocate and addresses can change. Notification of changes in listed information can be updated on our Dr. Referral Contact Form. Thank you, Lyme Disease Association, Inc. (LDA)

Subscriber information will not be shared outside of the Lyme Disease Association, Inc. nor used for donor solicitation.

The Lyme Disease Association, Inc. reserves the right to unsubscribe anyone from this service without cause.

Please use our Dr. Referral Contact Form regarding any issues.

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