The 16th meeting of the Federal Tick-Borne Disease Working Group (WG) took place 10.27.20. Public commenters urged the WG to acknowledge and act on the changes needed for patient relief. In review of report chapters, contentious arguments continued, with Pat Smith again advocating passionately on behalf of chronic Lyme patients. (Below items are not in […]
Dr. Richard Horowitz et al. just published a new in vitro study on dapsone (diaminodiphenyl sulfone) and dapsone combination therapy (DDS CT). The study is suggestive that dapsone combination therapy may well characterize both a novel and successful option to treat Borrelia burgdorferi “persister” cells, which are the biofilm form of the bacteria.
TBD Working Group Committee Members / Meeting #12 Agenda / LDA Written Summary of Meeting Full Video: March 3rd – Day 1 / March 4th – Day 2 Other Video Clips: Training, Education, Access to Care Discussion / Public Comment (9 speakers) 1-S. Donta: Pathogenesis, Physiology of Lyme 4-S. Donta: Clinical Aspects of Lyme Including […]
At the start of the second day of the meeting, 9 Lyme disease advocates and patients called in to provide public comments. Their input was invaluable and helped committee members appreciate issues of concern throughout the country.
The 12th meeting of the Tick-Borne Disease Working Group (TBDWG) took place over two days, March 3rd-4th, 2020, at The College of Physicians of Philadelphia in Philadelphia, PA. A summary of this in-person public meeting is as follows: Opening statements were presented by Tammy R. Beckham, Director, Office of Infectious Disease and HIV/AIDS Policy (OIDP), […]
The Lyme Disease Association Inc. (LDA) feels it is imperative that the Lyme Community and the public understand the continued resistance by government agencies to provide information pertaining to chronic Lyme disease on their websites and in their programs despite Lyme disease being around 45 years. LDA has provided video clips from the HHS Tick-Borne […]
The 11th meeting of the Tick-borne Disease Working Group (TBDWG) was held at the Hyatt Place Washington DC/US Capitol, 33 New York Avenue NE, Washington, DC. During the two-day meeting, the Working Group 1) heard presentations on findings and actions for TBDWG to consider from eight subcommittees; 2) heard updates from the Public Comment and […]
The HSS-Tick-Borne Disease Working Group subcommittee reports are now accessible on the HHS-TBDWG webpage. The TBDWG established eight subcommittees in June 2019. Each subcommittee identified priorities and developed a report to the TBDWG that described current efforts, gaps in research, and potentials actions relevant to their topic. Read Subcommittee Reports
Help Us Work for You! Let’s Provide a Healthier New Year. This year has been another busy one for the Lyme Disease Association (LDA). We have now been working for Lyme and tick-borne diseases (TBD) for 29 years, with individuals who are patients and family members of patients driving the programs. We care about you, your family, your friends, your pets, who have or might acquire Lyme disease and other TBD. That is why 97% of our funds go directly to programs most years. By donating today you can help us continue our programs to help Lyme patients.
The 11th meeting of the Tick-borne Disease Working Group (TBDWG) will be held on January 28 and 29, 2020, from 9:00 a.m. to 4:30 p.m. ET on both days (times are tentative). The HHS.gov site has announced that, for this meeting, the eight subcommittees will present their findings and potential actions for the TBDWG to […]