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Lyme Disease Association Archives: 2008
Innovative Lyme Teen Auctions Her Designer Gowns to Benefit LDA & Lyme Research
Pennsylvania teen and Lyme patient Heather Holtry was given the
opportunity to show her designed gowns at the Pure Fashion Runway Show this
year in Atlanta Georgia, through Make a Wish Foundation. She wanted to raise
Lyme disease awareness and monies for research, too. Her efforts have paid
off, as Heather’s gowns are now being auctioned on EBay, with any monies she
raises to be donated to LDA for research. Go to
http://www.stylebyheatherrose.com
to see the gowns, to get information on how to bid, and read Heather's
Story.
Lyme Disease Association Announces Two Lyme Seminars
Research & Physician Experts & Advocate to speak in Eastern Connecticut
The Eastern Connecticut Chapter of the Lyme Disease Association (ECCLDA) announces it is hosting two Lyme disease seminars on June 17, 2008. An expert in the field of genetics will discuss cutting edge research into the survival of the Lyme disease spirochete and a prominent Lyme disease treating physician will talk about the clinical aspects of the disease. Each will be joined by the national president of the Lyme Disease Association, Pat Smith, who is recognized for raising research and education funds for Lyme disease and advocating for Lyme patients. Exhibitors will also be present.
Morning Event
Eastern Connecticut State University, Student Center, 10 am-12:30 pm, doors open 9 am
Open to the public
Eva Sapi, PhD, Genetics, Associate Professor at University of New Haven, will speak about Lyme disease biofilms & a possible connection to Lyme disease resistance, and about other tick-borne diseases.
Pat Smith, President, Lyme Disease Association and member of the Columbia Lyme & Tick-Borne Diseases Research Center Advisory Committee, will give an update on Lyme disease including infection rates, spread of the disease, patient problems, and legislation.
Evening Event
Connecticut College, Blaustein Humanities Center, New London, 7-9:30 pm, doors open 6pm
Open to the public
Kenneth B. Liegner, MD, PC Diplomate, American Board of Internal Medicine, will cover diagnostic and treatment issues surrounding Lyme & other tick-borne diseases in his presentation.
Pat Smith, President, Lyme Disease Association and member of the Columbia Lyme & Tick-Borne Diseases Research Center Advisory Committee, will give an update on Lyme disease including infection rates, spread of the disease, patient problems, and legislation.
Determined Teens Organize Walk for Lyme Research
Co-sponsored by the Corning-Fingerlakes Area Chapter, Lyme Disease Association
June 7th, 2008 at the Holding Point Park
190 Wygant Road in Horseheads, New York
Victoria, who has Lyme, and her friend, Sarah, wanted to find a way to promote Lyme disease awareness and prevention. They decided on a walk open to everyone in the community; with no registration fee. Walkers have the option of donating money to the Lyme Disease Association or obtaining sponsors for the walk. T-shirts are available for purchase. Go to
http://lymewalk.org for details.
Bergen
Forum Media Advisory
Paramus, New Jersey May 2008 ─ The national Lyme Disease Association announces a forum at the Bergen County Community College, May 29. The forum will feature speakers who will delve into the Lyme disease controversy focusing on various aspects of the
disease.
UPDATED
SPEAKERS & INFORMATION! Free, open to the public, no registration
required
Forum: “Lyme Disease: Insights into the Crisis, Key Players and the
Future”
Hear from those who have intimate knowledge of the Lyme crises
Also: Exclusive Pre Release of Book for Sale & Signing
7PM, Thursday, May 29, 2008 (easy access from NY, CT, PA, NJ)
Bergen County Community College
400 Paramus Road
Paramus, New Jersey 07652
Technology Education Center
Tec Education Building, Room 128
Sponsored by Lyme Disease Association
All book sales by cash or check only ($25)
Attorney Elliott Pollack is current Counsel for Dr. Charles Ray Jones and former Counsel for Dr. Bernard Raxlen in defending Connecticut Department of Health actions against the Doctors related to Lyme disease treatment. Attorney Pollack will discuss the legal & political issues surrounding Lyme disease and how they impact treating doctors and patients. He is a member of Pullman &
Comley, LLC.
Author Pamela Weintraub, an editor at Discover Magazine, is featured in her first public discussion about her book,
Cure Unknown: Inside the Lyme Epidemic, to be released June 19 by St. Martin's Press. The book, a narrative history of the Lyme experience and a deconstruction of the science and politics, discloses the research of some major players in the Lyme war and includes surprising, and to some perhaps shocking, revelations from researchers who have been behind the effort to debunk chronic Lyme disease. Patients, advocates, treating physicians, and other scientists are also interviewed and the reader will gain insight into living with Lyme as portrayed through the examples of several "Lyme
families". At the forum, she will discuss the book, difficulties pulling the information together in a meaningful fashion, her thoughts as to how her work can impact the current Lyme disease crises, and the future direction
she sees for Lyme disease. Cure Unknown will be available at the event for signing and purchase with profits going to LDA toward research.
Also featured will be Dr. Joseph Burrascano, Jr., one of the most notable physicians to treat Lyme disease patients. His treatment philosophies have inspired physicians worldwide to search for new methodologies to treat chronic patients. Now retired from private practice, Dr. Burrascano will share his insights from over 20 years of treating chronic Lyme disease patients, his on-going database project which is amassing clinical data never before compiled, and what he sees as the future of Lyme treatment based on current research and his data base. Dr. Burrascano will touch upon what he sees as his immediate role in Lyme disease.
