Findings from this sample of patients showed that this group of patients reported more severe symptoms than the general population as well as reporting higher than other clinical sample groups including cancer patients and chronic pain patients, and for symptoms of fatigue, women reported higher than men.
Search Results for: Persistent Lyme
TBDWG 16 – Fight Continues for Patient Relief: Get Patients Diagnosed & Chronic/Persistent Lyme Recognized
The 16th meeting of the Federal Tick-Borne Disease Working Group (WG) took place 10.27.20. Public commenters urged the WG to acknowledge and act on the changes needed for patient relief. In review of report chapters, contentious arguments continued, with Pat Smith again advocating passionately on behalf of chronic Lyme patients. (Below items are not in […]
Co-Chair: “Persistent Lyme Religious Belief”/Lyme $$$ Amendments/ Tick Biowarfare Investigation Passes House/WNBA Denies Lyme-Covid Exemption/LDA’s New Spanish LymeR Primer/Lyme Vaccine Phase 2 Results/Asian Longhorned Tick Increases
Persistent Infection a Religious Belief? Working Group Co-Chair Says – YES! At the meeting itself, Working Group Co-Chair, Dr. David Walker, and Member Eugene Shapiro made and seconded many motions to remove material from the proposed draft report including the two sets of guidelines, shared decision making, access to care, Lyme treatment trials, and cost of Lyme disease.
IMMEDIATE ACTION Recommended by LDA: Make Your Voices Heard on Persistent Lyme to the Working Group Now! June 24th Deadline. Our government denies persistent (chronic) Lyme and refuses to acknowledge and help those patients. Please submit comments, can be short, about the existence and importance of persistent (chronic) Lyme. How it affects your life, family, job,
To avoid persistent symptoms in Lyme disease it is crucial to recognize the Lyme disease rash, when present, and diagnose and treat early and adequately. Persistent symptoms can be multi-system and debilitating, and include severe fatigue, musculoskeletal pain, cardiac complications, neurologic symptoms, and cognitive problems.
The upcoming meeting of the HHS Working Group on Sept. 15 may be your last chance to influence language on persistent/chronic Lyme. At the last meeting, several members of the Working Group (WG) worked hard to have language related to patients with persistent Lyme symptoms removed from the WG report which will go to Congress at end of year.
Top Lyme disease researchers from across the United States have collaborated on a new publication, Recent Progress in Lyme Disease and Remaining Challenges. In this review article, researchers summarize the state of Lyme over the past 5 years, addressing major scientific advances as well as identifying remaining challenges and needs. Topics covered in the publication […]
The RI Resolution S0711 introduced by Senator Stephen Archambault (RI 22-D), which was amended on the floor, requests the RI Department of Health to increase public awareness of Lyme activities that expose people to ticks, educate on symptoms of Lyme and importance of early detection, and to update physician protocols with regard to early detection […]
Congressman Josh Gottheimer (NJ-5-D) held a press conference to discuss Lyme disease and three bi-partisan bills currently introduced into the House of Representatives. He spoke about the seriousness of the disease in NJ and in his district and of the need for funds to help with diagnostics and new treatments and help for the patients […]
NJ has four times the national average of Lyme disease cases West Milford, NJ, June 10, 2021 Above: Gottheimer in West Milford today. WEST MILFORD, NJ — Today, June 10, 2021, U.S. Congressman Josh Gottheimer (NJ-5), a member of the Congressional Lyme Disease Caucus, announced bipartisan federal action to help protect families from Lyme disease and […]