LDA Presents Spotlight on Lyme,
Sandy Hook
 National
Park (Gateway Recreational Area), New Jersey. May 18, 2008. Rain
or Shine!
Join with family and friends to ride or walk this beautiful oceanfront area
peninsula across the water from Manhattan. A fun day for all. Your
participation will raise awareness for Lyme disease. Proceeds will be used by
LDA for Lyme and tick-borne diseases research. For information and
sponsorship opportunities contact Kim Cronin at kimcronin@msn.com.
Lyme Disease Association (LDA) Announces Lyme Walk/Ride on Sandy Hook
Lyme & Other Tick-Borne Diseases Continue to Rise in NJ
Wall Township, May 12, 2008–The NJ-based national Lyme Disease
Association (LDA) announces it is hosting a bike ride and a walk,
Spotlight on Lyme, on May 18 in Monmouth County New Jersey.
Participants have a choice of a 3 mile walk or 15 mile bike ride taking place
on Sandy Hook to raise funds for the LDA for research to fight this
debilitating disease and to raise awareness. New Jersey is third in the nation
in CDC reported Lyme disease case numbers and Monmouth County ranks 2nd in
case numbers in New Jersey.
Announcement from the Lyme Rights group
Wednesday, May 7th from 11am to 2pm, Lyme Rights will amass a patient presence in front of the office of
Congressman Frank Pallone (NJ), House Health Subcommittee Chair, to let him know HR
741, the Lyme bill, needs to be put on that committee agenda now. Go to LymeRights.org for more information.
Open Eye Pictures Presents: UNDER OUR SKIN
Don't Miss the opportunity to see the world premier of the Lyme documentary that goes behind the scenes of the Lyme disease crisis.
Featured at the Tribeca Film Festival!
Lyme Documentary tickets on sale at Tribeca Premiere April 26-May 2, NYC.
Letter from Open Eye Crew
Lyme Disease Forum, April 30, 2008,
7pm-9pm (doors open 6pm)
Admission FREE, open to the public
Sponsored by: The Brookfield, Danbury Sunrise, Danbury Noon, Ridgefield, and Newtown Rotary Clubs & Ridgefield/ Newtown Lyme Disease Task Forces
Speakers: Richard I. Horowitz, M.D., Lyme & other tick-borne
diseases, and Pat Smith, Update on Lyme Disease including infection rates, spread of the disease and
solutions.
Western Connecticut State University, University Blvd. (off Lake Ave/Mill Plain Rd) Westside Campus. For information:
rldtf@comcast.net.
LDA SEPA Presents
Bob Bransfield, MD and Pat Smith President, LDA will speak at the Lyme forum hosted by the Lyme Disease Association of Southeastern Pennsylvania on April 19, 200 from 1-4 PM.
West Chester East High School auditorium
450 Ellis Land, West Chester, PA 19380.
Map and
directions
Forum on Lyme Disease: Management, Treatment, and Prevention 4-12-08
1-4pm
http://www.newfs.org/learn/catalog/hor6500
Open the public - Registration will be accepted at the door.
Co-sponsors:
The Underground Landscaper Network
New England Wild Flower Society
Northeast Organic Farming Association
Garden in the Woods, Framingham, MA
Pat Smith, LDA President
Lyme Disease Recital to Benefit LDA & Lyme Awareness March 30, 2008 8:00 PM
Dr. Jim Hudson will give a vocal recital with a free-will offering to benefit the Corning-Finger Lakes Chapter of the national Lyme Disease Association at Grace United Methodist Church, 191 Bridge Street, Corning where Dr. Hudson has been Director of Music for the past thirty-eight years. He is a Corning Community College Professor Emeritus of Music, an emeritus member of the National Teachers of Singing and a life member of the American Choral Directors Association. He has been
guest soloist with the Corning Philharmonic, the Orchestra of the Southern Finger Lakes and the Cantata Singers & has made several appearances at the Crane School of Music Festival of the Arts and as soloist with the late Robert Shaw that include performances of the Bach “B-Minor Mass”, Schubert’s “Mass in G” and Haydn’s “Creation.” The recital will include art songs, operatic and oratorio selections in German, French, and Italian and will include some of Dr. Hudson’s own compositions. The accompanist will be Claire Gonta Smock. The concert is dedicated to his daughter, Dr, Elisabeth Heininger, who, with her family, is experiencing the misfortunes of Lyme disease. All donations will be given to the national Lyme Disease Association which is an all-volunteer, non-profit, 501(c)(3) organization.
Lyme Disease Forum March 31, 2008 7-9:30PM
Mercy Hospital Scranton Pennsylvania
Co-Sponsored by Lyme Disease Association & Mercy Hospital
Speakers include Richard Horowitz, MD; Pat Smith, LDA President
Press contact: Heather Okun, hokun@epix.net
Lyme Disease Goes to Carnegie Hall
Time for Lyme and C. Bechstein Pianos Proudly Present "Barry Alexander and Friends" at Carnegie Hall in a Concert to Benefit "Time for Lyme"
on March 22, 2008
Last Modified: June 26, 2008
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